AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Switching hormone therapy drugs and for how long is the flavor of the day.
Topics Discussed
AnCan’s poster at GU ASCO26 https://ancan.org/ancan-gu-asco26-survivorship-poster/; doing well on HT, but for how much longer; real world evidence (RWE) lawsuit between Bayer and JnJ ARSI drugs; appointment set with GU MO at Fox Chase; confusion over NCI trial eligibility; stable after 24 months of HT – should he change it up?; triplet to doublet – can he switch HT drugs; abi and cost; HCP decisions to switch drugs; best Sibley GU MO for BRCA2; Siemens Quadrant may give better PSMA images at bladder neck; NEWBIE – climbing PSA on recurrence but nothing seen
Rick – do you have a verifiable mail or phone address for Dr. Epstein so I can request a second opinion of a Fox Chase biopsy? I’ve failed on three attempts.
DISCLAIMER: AnCan does not endorse Superpower or any of its products. All patients should discuss with their healthcare provider before using any of their products or any of the tests or advice in the article.
In another of the seemingly endless organizations offering premium health services, Superpower, founded in 2023, provides a fairly straightforward overview of the myriad tests and biomarkers available to Prostate Cancer patients (A Clear Guide to PCa Biomarkers). Seasoned AnCaners may find little new in here, especially those that attend or review many of the recent seminars/webcasts, but newcomers or those needing a refresher may find it helpful for further research or equipping you to be your own best advocate. The article hits many of the main tests with which we are all familiar, as well as some of the urine biomarkers (PCA3, Select MDx, ExoDX), without specifically endorsing any of them. It does touch on MRIs, but only multi-parametric, not bi-parametric MRIs, nor does it get into the trans-rectal versus trans-perineal debate. Be forewarned, there is information with which not everyone will agree (shocking, I know), but it is still a useful, albeit somewhat rudimentary tool.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 23, 2025
UPCOMING PRESENTATION
Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern!
“Interpreting Prostate Needle Biopsies in Today’s World”
Bx explained from early AS to advanced Pr Ca inc. AI – with lotsa time for Q&A.
Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14.
Sign up at https://ancan.org/contact-us/
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Hiding in plain sight, a new tumor docs failed to mention. (bn)
Topics Discussed
Upcoming AnCan group; newly diagnosed with a spot on his spine — consider zapping both prostate and tumor; what’s happening with Medicare and telehealth?; a Pluvicto update after his first treatment; after focal therapy, docs kept quiet about a new tumor, and it may now be escaping the prostate; lots of metastasis, PSA in the thousands, but he got doublet therapy, not triplet; a 0.04 PSA rise isn’t worrisome; he’s offered Clomid to raise testosterone (why not just take testosterone?); massive sweating spells that far exceed hot flashes; prior mastectomy complicates planned radiation for sore nipples; thanks to John Maxwell for giving AnCan the proceeds of his poetry collection during September; great experience from Dr. Guercio in Rochester; ready to shift his care to a top NYC hospital.
Chat Log
Ben Nathanson · 6:16 PM
NY Times: In Chicago, a New Approach to Gay and Bisexual Men With Prostate Cancer https://www.nytimes.com/2021/12/07/health/prostate-gay-sex-cancer.html?unlocked_article_code=1.oE8.Ij-J.lRa7OMYAXY5h&smid=url-share Allen Edel: Gay men should never have a prostatectomy https://www.prostatecancer.news/2021/
AnCan – rick · 6:29 PM
Kevin courtney is the GU med onc
AnCan – rick · 6:29 PM
at UTSW that I ws truying to recall.
Alfredo in Houston · 6:31 PM
https://profiles.utsouthwestern.edu/profile/131906/kevin-courtney.html
Alfredo in Houston · 6:32 PM
https://www.houstonmethodist.org/doctor/eleni-efstathiou/
AnCan – rick · 6:39 PM
PROMISE Trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Alfredo in Houston · 7:03 PM
https://www.uofmhealth.org/profile/2980/todd-matthew-morgan-md
AnCan – rick · 7:27 PM
Interpreting Prostate Needle Biopsies in Today’s World” with global expert Dr.Jonathan Epstein , Advanced Uropathology Register at https://ow.ly/PpoX50WVsJ4 – free.
Jim Marshall, Veteran, Alexandria, VA · 7:28 PM
https://ancan.us14.list-manage.com/track/click?u=ece3f3da90f82cb974b407396&id=9b15081950&e=7e455a27bb For Veterans Speaking Freely. Jim
Don Rogers · 8:08 PM
anastrozole 1 mg twice a week
AnCan – rick · 8:23 PM
casodex
Frank Ciambra · 8:35 PM
i just did my 7th pluvicto last wednesday i am recovering well and ave atrip planned to see my son and his family this weekend and will be jammig music tommorow night
Frank Ciambra · 8:38 PM
im going to see my son who recently retirrd from the teams in va beach mygrandsons have bb tornaments this weekend
AnCan – rick · 8:42 PM
Dr. McHugh, Dr. Rathkopf, Dr. Autio
AnCan – rick · 8:44 PM
geenitourinary (GU) medical oncologist
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 15, 2025
UPCOMING PRESENTATION…Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/
Hear John Maxwell on Solo Arts Heal https://youtu.be/UQuMUm6HHqU and buy Hammering Nails for AnCan’s fundraiser https://www.amazon.com/Hammering-Nails-Poems-strange-topics/dp/B0BNJHYVG3?mc_cid=8e4adc6969&mc_eid=838454d636
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine. Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Whether old or young, consider carefully before opting for surgery with hi-risk disease (rd)
Topics Discussed
Older gent who did surgery now faces MDT, salvage RT and HT; contrast an under 50 gent who did surgery and lso needs salvage RT; and another 4+5 younger man debating RP; chemo resulted in pleural effusion damage; hearing loss and abi??; Novartis re-ups with 12 mos addtional Pluvicto; PSMA shows slight increase in tumor size and L3 met for our Mod; something else cud be going on beyond the prostate cancer
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 9, 2025
UPCOMING PRESENTATIONS
MRI 2nd Opinions….. ProstateID solves the challenge It’s challenging. to get MRI 2nd Opinions… ProstateID solves it. Affordable & AI-validated Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Developer, Randall Jones, PhD explains the technology and its uses.
Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Ice hockey Newbie wants to consider intermittent hormone therapyrd)
Topics Discussed
Does an AUS interfree with RT?; hockey player want to consider IHT; urinary issues post RT; anti-morphing strategies; PSMA helps find possible salivary tumor; constipation pain from opiates; blood transfusion helps; osteopenia may warrant Prolia; is sleep apnea the cause of cachexic symptoms?; is cycling OK during RT?; mono Nubeqa working well; B12 and magnesiun for restless leg; John Maxwell on Solo Arts Heal;
Chat Log
John Maxwell – Chicago sent: 3:11 PM
Last week I was blessed to be interviewed by Hannah on Solo Healing Arts where I discussed my prostate cancer journey and lifelong journey as a poet and my book “Hammering Nails” Find the links to the Interview and to buy my book above. All net proceeds from the sale of my book during September 2025 will be donated to ANCAN.
I’m at the start of my ADT journey. I have been on Orgovyx for 6 months. I plan to stay on for the full 24 months. When I do stop taking Orgovyx how quickly does my testosterone return?
John M — Guys on Orgovyx will recover T levels faster than those on Lupron/Eligard, etc. However, everyone is different and how fast your T levels recover will depend on your baseline T, how old you are, and how long you’ve been on Orgovyx.
AnCan – rick sent: 4:01 PM
John M …. the rule of thumb is twice the length of time you were on. It depends on age…. With orgo, it could well be shorter. It was shorter for me on Lupron – 9 mo. Should say the rule of thumb used to be…..
Paul D in Little Rock sent: 4:40 PM
Thanks everyone I have another meeting and have to sign off. See you again soon. I was able to sign up for the Promise tests, which are on the way. I appreciate the lead to that resource. Paul
sorry I had trouble logging in… another good mtg; but I have to leave as bldg is closing
Jeff Marchi – San Francisco sent: 4:59 PM
Low cortisol could cause fatigue
John M – Chicago sent: 5:09 PM
Link to my Solo Arts Heal ANCAN Podcast and biik purchase are above. Net proceeds from all book sales in September will be donated to ANCAN
AnCan – rick sent: 5:10 PM
CoQ10 for cramps Theraworx for leg cramps
AnCan Bill sent: 5:16 PM
I had a Karate Sensei that swore by mustard for cramp relief. Like the kind of mustard packets you get at a fast food joint. He recommended sucking one down when students got a cramp. He kept them in the Dojo. I don’t know if it was just the power of suggestion but it seemed to work.
