Prostate Cancer Resources

Prostate Cancer Resources

(NB Some of the webinars/videos may require sign up first; all are free)

General

  • UsTOO’s Prostate Cancer Pathways for Patients and Caregivers is a wonderful video resource of a day-long conference covering everything encountered along your journey: diagnosis, treatment, side effects, genetics, sex and intimacy, the psychosocial impacts of prostate cancer and so much more.  Lengthy, however easy to find segments of interest 3-4 minutes long.  But be forewarned: you’re likely to find it so interesting, you’ll watch the entire webcast!
  • My Prostate Cancer Road Map is a website softly sponsored by Janssen Biotech, Inc., makers of Zytiga (abiraterone acetate) that helps men make sense of living with advanced prostate cancer.
  • See our own Board Member, Rob Barniskis, featured in a wonderful video.
  • The Man Junk Project  is an animation drawn and narrated by our highly talented Board Chair, John Teisberg. It explains how a man’s ‘bits’ work from the inside out. For those puzzled by seminal vesicles, urethers, nerve bundles and more, check out this simple and amusing video! Click here or the highlighted link above.
  • And to see the life size Man Junk Contraption demonstrated at PCRI 2017 click here.
  • UCSF Localized Prostate Cancer & Its Treatment  (pamphlet)
  • UCSF Radiation Therapy for Prostate Cancer – a Patient Guide (pamphlet)
  • PET Scans for Prostate Cancer – Alan Edel’s excellent guide to navigate the scanning quagmire
  • Active Surveillance: Who is the Right Patient?  – Dr. Matt Cooperberg, arguably the world’s leading expert on active surveillance (AS), speaks with Dr. Chuck Ryan on several key aspects of AS. (video)
  • Prostate Cancer News, Reviews & Views  – a blog edited by one of the most knowledgeable peer advocates, Allen Edel; especially when it comes to any matter addressing radiation in all its forms.
  • New Prostate Cancer Infolink – stay up to the minute with the most pertinent developments in the prostate cancer world. Mike Scott is exceptionally knowledgeable and this is a great information resource for all matters PCa.

Gene Testing and Immunology

Advanced Treatments

Complementary Medicine – exercise, nutrition, stress management & more!

Nutrition & Prostate Cancer

Nutrition & Prostate Cancer

 with Greta Macaire RD

Monday, July 31, 2017 @ 8 pm EDT  

Diet, exercise and stress, three very powerful components to manage prostate that are within our own control. Studies in the past 10 years have provided significant empirical support for the role of diet and nutrition.

UCSF, its clinicians and researchers have been in the forefront of this effort. As well as personally consulting with thousands of prostate  cancer patients and their caregivers, Greta Macaire, the senior resident dietitian at UCSF Comprehensive Cancer Center, has presented monthly on nutrition and PCa for more than 10 years.

Her presentation will address:

  • Balanced diet and nutrition for living with prostate cancer
  • Weight management during treatment
  • Diet and nutrition changes when in treatment
  • Healthy eating and recipes
  • Nausea and appetite problems

Click the PDF icon for the deck

 

Additional Resources

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About Greta Macaire, R.D.

Greta Macaire is an oncology dietitian with the UCSF Helen Diller Family Comprehensive Cancer Center. She helps patients with nutrition guidelines for specific cancers, supportive nutrition during treatment, and optimal healthy eating patterns to reduce the risk of cancer recurrence and maximize quality of life. Macaire is a Certified Specialist in Oncology Nutrition (CSO), the highest credential given to registered dietitians for expertise in oncology nutrition.

Macaire received her Bachelor of Science and Masters of Arts degrees in nutrition and dietetics from San Francisco State University. She completed her dietetic internship through San Francisco State University and the San Francisco VA Medical Center.

For more on Greta read this UCSF Spotlight article.

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Nov 18, 2018 – High Risk/Recurrent/Advanced Prostate Cancer Group

Broad Institute record requests; inter institution tissue slide requests; old vs new samples for testing; liquid vs solid tumor tests; FDA’s pan-cancer approvals; what does precision medicine mean?; continued success with Zytiga; S.A.M. pro’s & con’s; muscle cramp solutions; how much upfront ADT for Gleason 9?; treating recurrent disease. Check the new keyword, transcript function

Nov 13, 2018 – High Risk/Recurrent/Advanced Prostate Cancer Group

Nov13 , 2018  Debulking metastatic primary with RP; bullous pemphigoid auto-immune response – skin condition; recurrence after two focal laser ablations; threshold to intervene when 2nd line anti-androgen stops working; docetaxel and BRCA 2 mutation; fasting prior to chemo; more metastatic debulking with radiation! Check the new keyword, transcript function

 

Monotherapy Apalutamide/ Erleada- a discussion with Al Pfadt

In this High Risk/Recurrent/Advanced PCa virtual group recording from September 2018, Al Pfadt, a castrate resistant PCa patient with clear lymph node involvement, reviews his success using monotherapy apalutamide (Erleada). Al’s genitourinary medical oncologist is the highly regarded William Oh at Mount Sinai.

The clear advantage of any monotherapy anti-androgen is that it drops the LHRH, androgen deprivation drug. In Al’s case, his PSA continues to fall in the face of a rising testosterone level.