Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 7, 2022
It’s diet coke, spam and bacon wrapped twinkies for our meeting this week!
Next week’s meeting will be on Tue, March 21. That’s because Feb and March mess up our Meeting Calendar, so we have to make adjustments to avoid consecutive nights! Almost done with this crazy schedule. Come April, we are back to a normal schedule – 1st & 3rd Monday at 8pm, and 2nd & 4th Tuesdays at 6pm – all Eastern. All AnCan’s groups are free and drop-in – join us in person sometime!
You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: Recurring themes throughout this week – QoL and treating older Gents, heart/BP issues + old faves like Provenge, Lu177, immunotherapy and intermittent HT (rd)
Topics Discussed
Best treatment for asymptomatic 94 yr old with heavy tumor buruden; melatonin?;resumption after IHT; changing diet and exercise may have brought results; should clinical trials precede FDA approved Tx; Provenge vs newer immunotherapies; “How not to die” diet; switching HT regimen; William Hurt – alternative medicine; darolutamide/Nubeqa works; you can delay initial Tx for int/hi-risk PCa; ‘direct heart risks; more heart chat and older men discussions; are ttrial stes playing G-d with Lu177 patient selection; obtaining darolutamide … & Provenge.
Chat Log
6:08 PM Mike A to Everyone: i received the 4th covid shot in Seattle. Anyone being treated for cancer at UW hospital qualifes
6:22 PM Julian Morales-Houston to Everyone: Just saw Dr E today!
6:26 PM Joe Gallo to Everyone: Dr. Eleni Efstathiou Medical Contact details eefstathiou@houstonmethodist.org
6:29 PM Julian Morales-Houston to Everyone: her office: 346-238-4496; clinic: 713-441-9948
6:31 PM John Antonucci to Everyone: quite a few articles on melatonin and PCa actually. I haven’t read any yet
6:35 PM AnCan – rick to Everyone: Hi Gents …. am in DC to lobby for AUA. Have a reception but will be back in about 45′
6:44 PM Julian Morales-Houston to Everyone: HCTZ
6:45 PM AnCan – rick to Everyone: I could not tolerate HCTZ when they first put me on it with lisinopril. Been on lisinopril alone for more than 11 years. Very low dose.
6:46 PM AnCan – rick to Everyone: Guys …. gootta run fo rthe last 45′ of this networking reception
6:46 PM Herb to AnCan – rick: I’m having trouble with amlodipine edema.
6:46 PM Len Sierra to Organizers:m Ciao, Rick!
6:47 PM Julian Morales-Houston to Everyone: For BP I am on losartan/HCTZ 100/12.5 + Amplodine+Bystolic 10 MG
6:50 PM Mike A to Everyone:m thanks everyone, need to drop
6:56 PMLen Sierra to Everyone: MSI – Microsatellite Instability
7:00 PM Michelle G to Everyone: How do you know what biomarkers you have?
7:00 PM Len Sierra to Everyone: You ask them to do genetic testing, Michelle.
7:01 PM John Antonucci to Everyone: PSA is a biomarker. Genetic ones are detected with germline and somatic gene testing.
7:01 PM Michelle G to Everyone: Thanks Len. We had that, I believe. So if they didn’t identify one, then he doesn’t have a specific biomarker?
7:04 PM Joe Gallo to Everyone: Do you mean DNA variant(s) eg. BRCA2 vs. biomarker? Biomarkers are tests.
7:08 PM John Garbin to Everyone: Does anyone know what William Hurt prostate cancer status was when he was diagnosed in 2018? Media said it was terminal prostate cancer in 2018 and he passed away this week
7:08 PM Ben Nathanson to Everyone: https://www.pcf.org/guide/prostate-cancer-patient-guide/
7:09 PM Pat Martin to Everyone: I heard he had mets to his bones when Dxed
7:09 PM John Garbin to Everyone: thanks
7:11 PM Michelle G to Everyone: Someone had said that immunotherapy is good only if you have certain biomarkers, so I was just repeating that word
7:11 PM Carl Forman to Everyone: William Hurt was stage 4 with bone metastisis
7:12 PM: Michelle G to Everyone: William Hurt didn’t want to do traditional chemo. He did something called SEF chemo–side effect free. SEF chemo has not been peer reviewed
7:13 PM Len Sierra to Everyone: Guess it didn’t work, Michelle. : (
7:13 PM Michelle G to Everyone: Exactly
7:15 PM Michelle G to Everyone: We have to go. Thanks everyone
7:26 PM John Garbin to Everyone: Thanks Guys..have to go to meeting…Ciao
7:50 PM George Rovder Arlington VA to Everyone: Thank you Len, all Organizers, and all friends.
7:51 PM Ben Nathanson to Everyone: Thank you, George
7:53 PM Frank Fabish – Ohio to Everyone: Got to go guys.