Webinar: Is Active Surveillance Safe for Black Men?

Webinar: Is Active Surveillance Safe for Black Men?

On June 29th, we hosted an exceptionally relevant webinar titled “Is Active Surveillance Safe for Black Men?”. Dr. Willie Underwood (Board Certified Urologist, Executive Director of Buffalo Center for Health Equity, and American Medical Association Board of Trustees member) and Anthony Henry (First Vice President of The Walnut Foundation) joined us for this important conversation.

Dr. Brandon Mahal was scheduled to join us, however he is actively volunteering at the Miami collapse area. Thank you Dr. Mahal for helping, and we hope to see you soon!

We want to sincerely thank Dr. Underwood and Anthony for answering questions, and providing their perspectives.

Watch this fascinating presentation here:

 

Special thanks to Myovant Sciences – Pfizer, Foundation Medicine, and Advanced Accelerator Applications for sponsoring this webinar.

 

 

To view the slides from this webinar, click here (Dr. Underwood) and here (Anthony).

For information on our peer-led video chat PROSTATE CANCER VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, May 17, 2021

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, May 17, 2021

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, May 17, 2021

 

Editor’s Pick: When the standard of care works and has not been tried, should the doc recommend an unproven trial? Also, is it true to say you’ll never come off ADT? (rd)

Topics Discussed

Standard of Care vs Trials; Actinium 225 vs Lu 177 PSMA trials …. personal experiences; are lung nodules really PCa?; Vets PSMA trial; what’s NGS?; shortness of breath and Xgeva; darolutamide/rosuvastatin interaction; using a heart rate monitor to exercise; ADT and metabolic syndrome/ lipid panel; enz/abi switch works; telling cancer pain from inflammation; enzalutamide holiday; is lifetime ADT really the case?; 1.7 PSA allows for Axumin scan; when to do Provenge; brachy+IMRT+HT; neuropathy remedies; RT for recurrence

Chat Log

Paul Freda (Private): 5:30 PM:

Rick How long after beginning a drug like Xtandi should one wait to do a blood test to see if it is working ?

rick – ancan (to Paul Freda): 5:32 PM: 30 days

Paul Freda (Private): 5:32 PM: OK thanks

rick – ancan (to Everyone): 5:51 PM: Homogeneity of Mx PCa …. https://www.fredhutch.org/en/news/center-news/2016/02/metastatic-prostate-cancer-and-precision-oncology.html

rick – ancan (to Everyone): 5:51 PM: http://www.eurekalert.org/pub_releases/2016-02/fhcr-poc022516.php

rick – ancan (to Everyone): 5:57 PM: joeg@ancan.org

Bruce Bocian (to Everyone): 5:58 PM: My son is a Major in the Corps!

sylvester mann (to Everyone): 6:05 PM: Thanks to everyone but I must leave. Best regards.

Joel Blanchette – Reston, VA (to Everyone): 6:06 PM: Contact: Alex Alas 310-478-3711 ext 41399 Alexander.Alas@va.gov West LA VA Hospital Contact.

rick – ancan (to Everyone): 6:06 PM: Tx Joel!

Bruce Bocian (to Everyone): 6:11 PM: My bike is in a cycle-ops, works b

rick – ancan (to Everyone): 7:03 PM: gabapentin/Neurontin

rick – ancan (to Everyone): 7:04 PM: Lyrica/pregabalin

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, May 17, 2021

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, Apr 27, 2021

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, Apr 27, 2021 

Editor’s Pick:The lengthy discussion about the benefits of introducing a 2nd line anti-androgen therapy is worth a listen! (rd)

Topics Discussed

PSMA scan available at U of Michigan; very small 4+4 daignosis is challenging; starting cyclophosphamide; benefits of a 2nd line anti-androgen; intermittent hormone therapy; clincal trial results vs individual response; 3rd party advice just doesn’t work!; chemo side effects inc. dry eye : repeat NGS sequencing after 18 mo.; 4+5 treatment plan after focal recurrence; Space Oar

Chat Log

Bruce Bocian (to Everyone): 3:43 PM: James Pool, Jr. Clinical Subjects Coordinator, University of Michigan Health System, 1500 E. Medical Center Drive CVC 5583 Box 5868 Ann Arbor, MI 48109 Phone: (734) 615-7391 Fax: (734) 615-1435 Email: jampool@med.umich.edu Pager: 5425

Rick Davis (to Everyone): 3:43 PM: Tx Bruce

Rick Davis (to Everyone): 3:47 PM: joeg@ancan.org Joe Gallo

Rick Davis (to Herb Geller): 4:13 PM: Herb – this is in your wheelhouse. The trial is not ‘epidemiologocal’ per se??

Herb Geller (Private): 4:15 PM: The trials were not epidemiological they were randomized

Rick Davis (to Everyone): 4:18 PM: Here’s the link for Thursday’s Larry Fong webinar on cancer immunotherapy: https://bit.ly/3thuPmq

Pat Martin (to Everyone): 4:23 PM: What kind of Gleason score was he DXed as? Sorry I was a little slow. Story of my life.

Bruce Bocian (to Everyone): 4:26 PM: Bring him on a call with you next time!!!!

Ravi (to Everyone): 4:28 PM: How do you decide you need a medical oncologist in addition to a radiation onco

Bill Franklin (to Organizer(s) Only): 4:28 PM: Anyone on the call who used Hydrogel or the SpaceOAR for radiation?

Herb Geller (to Everyone): 4:29 PM: If you have disease that is systemic, then the appropriate person is a medical oncologist. An RO would be for localized lesions only.

Bruce Bocian (to Everyone): 4:33 PM: Invite him over for a beer

Mike Yorke – Florida (to Everyone): 4:56 PM: https://www.cancercenter.com/treatment-options/radiation-therapy/external-beam-radiation

ALFRED LATIMER (Private): 4:59 PM: Looked it up. Most recent test was Guardant a year ago. positive BRAC2 Ordered by Dr. Scholz. Dr L had that test result and other earlier ones

Rick Davis (to ALFRED LATIMER): 5:10 PM: Tx for info ….. you are doing the right thing

Julian Morales (to Everyone): 5:11 PM: thank you, Mike!

Jake Hannam (to Everyone): 5:14 PM: Space Oar

John Ivory (to Everyone): 5:19 PM: https://themarsh.org/shows_and_events/marshstream/solo-arts-heal-ancan-with-elizabeth-mclachlan/

Webinar: Will Immunotherapy Change Your Prostate Cancer Treatment Path?

Webinar: Will Immunotherapy Change Your Prostate Cancer Treatment Path?

On April 29th, we had the utmost pleasure of having the highly esteemed Dr. Lawrence Fong (Efim Guzik Distinguished Professor in Cancer Biology, UCSF. Leader, Cancer Immunotherapy Program, and Co-Leader, Cancer Immunology & Immunotherapy Program, UCSF Helen Diller Family Comprehensive Cancer Center) lead a presentation about immunotherapy for prostate cancer, from active surveillance to advanced disease.

What is immunotherapy?

Our immune system is designed to defend us from foreign attacks, such as viruses and bacteria. Immunotherapy for cancer takes advantage of the immune system to kill cancer cells by directing immune cells to recognize cancer cells by specific proteins on their surface.

We want to sincerely thank Dr. Fong for the excellent presentation and education he provided!

Watch this fascinating presentation here:

 

Special thanks to Myovant Sciences for sponsoring this webinar.

 

To view the slides from this webinar, click here.

For information on our peer-led video chat PROSTATE CANCER VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, May 17, 2021

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, Apr 19, 2021

Hi-Risk/Recurrent/Advanced PCa Video Chat Support – Men & Caregivers Recording, Apr 19, 2021

Editor’s Choice: Lively discussion on mental health brought on by treatment, especially in the Chat. And later on, hot & cold tumors (rd)

Topics Discussed

Recurrence 5 years after RP; recurrence after brachy + IMRT; Provenge; Caregiver discusses depression and anxiety; prostate in teh bladdernech impacts RT choice; 2nd opinion from Dr. Morgans may change treatment; Xgeva dosing; hot vs cold tumors impact immunotherapy; end of chemo in sight; Lu177 PSMA working; cyclophosphamide; HT holiday appears over

Chat Log

Bruce Bocian (Private): 5:04 PM: Wearing my new T-shirt tonight!

Rick Davis (to Bruce Bocian): 5:06 PM: I see …. nice job! Give it a plug …..

Bruce Bocian (Private): 5:06 PM: I did before you came on.

Len Sierra (to Everyone): 5:26 PM: Antonarakis and Denmeade

Jake Hannam (to Organizer(s) Only): 5:29 PM: CT and bone scan will probably be redundant if he can get the PET/CT approved

Pat Martin (to Everyone): 5:42 PM: Good night, all. See you next week

Jake Hannam (to Organizer(s) Only): 5:44 PM: https://moffitt.org/find-a-doctor-search?program=Genitourinary+Oncology&cancerType=Prostate+Cancer&clinicalSpecialty=&gender=&q=

Jeff Marchi (to Everyone): 5:45 PM: no CT or bone scan

Alan Dibble (to Everyone): 5:46 PM: Alan does not wish to ask how everyone deals with the emotional aspect of this disease. He had prostate removed, radiation therapy and now on chemo, plus injections of eligard. (Cancer spread to hips and femur after 1 year after radiation).. He goes through much anxiety and depressions. He is 69 and was diagnosed at 56 years of age. He does not wish to speak. I’m getting involved on his behalf. I’m his wife of 20 years.

Jake Hannam (to Organizer(s) Only): 5:50 PM: Alan may wish to join Speaking Freely

Jake Hannam (to Everyone): 5:56 PM: Venlafaxine is used to treat depression. It may improve your mood and energy level, and may help restore your interest in daily living. Venlafaxine is known as a serotonin-norepinephrine reuptake inhibitor (SNRI).

Tad (to Everyone): 5:57 PM: venlafaxine = Effexor (er)

John Ivory (to Everyone): 5:57 PM: Many people use the brand name for venlafaxine, which is Effexor XR

Rick Davis (to Everyone): 6:00 PM: Let’s not push venlafaxine – we are not expert enough to do that! We have expertise in PCa – we don’t have expertise in mental health. And we know better how men respond to the PCa drugs.

Tad (to Everyone): 6:07 PM: Ok….. all I meant. isthat I have experience in mental health

John Ivory (to Everyone): 6:08 PM: Are you a physician or a therapist, Tad?

Tad (to Everyone): 6:08 PM: A lifetime of personal experience. Are there physicians here for prostate? I’m just offering help like others are

Rick Davis (to Everyone): 6:09 PM: an SSRI can effect one person well and not another. They may need an SNRI.

Tad (to Everyone): 6:10 PM: yep or maoi……or I had shock treatments, etc etc etc. just like there are generalities for prostate, there are generalities with mental….general places to start. Bipolar type 2 since 1988. Been in psych hospitals many times. Electric shock treatments. Every med there is. Best dr’s in the country. This cancer stuf has been. awalk in the park compared to having. alife with. a major mental illness. Haven’t been back here for over a year. Finally was able to get back here tonight…..but this makes me depressed. So I’ll leave. Have a nice night.

Dennis McGuire (Private): 6:24 PM: Hi Rick, Is Dr. Morgans leaving Northwestern ? Heard the end of that conversation. Thanks

Rick Davis (to Dennis McGuire): 6:24 PM: Yup – early July. She’s going to Dana-Farber.

Dennis McGuire (Private): 6:26 PM: Sorry to hear that. Great hire by Dana-Farber ! She is a Superstar. I remember she has a history with Dana-Farber in her earlier days

Rick Davis (to Everyone): 6:36 PM: https://www.fiercebiotech.com/research/epizyme-s-ezh2-blocker-boosts-immuno-oncology-response-prostate-cancer-models    Tazverik

Vincent Wilmot (to Everyone): 6:38 PM: Thanks all. Have to jump off now. Will stay in touch.

Jake Hannam (to Everyone): 6:38 PM: Mark your calendars for what AnCan expects to be a humdinger of a webinar on Thursday, April 29 at 8 pm Eastern. Advisory Board Member and Co-Director of the Parker Institute for Cancer Immunotherapy at UCSF, Dr. Larry Fong, will answer “Will Immunotherapy Change Your Prostate Cancer Treatment?” . Register at https://bit.ly/3thuPmq to learn how Superman came to visit Larry!

Ken (to Everyone): 6:41 PM: Got to go… pilots telling me turn off electronics

Jake Hannam (to Everyone): 6:42 PM: Sorry. Can’t attach the flier. See our Facebook page: https://www.facebook.com/answercancer/photos/a.1872701729640708/2908943646016506/

Bill Franklin (to Organizer(s) Only): 6:43 PM: I’ve got to drop guys. Need to help my son finish up a little bit of homework so he can get to bed at a reasonable time. Take care all.

Jake Hannam (to Everyone): 6:58 PM: dexamethasone (1 mg/day in the evening) with cyclophosphamide (50 mg/day in the morning).   Zofran

Ted Healy (to Everyone): 7:02 PM: Got to go folks, thank you all!