Hi-Risk/Recurrent/Advanced PCa Video Chat, June 3, 2024

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Diagnosed de novo and now crossing into hormone resistance — it’s time to update somatic tests and PSMA before new treatment; pancreatic cancer, multiple myeloma, and now a PSA uptick – but our low/intermediate group might be a better fit; his diagnosis mirrors Rick’s from 2007, as does his treatment plan — he may have Rick’s great outcome, too; don’t let weight gain get a head start on ADT; MSK’s “not so fast” disrupts treatment plan and angers his local radoc; what’s it like getting spot radiation?; surprised to hear Dr. E recommend whole-body MRI; hyperbaric oxygen for his prostatitis — what’s the cataract risk?; urine flow getting worse — suspect radiation-induced strictures; ignoring urination problems risks kidney complication; strictures have him self-catheterizing daily; hot flashes with a vengeance on Orgovyx as drug holiday ends; buzz over oxybutynin for hot flashes — but beware contraindications (including the lutamides!) and side effects; ADT fatigue mounting as the months roll on — only solution is to be strong-willed and exercise anyway; a bit of renewed discussion of the Embr Wave hot flash device; don’t overlook depression as a factor in ADT fatigue; probiotics might help mood — check your blood, too.

John A · 8:20 PM

odd Yezefski,  patients like him, Tufts medical school, u of Washington fellowship and residency, specializes in GU

Mark Perloe, Sherman Oaks, CA · 8:48 PM

I don’t have the link, but I found a series of exercise videos on YouTube created by Hutch. They had a few that utilized bands are were quite easy to but into my regimen. I also got Peloton.

Mark Perloe, Sherman Oaks, CA · 9:22 PM

No, I’m pretty tied in to UCLA. Dr. Kishan is a leader in radiation and if planning RT, they have MRIdian SBRT. I would not advise anyone to seriously consider surgery. My bias, but I’ve spent the last three years online hearing about people with complications.

Wang Gao Shan – PANAMA · 9:25 PM

ASCO

Cheap Drug Eases Hot Flashes in Men With Prostate Cancer

— Anticholinergic oxybutynin for patients taking ADT also improved quality of life in the process

Mark Perloe, Sherman Oaks, CA · 9:25 PM

Darn 405 though.

Mark Perloe, Sherman Oaks, CA · 9:28 PM

I think MRIdian is the safest SBRT and the entire team is very experienced just doing prostates.

Mark Perloe, Sherman Oaks, CA · 9:29 PM

If you go to YouTube and search SBRT Kishan, there are numerous lectures he has recorded.

Mark Perloe, Sherman Oaks, CA · 9:31 PM

I would only go to a radiation oncologist who solely does prostate, bladder and kidney.

Frank Fabish Columbus OH · 9:35 PM

Thanks for the discussions guys. See you Tuesday.

Alan Babcock · 9:36 PM

I have to leave early

Joe Comanda (Philadelphia) · 9:40 PM

Need to leave right now. I’ll ask my question another time.

AnCan  – rick · 9:40 PM

Did you ask for time??

Steve Schuler · 9:43 PM

F150 or smart car?

Adam · 9:48 PM

Gotta hit the rack guys. Thank you for the informed discussion. Remember, ANYTHING IS POSSIBLE!

Peter · 9:50 PM

Goodnight all!

Matt – Sac · 9:58 PM

Goodnight all, great info as always. Be well!

AnCan  – rick · 10:08 PM

Embr Wave

AnCan  – rick · 10:09 PM

From Len

AnCan  – rick · 10:09 PM

https://embrlabs.com/products/embr-wave-2

Steve Schuler · 10:15 PM

Thought I’d mention, the estradiol has helped my hot flashes, with fatigue, and also my “dizziness”, which is not really dizziness but this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5732995/

Steve Schuler · 10:17 PM

Benign Paroxysmal Positional Vertigo

Norm Pollock · 10:18 PM

Life Extension: Mood Improve and L-Theanine XR. Heard a doc talking about the probiotic who said they were using it for Bipolar