At AnCan, we love any reason to celebrate, and this is a GREAT reason!
Our Active Surveillance Prostate Cancer Moderator Howard Wolinsky and his wife Judi celebrated their 50th wedding anniversary on June 29th. Surely this picture of them on their wedding day will make your heart melt!
All of us want to give a huge THANK YOU to Howard for all he does for AnCan and the AS community. We are so grateful for Howard providing thoughtful discussion topics, insightful speakers, and bringing important subjects to the AS community to the forefront.
Judi is also beloved in the community, as the way Howard highly speaks of her would make anyone a fan as well.
Happy Anniversary, Judi and Howard! Here’s to 50 years of being great together, and may there be many, many more.
On June 29th, we hosted an exceptionally relevant webinar titled “Is Active Surveillance Safe for Black Men?”. Dr. Willie Underwood (Board Certified Urologist, Executive Director of Buffalo Center for Health Equity, and American Medical Association Board of Trustees member) and Anthony Henry (First Vice President of The Walnut Foundation) joined us for this important conversation.
Dr. Brandon Mahal was scheduled to join us, however he is actively volunteering at the Miami collapse area. Thank you Dr. Mahal for helping, and we hope to see you soon!
We want to sincerely thank Dr. Underwood and Anthony for answering questions, and providing their perspectives.
Watch this fascinating presentation here:
Special thanks to Myovant Sciences – Pfizer, Foundation Medicine, and Advanced Accelerator Applications for sponsoring this webinar.
Hi-Risk/Recurrent/Advanced PCa Video Support – Men & Caregivers Recording, June 21, 2021
ASCO 2021 REVIEW
Prior to the start of today’s Support Group meeting, Herb Geller and Len Sierra highlight the most significant advanced prostate cancer papers from this year’s ASCO Conference. If you choose to skip directly to the ‘regular’ session, please go to 56:40 .
REGULAR SUPPORT GROUP MEETING
Editor’s Pick:Herb’s & Len’s review of ASCO is definitely worth a listen. But at the other , very basic extreme, Peter raised an important topic – how to remember to take your daily meds! (rd)
Topics Discussed
Consider a drug holiday after 7 yrs ADT; early Dx of BRCA in advanced PCa; what’s left after trying everything SOC?; nocturia; remembering to take your pills; consideration when starting ADT; insurance complicates radiating primary for Mx man
Chat Log
Mark Perloe (to Everyone): 4:31 PM: How long was ADT+abiraterone in the Peace 1 study
AnCan – rick (to Everyone): 4:36 PM: SOC in PEACE includes docetaxel. I read the purple slide differently
AnCan – rick (to Everyone): 4:45 PM: Sip-T = Provenge
Ted Healy – Portland, OR. (to Everyone): 4:55 PM: is this the interferon that has been used in the past for cancer and Hepc patients?
Ken (to Everyone): 4:56 PM: Herb your doing great….
Ted Healy – Portland, OR. (to Everyone): 4:57 PM: gotta go. Thank you so much!
Jake Hannam (to Everyone): 5:00 PM: Thank you Len and Herb!
Len Sierra (to Everyone): 5:01 PM: our pleasure and privilege!
Ken (to Everyone): 5:01 PM: many thanks….
AnCan – rick (to Everyone): 5:23 PM: herb@ancan.org and len@ancan.org
Mark Perloe (to Everyone): 5:46 PM: But I think he needs ADT and abiraterone first. If he has a few isolated lesions, I wonder if SBRT might be appropriate if a low dose of tumor. I went to UCLA.
John Ivory (to Everyone): 6:08 PM: Is this she? Research doesn’t look like a GUMO https://www.urmc.rochester.edu/people/22423597-adrienne-victor
Joe Murgia (to Everyone): 6:12 PM: I just looked up Dr Peter Van Veldhuizen at U of R and he is chairman of GU Oncology
Len Sierra (to Everyone): 6:18 PM: https://pubmed.ncbi.nlm.nih.gov/30236961/ Evaluation of Response to Enzalutamide Consecutively After Abiraterone Acetate/Prednisone Failure in Patients With Metastatic Castration-resistant Prostate Cancer
Jake Hannam (to Everyone): 6:20 PM: darolutamide or Nubeqa
Russ (to Everyone): 6:22 PM: Gotta run guys. Have a great night.
AnCan – rick (to Everyone): 6:27 PM: Myrbetriq
Joe Gallo (to Everyone): 6:28 PM: tamsulosin = FLOMAX
AnCan – rick (to Everyone): 6:29 PM: pumpkin seed oil
John Ivory (to Everyone): 6:29 PM: Quick PSA (public service address): Wednesday evening, turn off Netflix/HBO/basic cable and turn on our next Solo Arts Heal episode! “Living While Maybe Dying,” Performance about health anxiety with discussion. 10:30 PM ET/7:30 PT (also recorded for later viewing). https://ancan.org/solo-arts-heal/
Pat Martin (to Everyone): 6:32 PM: Zytiga 2x a day?
Joe Murgia (to Everyone): 6:32 PM: I use the upside down bottle too!
Blee in Virginia (to Everyone): 6:34 PM: They make those things for 2, 4,6 times per day Pat Martin (to Everyone): 6:34 PM: I use two weekly pill storages. One has a.m./p.m. I use a separate one for my Abi. one of the benefits of getting up through the night.
John Ivory (to Everyone): 6:37 PM: Also, if you didn’t attend Solo Arts Heal with our own Jimmy Greenfield last month, you owe it to yourself to have a look/listen after this call! https://www.youtube.com/watch?v=vp1xBkc3am8&t=1s
George (to Everyone): 6:38 PM: Pill organizer several times per day https://flents.com/products/maxi-pharmadose-pill-planner?variant=35230637686940¤cy=USD&utm_medium=product_sync&utm_source=google&utm_content=sag_organic&utm_campaign=sag_organic&gclid=CjwKCAjw8cCGBhB6EiwAgORey8B_S4j34lw0AuB9MJ8lRi5CC_GpMJp_grpNMb6RJnZd2XleXVXMVBoCq4IQAvD_BwE
John Ivory (to Everyone): 6:42 PM: Relu GO lix. Yes, Or GO vix is correct. Always emphasis on the GO. Not sure why my mic isn’t working tonight
Mark Perloe (to Everyone): 6:47 PM: Rick, I light up like a searchlight at 0.3
Jake Hannam (to Organizer(s) Only): 6:48 PM: Antonarakis told Joel he expects PSMA scans to be available in July at Hopkins, anyway
AnCan – rick (to Everyone): 6:48 PM: But am I doing better in pronunciation Mr .I?
Herb Geller (to Organizer(s) Only): 6:50 PM: I think it will be more generally available very soon.
Marty Rotter (to Everyone): 6:52 PM: I stayed on 1 month Lupron for recurrence before having salvage radiation. Started with 30 days to see how it would effect me and stayed on it monthly for 5 more months.
Joe Gallo (to Organizer(s) Only): 6:52 PM: The Pyl may be more readily available since it has longer half life vs. G68 which is only hours – needing a generator or cyclotron.
Pat Martin (to Everyone): 6:52 PM: Get another PSA test to determine doubling time.
On June 2nd, Dr. Michael Schweizer (Assistant Professor, Division of Medical Oncology University of Washington School of Medicine) spoke at our Active Surveillance Virtual Support Group with a presentation titled “Meds: A potential new path to keep men on AS?”
As a medical oncologist of the Fred Hutch Cancer Center in Seattle, he usually sees no patients on active surveillance for low- to favorable intermediate-risk prostate cancer. But this changed when he conducted a study of how apalutamide, a drug used in men with more advanced cancer, on men on AS.
Dr. Schweizer said: “My goal is to help reduce the morbidity and mortality associated with diseases like prostate cancer through developing novel drug therapies.” He plans to study the impact of other meds on men on AS to offer a new way of managing AS.
We want to thank Dr. Schweizer for answering questions!
Watch here:
To view the slides from this presentation, click here.
For information on our peer-led video chat ACTIVE SURVEILLANCE PROSTATE CANCER VIRTUAL SUPPORT GROUP, click here.
To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.
Hi-Risk/Recurrent/Advanced PCa Video Support – Men & Caregivers Recording, June 14, 2021
Editor’s Pick What are the options when 27 cycles of chemo to treat recurrent disease gets tough to handle? (rd)
Topics Discussed
Initial treatment options for locally advanced Dx; what next after 27x chemo sessions w. PSA of 900; is ATM mutation suited to olaparib?; continuing cyclophosphamide; plan beyond the next Tx; Lupron + abiraterone + prednisone; rechallenging abi on edema after after break; Embr wrist gizmo may help with hot flashes; RO does not understand ‘pelvic girdle’RT; treating the primary tumor; what’s considered SBRT?
Chat Log
Jake Hannam (to Everyone): 3:30 PM: Axumin
Pat Martin (to Everyone): 3:31 PM: Much more available as the half-life is far longer than the Gallium isotope.
AnCan – rick (to Everyone): 3:32 PM: herb@ancan.org
Jake Hannam (to Organizer(s) Only): 3:40 PM: olaparib for atm?
Jim Marshall – Alexandria, VA (to Everyone): 3:49 PM: Love to know about ATM too, for I have a bad ATM gene. Jim Marshall
David Muslin (to Everyone): 4:35 PM: Margaret, Director of Customer Experience, Embrlabs.com Embr Labs Support email addressee support@embrlabs.com
James Barnes (to Everyone): 4:42 PM: HI David I am doing well thanks. Certainly dealing with the hot flashes asd well. My remedy is placing something cold on my wrists and inside the elbow and then my forehead which seems to make the flashes pass quickly.
AnCan – rick (to Everyone): 4:42 PM: https://www.prostatecancer.news/2021/05/new-guidelines-for-salvage-radiation.html https://www.prostatecancer.news/2018/10/whole-pelvic-salvage-radiation-short.html
Joel Blanchette – Reston, VA (to Everyone): 4:44 PM: The pelvic girdle is a ring-like bony structure, located in the lower part of the trunk. It connects the axial skeleton to the lower limbs. In this article, we shall look at the anatomy of the pelvic girdle – its bony landmarks, functions, and its clinical relevance.
Pat Martin (to Everyone): 4:46 PM: I asked my RO for an idea of where he was rdiating…he brought me into his office and showed me the graph of my pelvic area and the shape of the radiation scope.
Julian Morales (to Everyone): 4:47 PM: good to know – I am getting ready to start my radiation.
David Muslin (to Everyone): 4:59 PM: Have great night guys. Thanks for sharing and caring as always
George (to Everyone): 5:00 PM: thank you all. very good for me.
