Hi-Risk/Recurrent/Advanced PCa Video Support – Men & Caregivers Recording, June 21, 2021
ASCO 2021 REVIEW
Prior to the start of today’s Support Group meeting, Herb Geller and Len Sierra highlight the most significant advanced prostate cancer papers from this year’s ASCO Conference. If you choose to skip directly to the ‘regular’ session, please go to 56:40 .
REGULAR SUPPORT GROUP MEETING
Editor’s Pick: Herb’s & Len’s review of ASCO is definitely worth a listen. But at the other , very basic extreme, Peter raised an important topic – how to remember to take your daily meds! (rd)
Topics Discussed
Consider a drug holiday after 7 yrs ADT; early Dx of BRCA in advanced PCa; what’s left after trying everything SOC?; nocturia; remembering to take your pills; consideration when starting ADT; insurance complicates radiating primary for Mx man
Chat Log
Mark Perloe (to Everyone): 4:31 PM: How long was ADT+abiraterone in the Peace 1 study
AnCan – rick (to Everyone): 4:36 PM: SOC in PEACE includes docetaxel. I read the purple slide differently
AnCan – rick (to Everyone): 4:45 PM: Sip-T = Provenge
Ted Healy – Portland, OR. (to Everyone): 4:55 PM: is this the interferon that has been used in the past for cancer and Hepc patients?
Ken (to Everyone): 4:56 PM: Herb your doing great….
Ted Healy – Portland, OR. (to Everyone): 4:57 PM: gotta go. Thank you so much!
Jake Hannam (to Everyone): 5:00 PM: Thank you Len and Herb!
Len Sierra (to Everyone): 5:01 PM: our pleasure and privilege!
Ken (to Everyone): 5:01 PM: many thanks….
AnCan – rick (to Everyone): 5:23 PM: herb@ancan.org and len@ancan.org
Mark Perloe (to Everyone): 5:46 PM: But I think he needs ADT and abiraterone first. If he has a few isolated lesions, I wonder if SBRT might be appropriate if a low dose of tumor. I went to UCLA.
John Ivory (to Everyone): 6:08 PM: Is this she? Research doesn’t look like a GUMO https://www.urmc.rochester.edu/people/22423597-adrienne-victor
Joe Murgia (to Everyone): 6:12 PM: I just looked up Dr Peter Van Veldhuizen at U of R and he is chairman of GU Oncology
Len Sierra (to Everyone): 6:18 PM: https://pubmed.ncbi.nlm.nih.gov/30236961/ Evaluation of Response to Enzalutamide Consecutively After Abiraterone Acetate/Prednisone Failure in Patients With Metastatic Castration-resistant Prostate Cancer
Jake Hannam (to Everyone): 6:20 PM: darolutamide or Nubeqa
Russ (to Everyone): 6:22 PM: Gotta run guys. Have a great night.
AnCan – rick (to Everyone): 6:27 PM: Myrbetriq
Joe Gallo (to Everyone): 6:28 PM: tamsulosin = FLOMAX
AnCan – rick (to Everyone): 6:29 PM: pumpkin seed oil
John Ivory (to Everyone): 6:29 PM: Quick PSA (public service address): Wednesday evening, turn off Netflix/HBO/basic cable and turn on our next Solo Arts Heal episode! “Living While Maybe Dying,” Performance about health anxiety with discussion. 10:30 PM ET/7:30 PT (also recorded for later viewing). https://ancan.org/solo-arts-heal/
Pat Martin (to Everyone): 6:32 PM: Zytiga 2x a day?
Joe Murgia (to Everyone): 6:32 PM: I use the upside down bottle too!
Blee in Virginia (to Everyone): 6:34 PM: They make those things for 2, 4,6 times per day Pat Martin (to Everyone): 6:34 PM: I use two weekly pill storages. One has a.m./p.m. I use a separate one for my Abi. one of the benefits of getting up through the night.
John Ivory (to Everyone): 6:37 PM: Also, if you didn’t attend Solo Arts Heal with our own Jimmy Greenfield last month, you owe it to yourself to have a look/listen after this call! https://www.youtube.com/watch?v=vp1xBkc3am8&t=1s
George (to Everyone): 6:38 PM: Pill organizer several times per day https://flents.com/products/maxi-pharmadose-pill-planner?variant=35230637686940¤cy=USD&utm_medium=product_sync&utm_source=google&utm_content=sag_organic&utm_campaign=sag_organic&gclid=CjwKCAjw8cCGBhB6EiwAgORey8B_S4j34lw0AuB9MJ8lRi5CC_GpMJp_grpNMb6RJnZd2XleXVXMVBoCq4IQAvD_BwE
John Ivory (to Everyone): 6:42 PM: Relu GO lix. Yes, Or GO vix is correct. Always emphasis on the GO. Not sure why my mic isn’t working tonight
Mark Perloe (to Everyone): 6:47 PM: Rick, I light up like a searchlight at 0.3
Jake Hannam (to Organizer(s) Only): 6:48 PM: Antonarakis told Joel he expects PSMA scans to be available in July at Hopkins, anyway
AnCan – rick (to Everyone): 6:48 PM: But am I doing better in pronunciation Mr .I?
Herb Geller (to Organizer(s) Only): 6:50 PM: I think it will be more generally available very soon.
Marty Rotter (to Everyone): 6:52 PM: I stayed on 1 month Lupron for recurrence before having salvage radiation. Started with 30 days to see how it would effect me and stayed on it monthly for 5 more months.
Joe Gallo (to Organizer(s) Only): 6:52 PM: The Pyl may be more readily available since it has longer half life vs. G68 which is only hours – needing a generator or cyclotron.
Pat Martin (to Everyone): 6:52 PM: Get another PSA test to determine doubling time.
Jake Hannam (to Organizer(s) Only): 6:56 PM: delmarva
Frank Fabish (to Everyone): 7:01 PM: Gotta go guys. See you Tuesday.
Julian Morales (to Everyone): 7:17 PM: thanks. Gotta go guys. See you Tuesday.
Peter Monaco (to Everyone): 7:18 PM: Have to go gents. The recording of this meeting will be available tomorrow morning.
Pat Martin (to Everyone): 7:18 PM: Good meeting. Heading out. See everyone next week
John Ivory (to Everyone): 7:21 PM: Anything with a calorie, herb. I asked & Coffee was OK but no cream/sugar
George (to Everyone): 7:22 PM: Thank you all.