Hi-Risk/Recurrent/Advanced PrCa Video Chat, 1/5/26

HAPPY NEW YEAR to all AnCan’s YouTube viewers.    AnCan is closing out its Annual Fundraising Campaign. If you haven’t donated yet, consider the priceless value we bring . Please donate – especially if you watch our recordings and are not on our Mailchimp list. https://ancan.org/donate/

 

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Johnson and Johnson, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
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HEADSUP – another long session!

Editor’s Pick: Like London buses, topics come in clusters this week – post-surgery recurrence, and monotherapy daro

Topics Discussed

Recurrence 3+ months post-surgery is confusing given medical reports; sitting on hands post 2017 RRP has dire cinsequences; more rapid recurrence requires PSMA scan for younger Gent; low T post treatment raises question whether to force it castrate; oxybutinin manages hot sweats… ARSI makes no difference; Gent considers going from doublet to mono; recently diagnosed denovo Mx man learns he’s 5+4; should he keep one Pluvicto session in reserve?; get a DEXA scan before starting bone stregthener; can a layman read their PSMA scan?; is he ready for mono daro?; should a FAP (Fibroblast Activation Protein Inhibitor) scan be considered?; PSMA needed as PSA rises post IHT; connections between prostate and thyroid cancer; Gent resumes doublet but doesn’t watch PSA – more concerned with duration?!?

Chat
  •  Jim Stewart Reno, NV sent: 7:24 PM

    Family commitment have to sign off…Happy New Year everyone

  • Jim Marshall, Veteran, Alexandria, VA sent: 7:36 PM

    My solution for HOT FLASHES at night has been is even if the room is 55, I have a 12″ fan blowing directly on my face. This is done year round.

  • Paul Schomer sent: 7:50 PM

    I am not, no, Jim

  • RJ Smith (Seattle) sent: 7:50 PM

    NTD–will update next week on how Chemo#3 goes (docetaxel infusion tomorrow, fingers crossed).

  • Thomas Matica sent: 8:07 PM

    Leaving the meeting. Thanks to everyone. Happy New Year.

  • Jim Marshall, Veteran, Alexandria, VA sent: 8:11 PM

    Eric – When you are fatigued, go out and exericse despite the body telling you NOT!!!!

  • S. Datta sent: 8:14 PM

    FAPI (Fibroblast Activation Protein Inhibitor)

  • Larry Schuller – Alaska sent: 8:18 PM

    It is not crazy to want your testosterone back. Intermittent ADT can do that and it is showing promise as a tactic. Bipolar ADT (BAT) is a little crazier, but has some promise also. If you want to go wild, check out Dr Robert Gatenby’s work at Moffit in Florida. Intersesting stuff there.

  • John G. sent: 8:19 PM

  • AnCan – rick sent: 8:20 PM

  • Jeffrey Green sent: 8:23 PM

    Jay Mills Chatanooga- Though I didn’t follow the whole conversation, I heard you say something to the effect of, “I may have mets all over the place, in addition to what shows on PSMA.”

  • Barry Blomquist sent: 8:28 PM

    Have to jump – thanks everyone. Happy New Year

  • Eric Curtis sent: 8:30 PM

    Thanks all – gotta go

  • Jeffrey Green sent: 8:31 PM

    Got to start winding down here. Thanks for all you guys. See you next time.

  • Len sent: 8:34 PM

    Source is AI: Bidirectional Risk: Men diagnosed with thyroid cancer have a roughly 28% to 30% higher risk of later being diagnosed with prostate cancer compared to the general population. Conversely, men with prostate cancer are more likely to be diagnosed with thyroid cancer.

  • Robert sent: 8:35 PM

    Thanks Len. I read the same thing.

  • dan-s sent: 8:49 PM

    Thanks all… another good session. Have to sign off for the evening. Happy New Year…

  • Jay T in MN sent: 8:50 PM

    My hospital was charging the insurance company about $20,000.

  • gary peters sent: 8:50 PM

    I did not know this about thyroid C and PC. Thank you.

  • Jon McPhee Toronto sent: 8:50 PM

    Do a PSA test once a month. Cheap. PSMA/PET is expensive and harder to get.

  • Jay T in MN sent: 8:51 PM

    I “only” had to pay $1000 for my portion of PET PMSA