Hi-Risk/Recurrent/Advanced PrCa Video Chat, Oct 6, 2025

by | Oct 9, 2025 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, Low/Intermediate Prostate Cancer, mCRPC, mHSPC, Prostate Cancer, Recorded Groups, Uncategorized

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Oct 6, 2025

 

Watch Dr. Epstein’s Interpreting Prostate Needle Biopsies in Today’s World – Recording

NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14.
Sign up at https://ancan.org/contact-us/

AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: What’s the right group for me? (rd)

Topics Discussed

Older Newbie on longer term HT is concerned about bone health; post-RRP Gent at high risk considers preemptive radiation; a ‘regular’ preparing to complete HT wonders which group he belongs to; balancing estradiol and testosterone levels; reluctantly considering intermittent hormone therapy; challenges with an out-of-state GU med onc; treatment update and AnCan gratitude; chemo contunues with tests and GU MO encouraging; Gent takes AnCan advice switching to MSKCC.

Chat Log

  • Steve L

    sent: 5:23 PM

    No response needed but I want to share that I have lost 18 pounds since my pulmonary embolism cleared. Unfortunately I had gained 48 pounds during the nearly 12 months it took to clear. So 30 plus to go.

  • Larry (Alaska)

    sent: 5:26 PM

    Bone strengthening: Bone loss on ADT is considered to be because of too-low estradiol level (same reason post-menopausal women) caused by depression of estradiol that accompanies suppressing testosterone. A man needs a certain level of estradiol which can be supplemented by patches or gel taken through the skin. Standard-of-Care bone strengtheners have side effect that estradiol does not.

  • Brian Haack – Eagle, ID

    sent: 5:29 PM

    Vitamin K will help mitigate bone loss

  • Larry (Alaska) sent: 5:30 PM

    Lee Baylin is spot-on  https://estradiolinitiative.org

  • Jerry sent: 5:37 PM

    Good input, Larry. I agree completely. Lots of docs pitch a fit about it, often based on very old work with non-bioidentical estrogens, orally administered.

  • Larry (Alaska) sent: 5:42 PM

    Look up the “PATCH” study which compared E2 to Lupron over 15 years time

  • Jeff Marchi – San Francisco sent: 5:44 PM

    UCSF bone health seminar May 2025 Therapy – for all men on hormonal therapy • Calcium 1200mg daily • Vitamin D 400 units daily • Denosumab or Zoledronic Acid for mCRPC or Osteoporosis

  • Thomas Matica sent: 5:49 PM

    K2 works in conjunction with vitamin D (D3 preferred) aiding with absorption of the vitamin D. Good idea to take both.

  • Larry (Alaska) sent: 5:50 PM

    AND weight-bearing exercise strengthens bones. Take it as seriously as you take your other medications!!!!!!

  • Jim Marshall, Veteran, Alexandria, VA sent: 5:51 PM

    Vitamin K is great except for those of us on Blood Thinners. Jim M

  • Brian Haack – Eagle, ID sent: 5:54 PM

    Gotta run. Great discussion!

  • Lee Baylin, Baltimore sent: 6:08 PM

    good night all

  • Steve L sent: 6:12 PM

    My radiation was not an initial treatment but 42 months after my De novo diagnosis and after numerous treatments. My prostate had been substantially reduced in size prior to the radiation.

  • Steve White sent: 6:16 PM

    Need to run. Thanks for the discussion

  • Jim Akin, Bradenton, FL sent: 6:26 PM

    Larry, try using app ChatGPT in your research. That is an AI app.

  • Jeff Marchi – San Francisco sent: 6:28 PM

    At  U of Chicago  Russell Szmulewitz, MD – UChicago Medicine Or at Northwestern David J VanderWeele :

  • Larry (Alaska) sent: 6:30 PM

    Jim, I have used the heck out of AI, especially “Perplexity” and extensively studied the source materials it cites. A number os AI engines are very good. Check out also David Diaz’s book “How to use AI to fight your prostate cancer” available through AMAZON Thanks for the suggestion, Jim.

  • Jim Akin, Bradenton, FL sent: 6:33 PM

    Thanks Larry. I’ll check out this book.

  • Alain sent: 7:01 PM

    See you next time guys, thanks!

  • Thomas Matica sent: 7:01 PM

    Thanks again to all. Good evening.

  • Eric Curtis sent: 7:02 PM

    Great to see you all again.