Hi-Risk/Recurrent/Advanced PCa Video Chat, May 2, 2022

 

Apologies for the bad link to our Elizabeth Jameson Solo Arts Heal interview. The Marsh pulled the recording to edit it – find it now at https://www.youtube.com/watch?v=D4n2a…     Don’t tell Jimmy G or Elliott, but this could be the best yet! She’s an inspiration …

If you’re a Vet and want to be notified when our new Vets Group starts, please let Joe Gallo know at joeg@ancan.org.   Right now we are probably going out to the public on June 23; May will be a practice session.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about this and our other 11 monthly prostate cancer groups at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s Pick: How do we relate to our prostate cancer? And we back-end a VERY young denovo Mx newbie (rd)

Topics Discussed

Denovo oligoMx gent; group’s take on Covid immunizations; darolutamide fatigue … maybe?; exercise fights HT side effects; PSA creeping on IHT; how do you relate to your PCa??; AnCan’s Speaking Freely; brief snippets – true or false?; chemo plateaus PSA around 17; for Locometz seek Lutathera sites; are v. small changes in insignificant PSA a concern; Pluvicto shortages; 43 yrs old w. denovo Mx.

Chat Log

David Muslin (to Everyone): 2:17 PM: https://www.rockymountaincancercenter…

Peter Kafka – Maui (to Organizer(s) Only): 2:18 PM: Dr. Barnett is a general medical oncologist and hemotologist. Schooling at Brown U.

Joe Gallo (to Organizer(s) Only): 2:20 PM: He may do a PSMA PET as he switches to Orgovyx?

Herb (to Organizer(s) Only): 2:21 PM: If his PSA is that low, another scan isn’t going to show anything.

Len Sierra (to Organizer(s) Only): 2:21 PM: I agree with Herb.

Joe Gallo (to Organizer(s) Only): 2:24 PM: Could check as the Lupron wears off and before starting the pill. Only needs a little elevation in PSA

George Rovder Arlington VA (to Everyone): 2:26 PM: https://www.rockymountaincancercenter…

Joe Gallo (to Organizer(s) Only): 2:40 PM: At least a tele-med consult with a GU Medonc Herb (to Everyone): 2:42 PM: https://www.uchealth.org/provider/eli…

Ben Nathanson (to Organizer(s) Only): 2:42 PM: That was a cool blog…

Rick D (to Everyone): 2:43 PM: Kessler https://som.ucdenver.edu/Profiles/Fac…

Len Sierra (to Organizer(s) Only): 2:43 PM: Yes, I used to look forward to emails from him when he had a new blog

Rick D (to Everyone): 2:43 PM: Michael Glode https://www.vailhealth.org/about/doct…

Scott (to Everyone): 2:49 PM: I got J&J and 2 Moderna Boosters

Stan Friedman – Stamford, CT (to Everyone): 2:49 PM: absolutely

Cal Van Zee (to Everyone): 2:51 PM: My oncologist has order Evusheld for me

Pat Martin (to Everyone): 2:53 PM: I only got the vaccine, two doses. No boosters

Rich Jackson (to Everyone): 2:56 PM: I had one shot. No more. Too much government disinformation.

Richard Cramond – Oakton, VA (to Everyone): 2:57 PM: I received Evusheld rather than a second booster.

Frank Fabish – Ohio (to Everyone): 3:02 PM: Got to go guys. Good call.

Rick D (to Everyone): 3:13 PM: Watch Elizabeth Jameson and how she relates to her MS https://www.youtube.com/watch?v=D4n2a…

Herb (to Everyone): 3:32 PM: https://www.hcp.novartis.com/products…

Rick D (to Everyone): 3:37 PM: Lutathera

Jeff Marchi, San Francisco (to Everyone): 3:39 PM: when you sign up with Promise your sample is processed by Color and their genetic counselors talk with you about results. if you have future issues they will work with you.

Thomas Jacobsen (to Everyone): 3:42 PM: Dropping off now. Thanks everyone for your comments. – Tom

MIke Yancey (to Everyone): 3:59 PM: Gotta drop early. Be on next weeks meeting.

Harry (to Everyone): 4:07 PM: good night all

Len Sierra (to Organizer(s) Only): 4:12 PM: Good night, Gents. See you next week.

George Rovder Arlington VA (to Everyone): 4:19 PM: Thank you all. George

David Muslin (to Everyone): 4:20 PM: Great meeting men. Thank you

George A Southiere Jr (to Everyone): 4:20 PM: Great meting guys. Good Luck everyone

Ted Healy- Portland, OR. (to Everyone): 4:22 PM: Thank you All. Good night from PNW land 🙂

Don Kramer (to Everyone): 4:22 PM: Thank you all, very beneficial meeting. Best to you all. dk

Rick D (to Everyone): 4:22 PM: https://www.clinicaltrials.gov/ct2/sh…