Hi-Risk/Recurrent/Advanced PCa Video Chat, April 15, 2024

by | Apr 16, 2024 | Cancer Resources, mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PCa Video Chat, April 15, 2024

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
View AnCan’s patient-centered selection of papers and presentations from ASCO GU 2024, one of the top conferences on prostate cancer treatment:  https://youtu.be/YweU8hjA0Lw 
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/          Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/
Editor’s Pick: Two younger men face challenging treatment but it’s the older man with the young wife who yearns for his testosterone! (rd)
Topics Discussed
SoC not offered to ‘young’ man with recurrent disease; testosterone replacement therapy; another young Gent with mHSPC needs a GU med onc QB; blood work returning to normal; drug holiday coming up; are glucocorticoids carcinogenic in the short or long run?; high risk diagnosis needs more investigation before treatment decision; there are solutions to ED; successful Tx continues as T returns.
Chat Log

  • Richard Tolbert

    sent: 5:30 PM

    The Patient Advocate Foundation, Co-Pay Relief Fund (CPR) Prostate Cancer, Metastatic Prostate Cancer and Prostate Cancer Health Equity are now open. Contact 866.512.3861. Email for portal: The Patient Advocate Co-Pay email portal: https://copays.org/#login

    sent: 6:04 PM

    Mark. Can’t find you to reply just to you. I am in bed because I had knee replacement surgery 3 weeks ago. Much more comfortable. I actually find my bedroom is the most comfortable place for these meetings.

    Richard Tolbert

    sent: 6:09 PM

    Jeff, it’s Richard Tolbert. Don’t understand the problem. Good luck with your recovery. My wife is at a crossroads with her knee pain, bone on bone. Will need knee replacement surgery in the near future.

  • sent: 6:11 PM

    Mark asked me in a private message why I was in bed, and if it was due to painful bone metastasis.

    Adam Albarado

    sent: 6:27 PM

    Thanks for the discussion and advice guys!

    AnCan – rick

    sent: 6:30 PM

    Dr. Marijo Bilusic https://doctors.umiamihealth.org/provider/Marijo+Bilusic/1900896?unified=Genitourinary%20Medical%20Oncology&sort=networks%2Crelevance&from=search-list

     

    sent: 6:30 PM

    We are here for you Adam

    AnCan – rick

    sent: 6:31 PM

    Dr. Eleni Efstathiou https://www.houstonmethodist.org/doctor/eleni-efstathiou/?inm=vfad

    THOMAS Matica

    sent: 6:40 PM

    From the Prostate Cancer Foundation “How Bipolar Androgen Therapy Works” https://www.pcf.org/c/how-bipolar-androgen-therapy-works/ Quite the see-saw therapy. Has anyone heard of this or been treated with it? Thomas

    Peter Kafka – Maui

    sent: 6:49 PM

    Dr. Ming Zhou – Dept. of Anatomic & Clinical Pathology, Tufts University School of Medicine. 800 Washington St, Box 802, Boston, MA 02111 – Have the pathology slides sent there for a second opinion on pathology.

    Peter Kafka – Maui

    sent: 6:50 PM

    Johns Hopkins second opinion on pathology: pathology.jhu.edu

    AnCan – rick

    sent: 6:50 PM

    MSKCC nomogram http://nomograms.mskcc.org/Prostate/index.aspx

     

    Adam Albarado

    sent: 7:03 PM

    ☝️

    sent: 7:04 PM

    I have my PSA test tomorrow and I feel it will be lower than the last test at 0.09.

    THOMAS Matica

    sent: 7:09 PM

    Good Night, All……………..Thomas

    Julian – Houston

    sent: 7:11 PM

    good night all – another great discussion!!!

    AnCan – rick

    sent: 7:13 PM

    He’s in Panama City, PANAMA, Adam!!!

    Adam Albarado

    sent: 7:14 PM

    Ha! Yeah…the same but different.

    Adam Albarado

    sent: 7:15 PM

    That does explain the pulsing music though.