Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 23, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

Welcome AnCan’s first 2024 webinar with two blockbuster headliners — GU med onc Dr. Oliver Sartor and nuclear medicine pioneer Dr. Phillip H. Kuo — “Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!” Register now at https://tinyurl.com/radionuclide – free as always. Two globally recognized experts introduce us to radionuclide scans and treatment, and help us understand how best to coordinate our care team.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/ Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Real-life lessons for 2 visiting genetic counseling students. (bn)

Topics Discussed

After prostatectomy, fear that cancer may still be hidden in the seams; salvage ADT is puzzlingly 36 months and not 24; PSA high, MRI and PSMA light up — but 13-core biopsy shows nothing; how painful is a bone biopsy?; prostatectomy proposed for shrunken urinary tract after radiation therapy; joint and muscle pain busting out all over — blame ADT?; concerns about “sticky” blood in his his third and final Provenge round; prostate cancer in the peritoneal cavity; policy changes in hotel support for visiting cancer patients; you have ammunition to fight a PSMA denial — use it!; good feedback on Dr. Elisabeth Heath; a hello to our group from two genetic counseling students; use your allies (including your doc) in reducing cost of second-line antiandrogens.

Chat Log

Jim Marshall, Alexandria, VA · 6:37 PM
If one decides to stop ADT + Abi, be sure to quiz us as to how too get yourself off of Prednisone. Jim Marshall

Len Sierra · 6:48 PM
why is there no Gleason score after 13 core biopsy??

Unknown · 6:50 PM
I had the Promise genetic test; had none of the gene mutations.

Sophia · 6:53 PM
Promise sounds interesting, I’ve never heard of it before. I’ll have to ask our instructor tomorrow if she’s heard of it before!

Unknown · 6:57 PM
When I had the Promise test last year, these were the gene mutations they tested for: APC, ATM, BAP1, BARD1, BMPR1A, BRCA1, BRCA2, BRIP1, CDH1, CDK4, CDKN2A (p14ARF), CDKN2A (p16INK4a), CHEK2, EPCAM, GREM1, MITF, MLH1, MSH2, MSH6, MUTYH, PALB2, PMS2, POLD1, POLE, PTEN, RAD51C, RAD51D, SMAD4, STK11, & TP53.

AnCan – rick · 6:58 PM
Here’s the link we use as it tracks back to us – you can click on this link. https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

“Thomas” Matica WA · 7:20 PM
What was that injectable for trigger finger???

Unknown · 7:20 PM
steroid, ie prednisolone or others

AnCan – rick · 7:20 PM
Prednisolone

Unknown · 7:32 PM
I was having a snack. You might have seen me sharpening a knife.

AnCan – rick · 7:32 PM
We did – impressed!

Peter · 7:43 PM
Good night gents! Got to run!

Len Sierra · 7:44 PM
Combining PARP Inhibitor With Immunotherapy—Does the Promise of Preclinical Data Translate to Clinic? https://jamanetwork.com/journals/jamaoncology/article-abstract/2798854

AnCan – rick · 7:56 PM
D’Amico article in Medscape https://www.medpagetoday.com/reading-room/asco/prostate-cancer/105340?xid=NL_ASCORR_2023-07-20&eun=g10110736d39r&pos=

AnCan – rick · 7:56 PM
ASCO article https://ascopubs.org/doi/full/10.1200/JCO.22.02489

Paul Freda Lake Worth Florida · 8:00 PM
A more direct statement from Dr D’Amico ….https://www.medpagetoday.com/reading-room/asco/prostate-cancer/105340?xid=NL_ASCORR_2023-07-20&eun=g10110736d39r&pos=&mc_cid=088981f95a&mc_eid=838454d636