Hi-Risk/Recurrent/Advanced PCa Video Chat, July 18, 2022
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: The clear winner from this very well attended week is MENTAL HEALTH. Anxiety and depression come up multiple times. Gents – please STAY IN THE MOMENT(rd)
Topics Discussed
We welcome Dr. John as a Mod!; tiny changes in ultra, ultra sensitive PSA 7.5 yrs out make this man nervous and turn to dubious supplements; and small changes for this man 8 years post-RP are of concern; layering HT on a history of depression suggests medication; spinal reconstruction surgery appears timely and successful; PCa is stable but fevers a puzzle; blood biospsy ordered; is radaition cystitiis a concern?; UTI puts man in the ER/hospital – GU med onc fails to pay attention!; is ARASENS for me?; NGS shows trifecta of bad actor mutations; annual scans show stability; post-chemo Tx needs review for foamy gland guy; two of our Gents get mild Covid
Chat Log
Larry Fish (to Everyone): 5:57 PM: especially something for the short term at least – as effects of ADT can be so unsettling and problematic, right away.
Stan Friedman (to Everyone): 6:17 PM: Steve, our prayers are with you.
john antonucci (to Everyone): 6:39 PM: sorry guys gotta go early see you tuesday
Frank Fabish – Columbus OH (to Everyone): 6:42 PM: Got to go guys. See you next week.
Mike Yancey (to Everyone): 7:08 PM: Early appointment requiring a lot of miles tomorrow, so need to drop off a bit early. Good call. Thanks for allowing me to provide an update. See you next Tuesday
AnCan – rick (to Peter M): 7:10 PM: Peter – this is high volume mets that Richard shows!!
Stan Friedman (to Everyone): 7:15 PM: Have to go. See all of you online next Tuesday.
Julian Morales – Houston (to Everyone): 7:17 PM: Catch you guys next week – Another good!
Peter M (to Everyone): 7:20 PM: Good night gents!
Geoff (to Everyone): 7:21 PM: Must go. Thank you all!
Jerry Pelfrey – Mexico (to Everyone): 7:23 PM: Good Night Gents
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: If you’re on long term ADT, that cardio system takes a lickin’ but (hopefully) keeps on tickin’! Two Gents get scares this week (rd)
Topics Discussed
Graduate from Low/Intermediate Group gets educated on recurrence; Newbie w. Care Partner learns more about Pluvicto; another new man needs a GU med onc; same again for Gent in Fort Meyers; take care of your heart – check in with cardio onc; does ADT cause rheumatoid arthritis … and leg pains?; snake oil in Pheonix?; aiming for monotherapy darolutamide; give abi time to work; lay-up exacerbates muscle wating with joint replacements in sight.
Chat Log
AnCan – rick (to Everyone): 3:13 PM: We wil be spending time talking about Cardio-Oncology issues tonight.
AnCan – rick (to Everyone): 4:02 PM: Antonarakis, Stuart Bloom
ALFRED LATIMER (Private): 4:42 PM: Rick: Found that cleveland clinic has cardio-oncology here in Weston FL (near FLL). My current cardiologist is at CC. Will discuss this issue with him nextweek. Thx for the tip.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Editor’s Pick: AnCan recomnmends a QB GU med onc to two gents (rd)
Topics Discussed
Newbie neds to find a QB GU med onc; finding ways to save on abi; waiting to finish up radionuclide trial; Ben’s started a blog; back in biz with Pluvicto; Orgovyx Ambassador Frank has good outcome; Hawaii gent needs a GU med onc QB; Keytruda is next treatment; chemo brings results for rare type of PCa; consider Provenge before chemo
Chat Log
AnCan – rick (to Everyone): 3:18 PM: EMBr Discount for AnCan’rs …. ‘ANCAN50
Mike Yancey (to Everyone): 3:22 PM: QuickRx at 347-691-3494 for Abiraterone 1000mg for a month
Pat Martin (to Everyone): 3:24 PM: I use Expess Scripts subsid by the name of Accredo. I pay 6.60 per month. Benefit through Carpenter union
George Rovder Arlington VA (to Organizer(s) Only): 3:24 PM: Search GoodRX for discount up to 98% in your area. https://www.goodrx.com/zytiga
George Rovder Arlington VA (to Organizer(s) Only): 3:25 PM: GenitoUrinary Medical Oncologist
George Rovder Arlington VA (to Everyone): 3:25 PM: Search GoodRX for discount up to 98% in your area. https://www.goodrx.com/zytiga
George Rovder Arlington VA (to Everyone): 3:59 PM: Thank you Ben.
AnCan – rick (to Everyone): 3:59 PM: Great idea …. thanks Ben
John Antonucci (to Everyone): 4:03 PM: Oh that looks good Ben thanks. pictures and all.
George Rovder Arlington VA (to Everyone): 4:16 PM: Congratulations Frank.
Bob McHugh (Private): 4:37 PM: Dr. Oh orders T level EVERY time he orders PSA. 3 month intervals.
Len Sierra (to Everyone): 4:45 PM: PSA max of 4.0 V. rare form of PCa identified by Epstein as high grade foamy gland prostatic adenocarcinoma!! Gl undeterminable but =/greater than 7 per Dr. Epstein. Has only seen 21 cases. Lung spots seen.
Pat Martin (to Everyone): 4:47 PM: That should be SOC….can’t tell you why I slipped up on being INSISTENT on getting it checked. Some of the trials showed Abbie effective for 5 yrs. I got a couple more years, so we knew it was time to check T.
Ben Nathanson (to Organizer(s) Only): 4:49 PM: If I recall right, foamy gland is itself not a bad diagnosis and not too uncommon mixed with acinar. I think what surprised Epstein is not the foamy but that it’s a high-grade foamy
Julian Morales – Houston (to Everyone): 4:51 PM: Have another meeting at 7pm CT. Talk to you all next week!
Pat Martin (to Everyone): 4:59 PM: See ya all next week…Thanks to all!!
AnCan – rick (to Everyone): 5:00 PM: MPCP https://mpcproject.org/ MPCP = metastatic prostate cancer project
AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborateevery 4th Wednesday of the month for Solo Arts Heal!
On June 22, in honor of Pride month, we were happy to have Jesus Guillen join us.
Jesus is Your Singing Advocate and founder of the HIV Long Term Survivors international network. A 37-year HIV long term survivor, Jesus is part of the first generation growing older with HIV, living with chronic pain, but still a very creative individual. The focus of his work during the last years has been on aging, chronic pain, HIV, mental health, coping skills, and cultural awareness, always with the strong background of his personal journey as an immigrant and being a member of the LGBTQI family. He is also an international speaker and a bilingual/bicultural Latino activist.
Watch the performance here:
To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.
This project is so easy, AND fun. Plus you don’t need much.
What you will need:
Paper (any kind will work)
Markers (again, any kind at all) – Or just something to draw with. Crayons, colored pencils, or just a black sharpie!
…and that’s it! (we promise)
Watch this here:
Funding for this project was provided by the HealtheVoices Impact Fund at the Community Foundation of New Jersey, which was funded by a contribution from Janssen Pharmaceuticals, Inc.
Would you like your art featured in the AnCan Art Gallery? please email me at alexa (at) ancan.org!
To SIGN UP for any of our AnCan Virtual Support groups, visit our Contact Us page.
