Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 24, 2025

Remember — no meeting next week! Next meeting is July 7.

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Picks: Gleason 10 learns his doc stopped testing his PSA; active surveillance patient starts treatment too late. (bn)

Topics Discussed
Reports of Dr. Snuffy Myers’s death are greatly exaggerated, as Paul Schellhammer can confirm; doc silently dropped PSA from Alaska newcomer’s yearly blood test in 2011 — now he’s Gleason 10; active surveillance patient’s PSA passes 4 without treatment and it’s 435 now; “Orgovyx? No, you don’t want that,” he’s told; PSA falls from double-digits to undetectible in two months with help from brachy, IMRT, and hormone therapy; a lot of anemia symptoms, but his blood work doesn’t show it — might it be something else?; to see Dr. Antonarakis, he needs to be sicker; hints of a trial that targets foamy gland prostate cancer; NCCN guidelines say added abi is an option for very high risk patients getting ADT with primary radiation; newcomer is 4+3 but he’s got ductal — should he be with us or Low/Intermediate?; no meeting next week — see you July 7.

Chat Log

John A · 6:48 PM
Stage IIIc

Karl Sullivan · 6:58 PM
unable to get audio

AnCan Barniskis Room · 7:00 PM
Karl – call 877 582 7011 for suppport. Have you selcte teh right speaker in the Settings?

AnCan Barniskis Room · 7:16 PM
Dr. John Antonucci dr.john@ancan.org

Karl Sullivan · 7:18 PM
Thank you. I have audio but NOW, not my camera. This IS my first sign in. Very impressed with the conversation.

Ben Nathanson · 7:23 PM
Going off camera a sec, still listening

dan, alexandria · 7:39 PM
👍

AnCan Barniskis Room · 7:41 PM
Ember device https://embrlabs.com/

dan, alexandria · 7:42 PM
Another good meeting, guys. Thanks…. I have to leave.

Gary V Portland, Oregon · 7:53 PM
Good evening gents thanks for all the information…

Steve Roux, North Michigan · 7:57 PM
Have a great week and weekend guys! GREAT meeting once again!

Richard Tolbert · 8:00 PM
Ben, thanks for moderating. Great meeting!

Thomas M · 8:26 PM
Got to bounce, gentlemen. Thanks for a great meeting.