Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/          Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/        Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: All his scans are saying it: cancer doesn’t live here anymore. (bn)

Topics Discussed

Scan after scan after scan says cancer’s gone; Dr. E gets her proxy hug; no biggie if blood tests are a bit out of range; multiday fasts; recalling Mark Horn; verdicts shift on maybe-metastasis; good experiences with Dr. Singh?; clinical trial prodding from docs; Medicare’s limit on “too many” scans; MSK protection against insurance denials; pelvic floor therapy miraculous for incontinence; spurning cabazitaxel and re-upping for docetaxel; moment of truth arriving as ADT fades; putting Dr. A in the driver seat; listing all the prostate drugs out there; making the new Wassersug edition affordable; solo darolutamide in his future; hidden blessings of an unseeable cancer; docs reconsidering radiation for gyncomastia; any test for PSMA avidity?; sucking on lemons but smiling as Pluvicto drops his PSA; Keytruda’s ups and downs; no PSMA, no point in Pluvicto; husband’s mets reach liver and pancreas.

Chat Log

AnCan – rick · 6:20 PM
That’s why we pay Dr. E the Big Bucks!!!

Julian – Houston · 6:26 PM
Amen!

TonyFig · 7:21 PM
Dr. Wassersug’s book has a couple of tables listing various drugs for different stages of treatment. Since that time, there have been many new approved drugs. Is there any table or listing of the various drugs we discuss on the calls?

Richard Wassersug · 7:30 PM
-Androgen Derpivation Therapy 2023 edition. First author Richard WASSERSUG

Richard Wassersug · 7:31 PM
richard.wassersug@ubc.ca

AnCan – rick · 7:41 PM
Not for a single dose of RT, Richard according to the cariologists we’ve spoken to

Richard Wassersug · 7:41 PM
Good to hear.

AnCan – rick · 7:42 PM
Left sided BCa RT is usually a much higher dose.

Len Sierra · 7:43 PM
I agree with Rick on the breast RT issue. My understanding is that RT to breast tissue for gynecomastia prophylaxis is low dose.

Richard Wassersug · 7:45 PM
Yes, but it is indeed being done less often here in Canada.

Richard Wassersug · 7:46 PM
Meanwhile I have to go. Thank you for letting me join you today.

Len Sierra · 7:47 PM
Thanks for coming!

Peter Gudel · 7:47 PM
I have to go… thanks to all

? · 7:47 PM
If you have Gynecomastia and BRCA you probably don’t want to do radiation because if you get breast cancer, they can no longer treat you fully with radiation

? · 7:48 PM
A real gotcha

Geoff · 7:50 PM
Should we (I) routinely get a FDG scan along with a PSMA scan? Or is it only an issue for Pluvicto patients?

Julian – Houston · 7:52 PM
Thanks guys – have to go.

AnCan – rick · 7:53 PM
For Pluvicto patients – this is the same issue of concordance

AnCan – rick · 7:54 PM
From Pat M …. I use Lemonhead candies to combat dry mouth and it excites the taste buds.

Pat Martin · 8:00 PM
Good night see you next week

AnCan – rick · 8:08 PM
https://pathology.jhu.edu/patient-care/second-opinions

Wendy · 8:56 PM
Here is video on aCaregiving and Coping with Ambiguous Loss https://www.youtube.com/live/iz4NgckybeY?feature=share

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 7, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 7, 2023

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

NOTE: August schedule change for Tuesday meetings only – next meeting Aug 15

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/          Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/        Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: Mayo offers great docs… provided you select them. Otherwise ‘caveat emptor!’! (rd)

Topics Discussed

Recurrent VA patient lucks out at VA-SF; singlet vs doublet therapy; Dr. E gears up for The General; when to go back on HT .. and what HT exactly; PSA spikes after 2 pembros… that can happen!; Mayo fails to get it right around Pluvicto – or maybe it’s just the wrong doc; what’s the difference between LHRH/ADT drugs?; what type of RT is needed?; prostate area lights up – lungs do not??; stay away from the local uro and get back to the GU med onc

Chat Log

  • John Asent · 5:28 PM
    Genitourinary (GU) Medical Oncologist
  • Steve Schulersent · 5:31 PM
    genomic vs. somatic?
  • sent · 5:31 PM
    https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
  • Gary Psent · 5:31 PM
    genetic and genomic
  • Jim Marshall, Alexandria, VAsent · 5:31 PM
    Gerry: Since the VA does have.a GU Medical Oncologist, you can get a Voucher to go to UCSF through the VA’s IVC office. Jim Marshall, AF-Ret.
  • John Asent · 5:33 PM
    germline genetic test=inherited genes. somatic gene test = see if there is a tumor mutation
  • Julian – Houstonsent · 5:37 PM
    Tumors may also have germline mutations
  • Joe Gallosent · 5:37 PM
    Orgovyx
  • chipsent · 5:38 PM
    can someone ” bullet point” the difference/advantages of orgovyx over Eligard/Lupron.. thanks
  • John Asent · 5:38 PM
    (it’s other name is relugolix) the VA uses non-brand names
  • Julian – Houstonsent · 5:43 PM
    Orgovyx = Relugolixt
  • Joe Gallosent · 5:47 PM
    joeg@ancan.org
  • Joe Gallosent · 6:00 PM
    embr labs
  • Joe Gallosent · 6:01 PM
    embrlabs.com
  • Gerry Burrsent · 6:03 PM
    love embr device and it works for our hot flashes
  • George Rovder, Arlington VAsent · 7:24 PM
    Good Night Gentlemen. Thank you all.
  • Steve Schulersent · 7:26 PM
    Ever a smoker?
  • chipsent · 7:27 PM
    Night All,,, past my bedtime 🙂
  • Gary Psent · 7:31 PM
    Need to sign off, gentlemen. Hope you all have a good rest of the week.
  • Steve Schulersent · 7:33 PM
    Take care, and thanks.
  • John Asent · 7:35 PM
    goodnight guys
Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 1, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 1, 2023

AnCan is grateful to the following sponsors for making this recording possible:  Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/      Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/                      Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Good riddance to abi, but the prednisone’s “side effects” were useful (bn)

Topics Discussed

Urgent call for AnCan’ers to help review salvage guidelines — contact Rick; triumphant 0.01 PSA after a year of drug holiday — he doesn’t miss abi, but arthritis is flaring without the prednisone; osteoarthritis from treatment or just old age?; retrying Pluvicto after chemo and side effects are roaring back; blindsided by doc’s recommendation to stand down on treatment; too early for an FDG concurrence scan; as disease worsens, choose a hospice carefully; sky-high testosterone reading while he’s still half-asleep; ED and urinary incontinence — ask radonc or medonc?; terrifying nightmares on olaparib

Chat Log

Jim Marshall, Alexandria, VA · 6:40 PM
Diclofenac Sodium Topical Gel, 1%

AnCan – rick · 7:04 PM
michael.hofman@petermac.org. Dr. Michael Hoffman

AnCan – rick · 7:06 PM
Jerry there is a group that meets in Tucson … I just got a message from them. The group is not that good.

Alan Babcock · 7:22 PM
I have another meeting at 7:30. Until next week

Jim Marshall, Alexandria, VA · 7:46 PM
Jimmy – Top down on a bicycle, try it.

TonyFig · 7:48 PM
Jimmy, Maybe there is a correlation between men having morning erections and your testosterone being up in the morning

Jim Marshall, Alexandria, VA · 7:51 PM
Julian. You actually have EM – erectile MALFUNCTION.

AnCan – rick · 7:52 PM
WE HAVE A HARD STOP in 3 min.

Julian – Houston · 7:57 PM
Thanks guys for the advise! I have to make dinner for the wife.

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 25, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 25, 2023

NOTE: August Schedule Change for Tuesday meetings only – Tuesday, Aug 1 and 15

UPCOMING WEBINAR: What’s Inside the Black Box? -How & Why PCa Genomic Tests Work Register at https://tinyurl.com/ancanpcagenwebinar

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/      Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/                      Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: Bones to boners in a little under two hours. (bn)

Topics discussed

A skeleton key to bone strengtheners, plus recommendations on calcium supplements; fracture adds to blood concerns; DLL3 as the PSMA for neuroendocrine PCa; apalutamide might not be a Tweedledee; hot flashes arrive after Firmagon has left the party; you can’t split a quarterback; delayed dose opens chasm of indecision; haze to hunger to relief then back to haze — is it ADT?; penile injections move the needle (not painful, sex great); long or short ADT after salvage; we run an ED joke up the flagpole as a grizzly bear reminiscence escapes.

Chat log

Julian – Houston · 6:56 PM
Have to leave early today. Thanks!

Steve Roux – Elk Rapids, MI · 7:38 PM
Gotta Run – new rescue puppy needs my attention. Great meeting! Thanks for all the info!

Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 15, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 17, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 17, 2023

AnCan is grateful to the following sponsors for making this recording possible:  Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

NOTE: August Schedule Change for Tuesday meetings only – Tuesday, Aug 1 and 15

UPCOMING WEBINAR: What’s Inside the Black Box? -How & Why PCa Genomic Tests Work Register at https://tinyurl.com/ancanpcagenwebinar

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/      Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/                      Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Worth waiting until the end to hear our sonorous tones on the Eastern Front relate liver marker issues during Pluvicto… but maybe down to gabapentin?? (rd)

Topics Discussed

New sponsor Blue Earth and Posluma; younger man (55) reports successful treatment; denovo Mx gent needs GU med onc; drug financial subsidies help- one of our gents; hypertension and abiraterone; neurological symptoms; lodging suggestions during treatment; cancer returns to prostate bed; 2nd series of Pluvicto treatments; what to do when PSA makes tiny move off insignificant; ALT & AST swing during Pluvicto – could it be an unrelated drug?; gabapentin issues

Chat Log

AnCan – rick sent · 5:34 PM Dr. Andrea Harzstark

AnCan – rick sent · 5:38 PM rd@ancan.org

Jim Marshall, Alexandria, VA sent · 5:59 PM Zytiga is also called Abiraterone It is generic.

Jim Marshall, Alexandria, VA sent · 6:03 PM Genitourinary Medical Oncologist

AnCan – rick sent · 6:13 PM Elisabeth Heath MD https://www.karmanos.org/karmanos/karmanos-physician-directory/heath-elisabeth-8225

AnCan – rick sent · 6:14 PM Karmanos

Rich Jackson sent · 6:19 PM Zytiga is also called Abiraterone It is generic.

Julian – Houston sent · 6:24 PM https://ancan.org/

sent · 6:29 PM No I am not a veteran.

Julian – Houston sent · 6:30 PM Dr. E is awesome!!!

AnCan – rick sent · 6:39 PM Who in Houston would talk to me about where to stay when going to MD Anderson. Can you say?

Matt Krieger sent · 6:41 PM What is pluvecto (spelling?)?

Peter Kafka – Maui sent · 6:41 PM Most centers have a sheet with places to stay that work with the hospital. Call your doc’s receptionist

AnCan – rick sent · 6:42 PM Pluvicto

Joe Gallo – Bucks Cty PA sent · 6:45 PM One of our AS moderators Hugh Idstein is a Houston resident if you want any help beyond the hospital list.

Richard Tolbert sent · 6:47 PM I live in the Houston area and can provide some hotel options near M.D. Anderson. (contact rd@ancan.org for Richard’s email)

AnCan – rick sent · 6:48 PM Another question to me from John Babb: As a disabled veteran which base or post would the best to try for housing while I am at MD Anderson?

Matt Krieger sent · 6:49 PM I nap every day at 55 if I can find a way!!

Don Needham – Bend, Or sent · 6:50 PM I nap every day after my walk and weights.

Julian – Houston sent · 6:50 PM Naps are good – I try to take one every mid-afternoon.

Matt Krieger sent · 6:58 PM It seems like everyone here is having PSA tests that have a sensitivity down to like .01, whereas the Kaiser tests I get just say ‘less than .06’ if it’s below that level. Should I be pushing for a more sensitive test, does that have value?

Peter Kafka – Maui sent · 7:00 PM You can try asking Kaiser about ultra sensitive PSA testing. But usually they only use it for guys who have had a prostatectomy as primary rather than radiation,

AnCan – rick sent · 7:01 PM Matt – My suggestion would be not to worry. You still have a prostate. I agree with Peter – not needed if you have a prostate.

Matt Krieger sent · 7:01 PM Got it, makes sense and thanks much —

Jim Marshall, Alexandria, VA sent · 7:02 PM Am using Kaiser and I get the Ultra-Sensitive every month for last year Mid Atlantic Kaiser

Frank Fabish Columbus OH sent · 7:06 PM Got to guys. Thanks guys. Stay strong.

Richard Tolbert sent · 7:07 PM Thanks everyone. Have a great week!

Matt Krieger sent · 7:12 PM I heard it too