Webinar: Cancer, Chronic Illness, and Intimacy

Webinar: Cancer, Chronic Illness, and Intimacy

Webinar: Cancer, Chronic Illness, and Intimacy

Want to make 2022 the best year of your sex life? We’ve got the webinar for you in “Cancer, Chronic Illness, and Intimacy”.

From pleasure with a partner, or just riding solo, nothing is off limits in this webinar featuring sexual medicine rockstar , Dr. Rachel Rubin.

Featuring a panel of patients Dion (lupus), Jimmy (prostate cancer), Kim (multiple sclerosis), and Michael (testicular cancer), and questions from the audience, you’re sure to find answers to your own questions.

Watch here:

 

To view the slides from this webinar, click here.

And if you loved this, there’s more of Dr. Rubin athttps://ancan.org/webinar-multiple-sclerosis-and-urological-issues/

For information on our peer-led video chat VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for any of our groups, visit our Contact Us page.

John Antonucci’s Take on Hospice And Palliative Care

John Antonucci’s Take on Hospice And Palliative Care

The AnCan team thanks Dr. John Antonucci for submitting his opinions on hospice and palliative care in end-of-life considerations. Dr. John is a retired clinical, academic and research psychiatrist. His most recent gig before hanging up the white coat was at the VA providing care in the addiction clinics. He is also a peer in our High Risk/Recurrent/Advanced Prostate Cancer Group.

These opinions come from Chapter 11 of “Dynamic Duo: Hospice and Palliative Care” in BJ Miller MD and Shoshana Berger’s A Beginner’s Guide to the End: Practical Advice for Living Life and Facing Death

Our discussion group (High Risk/Advance Prostate Cancer) hasn’t talked much about end-of-life care or making decisions about things like resuscitation status, stopping treatment or hospice care. But the topic has come up lately, and since we have Dr. BJ Miller, co-author of a relevant book and a palliative care physician, on the AnCan Advisory Board, it is appropriate to take a first or second look at his chapter.

The authors start by defining these often-confused terms: Hospice provides end-of-life care with the goal of comfort rather than trying to cure a disease.  It is actually a sub-section of palliative care. Palliative care is treatments added-on to regular medical care, at any stage of serious illness, and is intended to improve the quality of our physical, spiritual and emotional lives.

The authors explain what qualifies a patient for Hospice care. Anyone who has a terminal illness and is  ready to stop treatment aimed at curing it, and who is expected to live 6 months or less, may qualify.  A multidisciplinary team is then assigned and the treatments are brought to us, in our own homes if desired. (There are also residential hospices but these are not as common as often assumed.)  Health insurance policies, including Medicare, cover Hospice. There are useful tips in the book on finding and choosing Hospice providers, and a section for when the hospice is not performing well. The authors encourage us to not to wait until our last few weeks to get this process going.

Palliative care is now its own medical specialty. Again, the idea is to make our lives nicer by helping to reduce a wide variety of suffering, including pain, anxiety, drug side effects, depression, fear, nausea, and spiritual pain. Most of this type of care is delivered in the hospital or outpatient clinic. Palliative care is integrated into our existing treatment plan, rather than being comprehensive like Hospice. Health insurance will generally cover these services although it might leave us with co-pays and deductibles. And again, the authors urge us to start early; there is no requirement that we be close to the end, only that we have a serious illness.

The overall effect on me of reading this chapter was not only education but also reassurance. Not only reassurance that we deserve comfort and don’t have to hide our suffering, but also that Someone will be there to care about our suffering and try to help.  Quite comforting, I believe.

Reference:

Miller, B.J. & Berger, S., A Beginner’s Guide to the End: Practical Advice for Living Life and Facing Death, 2019,  Simon & Shuster, New York, Kindle edition

Solo Arts Heal with Lisa Sniderman, AKA Aoede

Solo Arts Heal with Lisa Sniderman, AKA Aoede

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On January 26, we started our 2022 season of Solo Arts Heal with Lisa Sniderman, AKA Aoede!

From surviving to thriving to grieving… Award-winning artist and playwright Aoede shared stories, music and films illustrated how creating music and art has been her lifeline during her 14-year journey battling a rare chronic illness.

Watch here:

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.

Solo Arts Heal with Alex Kaplan

Solo Arts Heal with Alex Kaplan

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On December 22nd, we closed out our 2021 season of Solo Arts Heal with Alex Kaplan! (and on that note, we have even more fun to come in 2022!)

Alex, a Philadelphia native and LA transplant, was trained as an actor in the University of Miami’s conservatory and transitioned to a career behind the camera as a producer and director for the past decade.

 

Today, Alex is the Co-founding Executive Director & Chief Vision Officer at Of Substance (OfSubstance.org), an innovative non-profit revolutionizing addiction and mental health treatment, education, and support, using premium entertaining short films as a tool for deeper healing, growth, and transformation.

 

After surviving his own battles with addiction, Alex recognized the power of story as a tool in his recovery and found an exciting way to use his filmmaking experience to help others on their paths of overcoming struggles of shame & isolation. The biggest thing he learned on his journey is that his issue was far less about using substances than it was about WHY he used substances; It was about shame, isolation, a fear of not belonging, and a fear of not being good enough.

 

Alex and his co-founder Brian Gallagher built Of Substance to help us all recognize that we’re not alone in these feelings and to positively transform people’s relationships with themselves, others, and their beliefs in what’s possible.

 

“Our film “Trapped” is not simply for those of us who struggle with substance use, it’s for all of us who feel trapped sometimes. Hopefully Trapped will help us all better empathize with one another, recognizing and relating to the feeling and experience. This film helped my mother stop asking me “Why can’t you stop drinking?” and finally move our conversation forward to “I see you, I love you, I’m with you.” Our hopes are that this film can do that for you and your loved ones as well.” – Alex

 

Watch the performance here:

 

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.

Solo Arts Heal with Nire Nah

Solo Arts Heal with Nire Nah

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On November 24th, we were so thrilled to host Nire Nah!

Nire is a singer-songwriter, visual artist, mental health advocate, and human of substance (who happens to also be substance-free). Since 2014, she has been living, learning, creating, and performing in Chicago, Illinois. Her work spans multiple disciplines and mediums, from painting to performance to psychological upkeep. Guided by the principles of rigorous honesty and kind curiosity, Nire aims to invite audiences into a space where they are safe to feel their feelings without restraint. She strives to make people laugh, cry, and think – preferably at the same time.

As a creator in recovery, Nire’s work is tightly intertwined with her own healing and personal growth. Her debut album Coeur Age (2018) is a rollercoaster of story-songs, anthems, tantrums, lullabies, and laments, mapping the wilderness of active addiction and mental illness from the inside out. Her latest release Everything Stands Back Up (2020) balances the scales with a series of earnest reflections on the grueling but grounding work of long-term emotion regulation and mental maintenance. In these songs, Nire explores the nonlinearity of recovery and emphasizes the important connections between individual and communal healing.

Nire shared songs and an animated video from her latest album, Everything Stands Back Up.

Watch the show here:

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.