Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 10, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.

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What exactly do FDG PET scans show?; the skinny on fatty acid metabolism; drug holidays make sense to us; why suddenly three SBRT sessions and not two?; if you want your scan explained, make an appointment with the radiologist who took it; drug holidays have worked for him — but require steady nerves; several ideas on cutting costs of Orgovyx and abi; many of us weigh in on the hidden risks of Medicare Advantage plans; one scenario where Medicare Advantage made sense;  some states are strengthening Medicare regulations to cap patient costs for oral drugs; saving on abi doesn’t require a visit to India; doublet vs triplet demands a GU oncologist’s expertise; PTEN — a new reason not to skip sequencing; he’s getting SPECT scans along with his Pluvicto treatments; a GU medonc might decide you don’t need all 6 rounds of Pluvicto if you’re doing well with fewer; Pluvicto might work better if you don’t bypass chemo; he’s recurrent — but maybe better off in our Low/Intermediate meeting; “TallAllen” Edel can help sort out treatment options in Southern California.

Steve L  · 6:21 PM

Perhaps I do want some time or some information here.  I recently requested a second opinion from another Fred Hutch provider and was turned down as a matter of policy.   They don’t provide second opinions to other Fred Hutch providers.  I would prefer a provider who provides more explanation and reasoning.  Who are the recommended providers in Seattle both inside and outside Fred Hutch.

AnCan – rick · 6:24 PM

Very hard to get a 2nd opinion within the same institution EXCEPT Kaiser, We can discuss other alternatives.

Dr. Jeff · 6:25 PM

Fatty acids are converted to acetyl CoA, which can directly enter the Krebs cycle and subsequently oxidative phosphorylation. Each fatty acid molecule produces many acetyl CoA molecules

Steve L · 6:32 PM

My insurance covered a Bone scan and a CT even with my PSA undetectable. I mentioned to my Doc that I had some recent bone pain in my hip.

John A · 6:36 PM

thanks Steve

Len Sierra · 6:39 PM

And I have had 2 CT CAP scans approved by insurance over the past couple of years while my PSA was undetectable.  I cited the ARCHES trial as the logic for doing it.

Unknown · 6:53 PM

I’d love to have a Medicare discussion at one of our meetings. I’m eligible next year and am a bit nervous about the drug coverage I should get.

AnCan Barniskis Room · 6:55 PM

abiraterone low dose with food is much cheaper and works just as well. Check GoodRX and it is free and very inexpensive.

AnCan Barniskis Room · 6:57 PM

They should be called Medicare Disavantage plan. They are perfect as long as you don’t use them.

TonyFig · 6:57 PM

There was an AnCan Medicare webinar 11/1/23  https://ancan.org/?s=medicare

Michael McCabe · 7:01 PM

I still can get under plan F because i had Medicare before 2020.

AnCan – rick · 7:02 PM

Sumitovant Pharmaceuticals

AnCan – rick · 7:02 PM

They make Orgovyx

AnCan – rick · 7:11 PM

Janssen is no longer; they’ve been folded back into JnJ

Don Rogers · 7:14 PM

Always ask any insurance agent who wants you on an advantage plan what his commission will be each year.

AnCan Barniskis Room · 7:15 PM

Brian, How many mets were seen?

John A · 7:15 PM

it was 2

Alan Babcock · 7:20 PM

I have another meeting I must go to.

Jeremy · 7:21 PM

Thankyou lads but need to run my son to baseball practice.

Don Rogers · 7:23 PM

Scriptco.com-abiraterone has been $80 per month (120-250 mg) for the last 2 yrs. $140 per years membership fee

Dr. Jeff · 7:23 PM

Scripto could save me a trip to India

Len Sierra · 7:24 PM

Yes, Dr. Jeff, and much safer!

Unknown · 7:25 PM

Costco does low cost Abbi

Steve Roux, MI · 7:27 PM

Thanks Guys! Good stuff in here!

Peter M · 7:58 PM

your place in Venice?

Brian Haack – Eagle, ID · 8:00 PM

Gotta go make some dinner. Thx for another great discussion!

Peter M · 8:03 PM

Good night gents!

AnCan – rick · 8:09 PM

Artera AI test – FDA approved

Julian – Houston · 8:11 PM

https://artera.ai/arteraai-prostate-cancer-test

Steve Roux, MI · 8:24 PM

I gotta run guys – see you next week!