On June 1st, we had the pleasure of world renowned Dr. Steven Kaplan speaking to our Active Surveillance Prostate Cancer virtual support group, in collaboration with ASPI, titled “It Ain’t Your Grandpa’s BPH – An ‘Urgent’ Issue“.
Dr. Kaplan is Director of the Men’s Wellness Program, Mount Sinai Health System and Professor, Icahn School of Medicine at Mount Sinai. He is an internationally renowned authority and one of the primary thought leaders in the study of benign diseases, the association of metabolic factors with voiding dysfunction, and female urology, with symptoms related to both benign prostate enlargement and bladder function.
Dr. Kaplan is a Diplomat of the American Board of Urology and a Fellow of the American College of Surgeons. He is an internationally recognized authority and one of the primary thought leaders in the study of benign diseases of the prostate, the association of metabolic factors and voiding dysfunction and female urology. He has over 1000 publications including 600 peer reviewed and 570 peer reviewed invited articles, and 90 book chapters and non – peered reviewed articles. His landmark study, published in JAMA in 2006, changed the way medications are used in the treatment of men with symptoms related to both benign prostate enlargement and bladder dysfunction.
You’ll hear about the latest advancements in BPH, how diet and sleep can impact your prostate (and overall) health, and more.
Watch here:
Special thanks to Pfizer and Bayer for sponsoring this presentation
We apologize for the inconvenience, but slides for this presentation are not available.
For information on our peer-led video chat PROSTATE CANCER VIRTUAL SUPPORT GROUPS, click here.
To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.
On May 31st, we hosted a webinar full of great information for not just prostate cancer patients, but for all! Titled “Optimizing Sleep, Exercise, and Nutrition in Prostate Cancer“, we learned best practices for the foods we eat, to how sleep apnea can impact our whole health.
The program features Dr. Stacy Loeb, professor of Urology and Population Health at the New York University School of Medicine and the Manhattan Veterans Affairs Medical Center, and Dr. Justin Gregg, Assistant Professor of Urology and Health Disparities Research at UT MD Anderson Cancer Center, of UT MD Anderson Cancer Center in Houston. Dr. Gregg discusses his research on diet. Dr. Loeb discusses her research on a plant-based diet, sleep, and exercise.
Watch here:
Editor’s Note: Dr. Stacy Loeb and colleagues at NYU Langone Health are doing a research study about sleep and lifestyle for men with prostate cancer and their partners and/or family members. Participation involves visiting a website designed by the study team with recommendations about sleep, nutrition and exercise, completing online surveys, wearing a wrist watch to measure activity for a total of two weeks, visiting a website, and two telephone calls with the study team. Gift cards will be provided as reimbursement for study completion.
Hi-Risk/Recurrent/Advanced PCa Video Chat, May 24, 2022
Two upcoming events to mention first …..
Optimizing Sleep, Exercise, and Nutrition in Prostate Cancer with Drs. Stacy Loeb (NYU) and Justin Gregg, Tue, May 31 @ 8.00 pm Eastern. Register at https://register.gotowebinar.com/regi…
It Ain’t Your Grandpa’s BPH with Dr. Steve Kaplan (Mt. Sinai, NYC) Wed, June 1 at 8.00 pm No registration required – just join live https://www.gotomeet.me/AnswerCancer We’ll be talking all issues around frequency, urgency, nocturia and more. Send your questions to joeg@ancan.org
AND – if you’re a Vet, watch this space. AnCan will be launching a new Vets Group to help navigate medical care. It is not exlclusively prostate cancer, so tell Vet friends. 4th Thursday starting June. If you want to sign up please write Group Leader Joe Gallo joeg@ancan.org.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: Testosterone lags far behind in recovery – what to do? (rd)
Topics Discussed
Young denovo Mx man with family history; testosterone stays low long after Tx; chemo works when nothing else did; finally ready for Provenge; test early for bone density; bone density meds; Pluvicto TENTATIVELY scheduled; GU med onc at OHSU; another happy Dr. E camper; Lupron vs Zoladex (gosrelin); success with foamy gland PCa; AnCan suports Vets
Chat Log
Pat Martin (to Everyone): 3:32 PM: Schedule for Memorial Monday?
Rick (to Everyone): 3:33 PM: It’s 5th Monday – no meetings in the 5th week but we have 2 presentations. See our Reminder.
Pat Martin (to Everyone): 3:34 PM: Thanks
Julian Morales-Houston (to Everyone): 3:37 PM: To enroll and participate: Color: To participate, please visit the website: www.progressregistry.com. Here, you can read and sign the informed consent and complete the first questionnaire. You can also scan the QR code below to enroll: If you have any questions, please contact the research coordinator, Laura Gross, at (215) 503-5285 or email laura.gross@jefferson.edu. If you leave a message, please provide the best way for the team to contact you.
Scott (to Everyone): 3:38 PM: Epstein is here https://pathology.jhu.edu/patient-care/second-opinions
Joe Gallo (to Everyone): 3:39 PM: If Tuesday (May 31), it’s an AnCan webinar …
“Optimizing Sleep, Exercise, and Nutrition in Prostate Cancer”
Register at https://register.gotowebinar.com/register/4324977789022538512
AnCan is always considering Quality of Life and Lifestyle. If you’ve attended our live groups you’ll recognize we never get through a meeting without discussing exercise (JIMMY G!!!), diet or stress relief. Last year’s survey revealed that more than 50% of you increased exercise and decreased stress from attending our groups while 38% made changes in their diet.
The upcoming webinar will focus on these issues. It features ‘rockstar’ speaker, Dr. Stacy Loeb, Professor of Urology and Population Health at the New York University School of Medicine and the Manhattan Veterans Affairs Medical Center; and, Dr. Justin Gregg, Assistant Professor of Urology and Health Disparities Research at UT MD Anderson Cancer Center, of UT MD Anderson Cancer Center in Houston.
Dr. Gregg will speak about his research on diet. Dr. Loeb will speak about her research on a plant-based diet, sleep, and exercise..
And if Wednesday (June1), it’s an AnCan seminar…
‘It Ain’t Your Grandpa’s BPH!’
Now we know a lot of you Gents reading this don’t have a prostate, and if you do, it’s probably radiated to a crisp! Does that excuse you from having frequency and urgency issues ….. for many of you, probably not. In our groups, we hear all too often about how many times you have to get up at night.
Well do we have the Doc for you!! ….. Steve (Dr. Prostate) Kaplan, MD is a nationally recognized urologist at Mount Sinai, NYC who specializes in benign prostate issues …. like frequency and urgency. So while we’ll be talking BPH treatments for those with prostates, we’ll also be talking frequency and urgency issues for the rest of you.
There’s NO REGISTRATION required for this seminar – just enter the AnCan Barniskis Room at 8.00 pm Eastern on Wednesday, June 1st like you would for any of our Video Chat Groups. And bring your questions …. in fact, if you already have something in mind, send it ahead of time to Joe Gallo at joeg@ancan.org.
Rick (to Everyone): 3:46 PM: Your Chat is saved on your computer IF you are joining from the desktop.
Jim Ward (to Organizer(s) Only): 3:58 PM: Gents — I need to switch to phone particiaption for the 2nd half; so if a mystery caller dials in, it’s just me.
Wang Gao Shan – PA (Private): 4:57 PM: Hi Rick, Originally I did the Color Test, yet I was offered a FREE DNA test from Myriad. Do you know this group?
Rick (to Wang Gao Shan – PA): 4:57 PM: We do and we are currently in discussion
Rick (to Wang Gao Shan – PA): 4:58 PM: How did that free offer come about
Joe Gallo (to Everyone): 5:07 PM: Embr Wave. embrlabs.com
Wang Gao Shan – PA (Private): 5:09 PM: I received an email from ZERO (I have been on their mailing list for along time). I also contacted Myriad agfter reading an article and was offered a free test… they will send me the kit to Portland, Or shortly before I arrive on June 12, 2022.
Jeff Marchi, San Francisco (to Everyone): 5:11 PM: https://www.prostatecancerpromise.org for free DNA test for these with it
Joe Gallo (to Everyone): 5:11 PM: “Optimizing Sleep, Exercise, and Nutrition in Prostate Cancer”
Register at https://register.gotowebinar.com/register/4324977789022538512
AnCan is always considering Quality of Life and Lifestyle. If you’ve attended our live groups you’ll recognize we never get through a meeting without discussing exercise (JIMMY G!!!), diet or stress relief. Last year’s survey revealed that more than 50% of you increased exercise and decreased stress from attending our groups while 38% made changes in their diet.
The upcoming webinar will focus on these issues. It features ‘rockstar’ speaker, Dr. Stacy Loeb, Professor of Urology and Population Health at the New York University School of Medicine and the Manhattan Veterans Affairs Medical Center; and, Dr. Justin Gregg, Assistant Professor of Urology and Health Disparities Research at UT MD Anderson Cancer Center, of UT MD Anderson Cancer Center in Houston.
Dr. Gregg will speak about his research on diet. Dr. Loeb will speak about her research on a plant-based diet, sleep, and exercise.
And if Wednesday (June1), it’s an AnCan seminar…
‘It Ain’t Your Grandpa’s BPH!’
Now we know a lot of you Gents reading this don’t have a prostate, and if you do, it’s probably radiated to a crisp! Does that excuse you from having frequency and urgency issues ….. for many of you, probably not. In our groups, we hear all too often about how many times you have to get up at night.
Well do we have the Doc for you!! ….. Steve (Dr. Prostate) Kaplan, MD is a nationally recognized urologist at Mount Sinai, NYC who specializes in benign prostate issues …. like frequency and urgency. So while we’ll be talking BPH treatments for those with prostates, we’ll also be talking frequency and urgency issues for the rest of you.
There’s NO REGISTRATION required for this seminar – just enter the AnCan Barniskis Room at 8.00 pm Eastern on Wednesday, June 1st like you would for any of our Video Chat Groups. And bring your questions …. in fact, if you already have something in mind, send it ahead of time to Joe Gallo at joeg@ancan.org.
Herb Geller (to Everyone): 5:13 PM: I gotta go. Will see you all in three weeks, as I’m off to Paris soon.
Peter Monaco (to Everyone): 5:16 PM: Have to go. Thanks for another informative meeting!
Mike Yancey (to Everyone): 5:17 PM: Gotta drop off. Thanks Len for hosting. Look forward to next time.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 18, 2022
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Two new AnCan groups starting this month – 1) Pancreatic Cancer 2) Lupus. Check webiste
Editor’s Pick:Hear about VERY rare form of PCa …. and we revisit metabolic syndrome more than once (rd)
Topics Discussed
Denova Mx Dx …. in Maui!!; germline vs somatic mutations; med onc leaves disease largely untreated; very rare PCa type Dx; did abi cause metabolic issues?; puzzling scalp pain after spot RT to skull base; gabapentin side effects; younger man with denovo Mx has successful Tx; switching to Nubeqa+Orgovyx vs metabolic issues; 2014 participant returns doing well; Dennis Correia back with us; KP caves over Lu177; Pluvicto experiences
Chat Log
AnCan – rick (to Organizer(s) Only): 5:04 PM: Dr. George !!! A leftover from Dominic days
Len Sierra (to Organizer(s) Only): 5:08 PM: Yes, it’s been years since Dr. George S. joined us.
Henry (Private): 5:17 PM: Hey Rick — for the new fellow — recommend triplet therapy per Arasens or Peace? (After PSMA scan of course).
Maria (to Everyone): 5:18 PM: Hi everyone, I just wanted to check in and say Hi, Jeff is enjoying his hormone & zytiga vacation, April PSA is undetectable. You are all in my thoughts…
Joe Gallo (to Everyone): 5:19 PM: Welcome. Thanks for the update Maria.
Joe Gallo (to Everyone): 5:25 PM: Rana Clinic 858-657-7876
Alan Babcock (to Everyone): 5:53 PM: I might be in the wrong group. I am 9 weeks out from a prostatectomy. Dr. Correa, from Fox Chase is minitoring my PSA.
George Rovder Arlington VA (to Everyone): 5:55 PM: Alan, This group is for Stage 4 metastatic and Stage 3 Very High Risk.
AnCan – rick (to Everyone): 5:55 PM: Alan – you are best in Peter’s Low/intermediate group that meets every 2nd & 4th Monday same time and place. We know Dr. C very well
Edward Clautice (to Everyone): 5:56 PM: I received lutetium treatment in Germany last week. Cost about $25k. The appointment was made and paid for before the FDA approved pluvitco. The care was very good. They ran daily scans to monitor lutetium attachment to tumor sites. I am looking now to continue pluvitco here in the USA, potentially at the U of Florida. Question:703-463-0490. clautice@verizon.net. Take care, Ed
George Rovder Arlington VA (to Everyone): 5:57 PM: Thanks Ed. Best of luck.
AnCan – rick (to Organizer(s) Only): 6:23 PM: Dennis Correia is in the house … please give him a shout out! Welcome back.
Don Kramer (to Everyone): 6:40 PM: I just got appeal approval for PSMA formerly denied by UHC med. advantage. Don’t give up if you are originally denied on a potential option for diagnosis you know is approved by medicare but advantage is denying. will share more next week. great meeting thank you all.
Frank Fabish – Ohio (to Everyone): 6:53 PM: Got to go guys. See you next week.
George A Southiere Jr (to Everyone): 6:59 PM: great to see all the new guys and the old guys.enjoyed the meeting tremendously
Jerry Pelfrey – Mexico (to Everyone): 7:09 PM: Jerry, sorry I have to leave.
Henry (to Everyone): 7:12 PM: Thanks all; I have to drop off now. Have a great rest of your evening, gents!
MIke Yancey (to Everyone): 7:17 PM: Enjoyed being on this call for the first time. Plan to join again next week. Gotta run for tonite.
John Birch (to Everyone): 7:19 PM: Need to go, thank you everyone for sharing and info
In April, we had Dr. Christopher Wallis(Assistant Professor of Urology, Department of Surgery, University of Toronto and Urologic Oncologist) give a talk to our AS group titled “Prostate Cancer and Treatment Regret”, a common phenomenon patients experience after making their choices for treating their prostate cancers.
Dr. Wallis found in his research that about 13% of patients with localized disease overall have second thoughts about their choices. This includes patients on active surveillance. The surgical group had the most reset followed by radiation and AS.
“Every choice has risks and benefits. The goal isn’t just to cure the disease but to live a better quality of life” Wallis said.
He said that in counseling patients, one of his challenges is that there is not “a perfect correlation between symptoms and disease.” In other words, some patients are OK with losing their sexual potency—a major concern—while others are devastated. Some have similar reactions to incontinence. “Patient-centered care improves outcomes,” he observed. Walis said long-term, “financial toxicity” from treatment also is a largely unexplored topic.
Watch this presentation here:
Slides will be posted when available.
For information on our peer-led video chat ACTIVE SURVEILLANCE PROSTATE CANCER VIRTUAL SUPPORT GROUP, click here.
To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.
