Hi-Risk/Recurrent/Advanced PCa Video Chat, July 17, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.
NOTE: August Schedule Change for Tuesday meetings only – Tuesday, Aug 1 and 15
UPCOMING WEBINAR: What’s Inside the Black Box? -How & Why PCa Genomic Tests Work Register at https://tinyurl.com/ancanpcagenwebinar
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Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/ Veterans Healthcare… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/
Editor’s Pick: Worth waiting until the end to hear our sonorous tones on the Eastern Front relate liver marker issues during Pluvicto… but maybe down to gabapentin?? (rd)
Topics Discussed
New sponsor Blue Earth and Posluma; younger man (55) reports successful treatment; denovo Mx gent needs GU med onc; drug financial subsidies help- one of our gents; hypertension and abiraterone; neurological symptoms; lodging suggestions during treatment; cancer returns to prostate bed; 2nd series of Pluvicto treatments; what to do when PSA makes tiny move off insignificant; ALT & AST swing during Pluvicto – could it be an unrelated drug?; gabapentin issues
Chat Log
AnCan – rick sent · 5:34 PM Dr. Andrea Harzstark
AnCan – rick sent · 5:38 PM rd@ancan.org
Jim Marshall, Alexandria, VA sent · 5:59 PM Zytiga is also called Abiraterone It is generic.
Jim Marshall, Alexandria, VA sent · 6:03 PM Genitourinary Medical Oncologist
AnCan – rick sent · 6:13 PM Elisabeth Heath MD https://www.karmanos.org/karmanos/karmanos-physician-directory/heath-elisabeth-8225
AnCan – rick sent · 6:14 PM Karmanos
Rich Jackson sent · 6:19 PM Zytiga is also called Abiraterone It is generic.
Julian – Houston sent · 6:24 PM https://ancan.org/
sent · 6:29 PM No I am not a veteran.
Julian – Houston sent · 6:30 PM Dr. E is awesome!!!
AnCan – rick sent · 6:39 PM Who in Houston would talk to me about where to stay when going to MD Anderson. Can you say?
Matt Krieger sent · 6:41 PM What is pluvecto (spelling?)?
Peter Kafka – Maui sent · 6:41 PM Most centers have a sheet with places to stay that work with the hospital. Call your doc’s receptionist
AnCan – rick sent · 6:42 PM Pluvicto
Joe Gallo – Bucks Cty PA sent · 6:45 PM One of our AS moderators Hugh Idstein is a Houston resident if you want any help beyond the hospital list.
Richard Tolbert sent · 6:47 PM I live in the Houston area and can provide some hotel options near M.D. Anderson. (contact rd@ancan.org for Richard’s email)
AnCan – rick sent · 6:48 PM Another question to me from John Babb: As a disabled veteran which base or post would the best to try for housing while I am at MD Anderson?
Matt Krieger sent · 6:49 PM I nap every day at 55 if I can find a way!!
Don Needham – Bend, Or sent · 6:50 PM I nap every day after my walk and weights.
Julian – Houston sent · 6:50 PM Naps are good – I try to take one every mid-afternoon.
Matt Krieger sent · 6:58 PM It seems like everyone here is having PSA tests that have a sensitivity down to like .01, whereas the Kaiser tests I get just say ‘less than .06’ if it’s below that level. Should I be pushing for a more sensitive test, does that have value?
Peter Kafka – Maui sent · 7:00 PM You can try asking Kaiser about ultra sensitive PSA testing. But usually they only use it for guys who have had a prostatectomy as primary rather than radiation,
AnCan – rick sent · 7:01 PM Matt – My suggestion would be not to worry. You still have a prostate. I agree with Peter – not needed if you have a prostate.
Matt Krieger sent · 7:01 PM Got it, makes sense and thanks much —
Jim Marshall, Alexandria, VA sent · 7:02 PM Am using Kaiser and I get the Ultra-Sensitive every month for last year Mid Atlantic Kaiser
Frank Fabish Columbus OH sent · 7:06 PM Got to guys. Thanks guys. Stay strong.
Richard Tolbert sent · 7:07 PM Thanks everyone. Have a great week!
Matt Krieger sent · 7:12 PM I heard it too