Hi-Risk/Recurrent/Advanced PrCa Video Chat, 4/6/26

by | Apr 7, 2026 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, mCRPC, mHSPC, Prostate Cancer, Recorded Groups, Uncategorized

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 4/6/26

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Dr. Kwon… either overtreating or undertreating! And… Crestor & Nubeqa don’t mix!

Topics Discussed

Repeat recurrences since 2019 may be down to shorter periods of HT; Gent pushes for Axumin and gets it; should he debulk?; add back E2; is Kwon overtreating with triplet? – get thee to a GU med onc; stable but needs a new GU med onc – or does he?; HT is doing exactly what it should; doing well on mono daro but needs help with back pain; rosuvastatin doesn’t play well with daro; numbers good after stopping HT but fatigue/weakness persists; RT requires self catheterizing; fatigue/weakness could be recent covid; experience with PCPEP

Chat

  • Alfredo in Wimberley sent: 5:24 PM

    UW-OncoPlex™ is a multiplexed mutation assay for tumor tissue that assesses mutations >400 genes related to cancer treatment, prognosis, or diagnosis (listed below). UW-OncoPlex™ is intended for solid tumors.

  • AnCan – Rick sent: 5:40 PM

    https://clinicaltrials.gov/study/NCT04493853

  • Alfredo in Wimberley sent: 5:52 PM

    i have to leave in 30 mins

  • David D Seattle sent: 6:02 PM

    Acupuncture is working fairly well for me in reducing hot flashes and sleep disruption

  • Steve L sent: 6:03 PM

    I have pursued low dose estradiol add back but is was not approved by my Doc

  • AnCan – Rick sent: 6:21 PM

    Atish Choudhury Dana Farber http://www.dana-farber.org/find-a-doctor/atish-d-choudhury/

    Russell Szmulewitz U of Chicago https://www.uchicagomedicine.org/find-a-physician/physician/russell-szmulewitz

    Alan Bryce https://www.cityofhope.org/alan-bryce

  • Julian-Houston sent: 6:35 PM

    Sorry Fellas, I need to leave early. I will pose my question next week. Thanks!

  • “Thomas” M Vancouver,WA sent: 6:45 PM

    Pregabalin (Lyrica)

  • Jim Marshall, Vet Support Grp. Moderator sent: 6:48 PM

    Might want to look at PRAVASTATIN as an alternative. I could not handle Crestor or Lipitor. Jim Marshall

  • Bruce Schrimpf sent: 6:52 PM

    The worst thing about a colonoscopy is the prep not the procedure itself. During the procedure you’re in La-la Land!

  • Jeff Marchi – San Francisco sent: 6:53 PM

    exactly

  • Bruce Schrimpf sent: 6:54 PM

    Indeed!

  • Jeff Marchi – San Francisco sent: 6:55 PM

    👍

  • david opp sent: 6:56 PM

    I am going to call it a night, I will try for next Tuesday.

  • Peter M sent: 7:05 PM

    Great meeting! Good night!

  • “Thomas” M Vancouver,WA sent: 7:07 PM

    Excuse me, gents. Leaving the meeting. Thanks to all.

  • Pierre D., Olean NY sent: 7:14 PM

    I joined PC-PEP a week ago and find it helpful.

  • Bruce Schrimpf sent: 7:15 PM

    I had COVID during the time I was on Lupron. I was retired so I took noon time naps. I believe in the less medication the better! It makes me feel better and improves my bank account!

  • Joseph (Sean) Siry – Laguna Woods, CA. sent: 7:17 PM

    Have a healthy week

  • Bruce Schrimpf sent: 7:18 PM

    Always good seeing and hearing all of you. Good night (Guten Nacht Auf Deutsch). BDS