‘BEING’ YOUR OWN BEST ADVOCATE
A few very important words from one of senior moderators, Peter Kafka! (rd)
We often stress the importance of “being one’s own best advocate” at our online AnCan support gatherings.  After several recent personal experiences and hearing about others I thought it might be appropriate to add another word to this maxim, and that would be “vigilant”.

All too often I have noticed that I can get complacent when dealing with routine medical appointments and assume that the professionals I am working with are focused and have my best interests front and center.  But like me, my medical team are human and can make mistakes and assumptions that are wrong.

Earlier this week I was at a lab I had been to many times before to get my monthly blood tests.  The tech was new, but I had filled out the orders online when making my appointment and had my doctor’s standing order with me.  I had my sleeve rolled up and the tech was getting ready to unwrap the needle to jab me when I noticed that she only had one test tube out for sampling.  I questioned this because I usually fill three or four.  She said; “We’re just doing hemoglobin, right?”  “No!” I replied, pulling out my previous month’s results from the notebook on my lap. “We’re doing CBC’s, Hepatic, PSA, Testosterone and more.”  She retreated into the back room to consult with her supervisor and both reappeared with an apology and proceeded with the whole enchilada.

I was reminded of another occasion when I was in the hospital for a day or two after surgery from a broken femur.  Looking up from my hospital bed I saw the notation on the white board that I was listed as a diabetic.  No wonder my meal was so bland.  Turned out that just because I was taking Metformin as a pharmaceutical for my prostate cancer their assumption was that I was diabetic.  I had to straighten out their confusion.

Over the years I have learned that I need to be on “high alert” when undergoing any medical procedure, routine or otherwise.  Mistakes are all too easy to make.  Some might be inconsequential, but others can have serious implications.  In this time when getting inoculations for covid-19, seasonal flu, shingles or other shots down the street at the local pharmacy it is doubly important to stay vigilant.  Yes, these professionals are all too careful to make sure that our names and date of birth are correct on the orders and labels, but what about the injected drug or prescription?  I bet that many of us have stories to tell.

So, keep your eyes open, stay vigilant, and ask questions.  “Being one’s own best advocate” requires us to step up and get involved so that we understand and know the twists and curves of our medical journey even if it seems to be uncharted territory. It is our journey after all.