Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

If you missed our first 2024 webinar with GU med onc Dr. Oliver Sartor and nuclear medicine pioneer Dr. Phillip H. Kuo — “Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!”watch it at https://ancan.org/webinar-radionuclide-diagnostics-theranostics-theory-and-clinical-practice-meet

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/ Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: A penile prosthesis, and a lot of new hips. (bn)

Topics Discussed

Back on ADT, and now clobbered by fatigue — we suspect enzalutamide; exercise when walking’s too tough; he’s considering Pluvicto — but where’s the concordance scan?; FDG PET at low PSA?; when scanned, get the image CDs; new medonc OK’s ADT drug holiday at two years; more good reports on Dr. Bilusic; when dropping abi, taper prednisone cautiously; penile prosthesis surgery a success; insurance for yearly DEXA scans; urologists who don’t counsel on sexual dysfunction; making radiation a day at the beach; getting the word out on AnCan; hip issues and radiation; concerned about blood counts; shortness of breath and Flomax; drop abi, keep Lupron — or vice versa?; Peter K’s next move.

Chat Log

Alan Babcock · 7:21 PM
I have another meeting I have to attend. Hope to see everyone on Thursday.

Frank Fabish Columbus OH · 7:29 PM
has any read any information about the test trial of Anvirzel?

AnCan – rick · 7:35 PM
I know nothing about Anvirzel – but hopefully the Brains Trust can follow up

Frank Fabish Columbus OH · 7:37 PM
right. I think it is in Phase 1. not sure about PC trial. Hope to find out more info.

Julian – Houston · 7:45 PM
Phase 1 trial of Anvirzel™ in patients with refractory solid tumors, https://link.springer.com/article/10.1007/s10637-006-7772-x

Frank Fabish Columbus OH · 7:57 PM
TY

Len Sierra · 8:02 PM
For Frank Fabish: Anvirzel is a brand name for an aqueous extract of the plant Nerium oleander. Anvirzel contains two toxic cardiac glycosides, oleandrin and oleandrigenin. oleander is likely unsafe to take by mouth. It can cause a burning sensation in the mouth, nausea, vomiting, diarrhea, weakness, headache, stomach pain, serious heart problems, and many other side effects. Taking the oleander leaf, oleander leaf tea, or oleander seeds has led to deadly poisoning.

Frank Fabish Columbus OH · 8:03 PM
so I read about the extract

Frank Fabish Columbus OH · 8:14 PM
a friend of mine who had stage 4 metastatic PC with lesions on the brain. a brain bleed killed him Sunday. he was approved for this drug.

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 5, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 5, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

If you missed our first 2024 webinar with GU med onc Dr. Oliver Sartor and nuclear medicine pioneer Dr. Phillip H. Kuo — “Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!”watch it at https://ancan.org/webinar-radionuclide-diagnostics-theranostics-theory-and-clinical-practice-meet/

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/ Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Chemo doesn’t curb progression – what’s next? (rd)

Topics Discussed

Are eye issues related to hormone therapy?; Orgovyx AND Lupron vs Orgovyx OR Lupron?; Pluvicto may be in his future; time for PSMA scan and possible end to 6 yrs HT free; exercise guidance; awaiting PSA; next steps post chemo; monotherapy darolutamide; somatic testing; bulging disc gets in the way of exercise

Chat Log

  • Len Sierra

    sent: 6:23 PM

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9403378/ Potential Ophthalmological Side Effects Induced by Anti-Neoplastic Regimens for the Treatment of Genitourinary Cancers: A Review

  • Jerry Grimes, Brighton, MI

    sent: 6:57 PM

    Good evening all, I have to run. All the best to all of you!

  • Bill Lee, MI

    sent: 7:03 PM

  • AnCan – rick

    sent: 7:06 PM

  • Darryl Rohrer

    sent: 7:38 PM

    thank you Rick and others. going to sign off; quite tired and uncomfortable.

  • John A

    sent: 7:38 PM

    Goodnight Darryl

  •  

    sent: 7:45 PM

    Free germline test https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

  • Frank Fabish Columbus OH

    sent: 7:59 PM

    got to go. Thanks for input. Big week next week with PSMA scan.

  • Len Sierra

    sent: 8:00 PM

    Treat Your Own Back by Robin MacKenzie

  • Len Sierra

    sent: 8:03 PM

    You can buy the Treat Your Own Back book for as little as $2.99 used. Google it.

  • Thomas Matica

    sent: 8:04 PM

    It’s in our library in Vancouver, WA.

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 15, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 15, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

Welcome AnCan’s first 2024 webinar with two blockbuster headliners — GU med onc Dr. Oliver Sartor and nuclear medicine pioneer Dr. Phillip H. Kuo — “Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!” Register now at https://tinyurl.com/radionuclide – free as always. Two globally recognized experts introduce us to radionuclide scans and treatment, and help us understand how best to coordinate our care team.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/          Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Four new men give us plenty to talk about. (bn)

Topics Discussed

With “innumerable” metastases, he braces for chemotherapy; urologist blames the patient for ADT mood swings, and also fails to prescribe second-line drug; focal therapy might be right for post-radiation recurrence; PSA nearly 50 but biopsy claims he’s Gleason 6 — prostatectomy proves otherwise; colon cancer’s genetic tie-in with prostate cancer; drug holiday’s an option, but keep calm when PSA creeps up; “I’ve been to the four corners of the United States” seeing doctors — Dr. E is next; don’t put off somatic testing, and consider abiraterone monotherapy; let precision medicine target your BRCA before considering a clinical trial; vomiting worsens with with each Pluvicto round — seek palliative care!; wobbly testosterone recovery; even without testosterone, getting stronger through exercise.

Chat Log

Peter Kafka – Maui · 8:23 PM
somatic genetic testing

AnCan – rick · 8:28 PM
Men Speaking Freely https://ancan.org/men-speaking-freely/ Thursday, 8.00 pm Eastern in this room. Just drop-in

AnCan – rick · 8:37 PM
Genitourinary Medical Oncologist

Peter Kafka – Maui · 8:39 PM
peterk@ancan.org

AnCan – rick · 8:46 PM
Channing Paller https://www.hopkinsmedicine.org/profiles/results/directory/profile/3138167/channing-paller

AnCan – rick · 8:50 PM
PROMISE https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

AnCan – rick · 8:54 PM
Steven don’t forget Men Speaking Freely on Thursday

dennis NJ · 9:10 PM
Thank you everyone

AnCan – rick · 9:17 PM
Elisabeth Heath https://www.karmanos.org/karmanos/karmanos-physician-directory/heath-elisabeth-8225

Frank Fabish Columbus OH · 9:39 PM
Thanks everyone. got to go.

Gary – New Jersey · 9:41 PM
Thank you everyone for the discussion and your suggestions. Have to go now.

“Thomas” Matica WA · 9:50 PM
FTG Scan??? Explain, please. FTM

Len Sierra · 9:50 PM
FDG scan

Len Sierra · 9:51 PM
Fluorodeoxyglucose

“Thomas” Matica WA · 9:52 PM
Thanks, Len. I’ll look it up.

Len Sierra · 9:54 PM
HK2 : Human kallikrein-related peptidase 2 (hK2) is a tumor-associated member of the kallikrein family that shares significant homology to prostate-specific antigen and is minimally expressed in normal non-prostate tissues.

Jeff betz · 10:02 PM
Gotta go guys thank you!

AnCan – rick · 10:08 PM
https://ancan.org/your-dental-health/ Dental Posts

Len Sierra · 10:12 PM
Phase 2 study suggests that Abi monotherapy may be as effective as Abi + ADT. Published in journal Nature. https://www.nature.com/articles/s41391-022-00533-6

Steven Roberts · 10:13 PM
ok, fellas I got to drop….talk to you all next week and thanks

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 9, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 9, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

Welcome AnCan’s first 2024 webinar with two blockbuster headliners — GU med onc Dr. Oliver Sartor and nuclear medicine pioneer Dr. Phillip H. Kuo — “Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!” Register now at https://tinyurl.com/radionuclide – free as always. Two globally recognized experts introduce us to radionuclide scans and treatment, and help us understand how best to coordinate our care team.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/          Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Three things that are slow to change — liver enzymes, testosterone, and hormone sensitivity. (bn)

Topics Discussed

Skip the Lupron and do 2nd-line monotherapy off the bat?; dealing with ADT via antidepressants; he’s looking down the road at Pluvicto; weighing two clinical trials — or none; great first encounter with Dr. Heath; hey, don’t you want to know the Gleason score?; what made his cancer mutations jump?; hold off Keytruda if there’s no MSI?; liver tests slow to recover after abi; stay calm restarting ADT after a drug holiday; back chasing ZZZs; a few zaps with X-rays, or many with protons?; sciatica probably wasn’t the Lupron shot; how quick a rebound after Lupron?; an unexpected test (CEA) from Dr. E; radiation cystitis 8 years out

Chat Log

Steve Roux, MI · 6:13 PM
I’m glad to hear that because I ordered that same one today!

· 6:49 PM
John.ayo@gmail.com

tom · 6:50 PM
Tom rockradio@mac.com

AnCan – rick · 6:52 PM

Home

Pat Martin · 7:13 PM
Thanks much for hearing me. Probably be back next week.

Stan Friedman · 7:26 PM
https://www.medpagetoday.com/hematologyoncology/prostatecancer/108193

Stan Friedman · 7:26 PM
Interesting article just published on MedPage Today.

Steve Roux, MI · 7:33 PM
Thanks Stan

Stan Friedman · 7:42 PM
Sorry, need to leave. Good night and see you next week.

Mark Baldridge – WA · 8:12 PM
Thank you Len, Dr. John and Rick!

Herb Courtney, Oak View, CA · 8:12 PM
Great session. Gotta go cook dinner

· 8:13 PM
Thank you guys! Great group

Al L · 8:13 PM
Thank you Len!!

Julian – Houston · 8:14 PM
Thanks Everyone!

GARY Z · 8:18 PM
Thanks to all!

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 13, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 4, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 4, 2023

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

Recent Webinar Recording & Sides – Let’s talk Medicare 2024! 

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

Buy AnCan Holiday swag at https://ancan.org/shop/ …. T-shirts and sweatshirts!

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/          Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Take a trip with ketamine!! + lotsa useful tips this week. (rd)

Topics Discussed

Only ONE QB, and make sure they are the best choice; out-of-touch rad onc; Keytruda fails – moving on to Pluvicto; ketamine provides remarkable insight BUT don’t overdo it; Mettle Health & BJ Miller; community med onc doesn’t provide standard of care; is a PCa collective voice feasible?… old hands think not!; name the doc you want to see via your provider portal; renal cysts are rarely malignant; use FMI’s mobile phlebotomist to save time; how YOU can load images to MyChart; what to do about ADT fatigue… possibly over exercising??; is PSA too low for liquid biopsy analysis when you have known mets?; hotel deals available for cancer treatment.

Chat Log

  • AnCan – ricksent · 6:33 PM
    ketamine therapy for anxiety
  • sent · 6:34 PM
    Ketamine is also used for depression
  • AnCan – ricksent · 6:39 PM
    Mettle Health Dr. BJ Miller https://mettlehealth.com
  • AnCan – ricksent · 6:42 PM
    dr.bob@ancan.org
  • AnCan – ricksent · 6:56 PM
  • Jerry Grimes – Brighton, MIsent · 6:59 PM
    Thanks all, gotta run to another meeting.
  • Len Sierrasent · 6:59 PM
    Anti androgens: abiraterone, enzalutamide, apalutamide, darolutamide
  • Bob Gsent · 7:02 PM
    Have to go now. I’ll be back a lot sooner. Have a good night.
  • Jim Marshall, Alexandria, VAsent · 7:10 PM
    DOD’s Center for Prostate Disease Research gets $110M per year for Prostate Research. They hire contractors to analyze the proposals and do not go outside their own sphere. Jim Marshall
  • AnCan – ricksent · 7:18 PM
  • Julian – Houstonsent · 7:30 PM
    brings back memories!
  • TonyFigsent · 7:40 PM
    Foundation Medicine

    https://www.foundationmedicine.com/contact +1 (888) 988-3639

  • Julian – Houstonsent · 7:43 PM
    Phone +1 (888) 988-3639 Email: client.services@foundationmedicine.com Online Ordering Portal home.foundationmedicine.com/login Fax +1 (617) 418-2290
  • Frank Fabish Columbus OHsent · 7:50 PM
    Got to go. Thanks guys. see you next week,
  • Peter Kafka – Mauisent · 7:51 PM
    I am resigned to the belief that I might have to settle for the “Special Olympics” next year.
  • Jim Marshall, Alexandria, VAsent · 7:54 PM
    Am in my 70s. There is old age to consider. The mind may be 55 but my body is 79. Old age is a factor. So there is a conflict. Jim
  • Fred Maticasent · 8:04 PM
    Thank you all for your advice and encouragement. Good Night.

    Fred Thomas Matica

  • AnCan – ricksent · 8:11 PM
    Extended Stay Hotels