Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/18/26

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Many tasty tips this week… our fave – clinical trials DON’T cover all costs

Topics Discussed

Liquid biopsies and biomarkers; Bispecific T-Cell Engagers (BITE) for TP53+RB1 Gent; is it time to test for small cell? – Provider doesn’t think so; dry mouth from denosumab/Xgeva – not quite, that’s ONJ – great dental health discussion; Reel Recovery takes his mind off seeking HT break; germline negative, but should T3b Gent stop HT after 9 months; the 2 Davids discuss trials managing oligoMx lightly; clinical trials often don’t cover all costs; our first Long Game man goes onto mono daro with 6 months NCI grace; Dr. E orders more tests to guide HT treatment – and suggests Good Patch for hot flashes; don’t worry yet about ‘morphing’ tests; PPI can elevate chromogranin; hypersensitivity to docetaxel demands dose adjustment; better GU doc on Florida Gulf Coast

Chat

Larry in AK sent: 5:13 PM

I will seek circulating tumor cell analysis searching for evolutionary changes in my cancer over time. Still in its infancy as a tool
Danny Lankford (Minnesota) sent: 5:29 PM

My wife and I are using Open Evidence. https://www.openevidence.com/ but you need an NPI (provider ID) to access it. It’s been amazing to help me along on my journey.
AnCan – Rick sent: 5:44 PM

oxybutynin -ditropan
Alfredo in Wimberley sent: 5:44 PM

OXYBUTYNIN (ox i BYOO ti nin) treats symptoms of an overactive bladder, such as loss of bladder control or frequent need to urinate. It works by relaxing muscles in the bladder. It belongs to a group of medications called antispasmodics. This medicine may be used for other purposes; ask your health care provider or pharmacist if you have questions. COMMON BRAND NAME(S): Ditropan XL
Danny Lankford (Minnesota) sent: 5:45 PM

same here on the venlafaxine 37.5mg for me and my mouth is dry as can be
AnCan – Rick sent: 5:49 PM

Alliance Oxybutynin https://ascopubs.org/doi/full/10.1200/JCO-25-01486

Morgans Editorial https://ascopubs.org/doi/full/10.1200/JCO-26-00144?bid=605045108&md5=efb3c3159aa147415d4f2ded3334efa3&cid=DM28252
Jon McPhee Toronto sent: 5:52 PM

I’m taking 2.5 mg of oxybutynin once a day, in the evening when I take my Apalutamide. Still get warm and sweat, but has taken the intense feeling of a hot flash away.
Matt sent: 6:00 PM

Reel Recovery https://www.reelrecovery.org/overview
AnCan – Rick sent: 6:27 PM

PSMA-DC Trial https://clinicaltrials.gov/study/NCT05939414?cond=Prostate%20Cancer&term=NCT05939414&viewType=Card&rank=1#participation-criteria

ANDROMEDA at UCLA https://clinicaltrials.gov/study/NCT07150715?tab=study
Bob Schwartz, USN, Venice, FL. sent: 6:33 PM

Another good mtg., have to go, see everyone next week.
Jann Nielsen sent: 6:35 PM

Great meeting. Have to go.
Luther sent: 6:43 PM

Good thing I’m seeing her on Wed. then
Frank Ciambra sent: 6:49 PM

I didnt hear a thing larry
Larry in AK sent: 6:51 PM

There are organizations that re-distribute prescription drugs. It is illegal, but some prosecutors shy away from prosecuting humanitarian bending” of the law.
Alfredo in Wimberley sent: 6:51 PM

I have to leave, best regards to one one and all!
Matt sent: 7:01 PM

evening fella! I’ll follow up. Cheers 😉
Bruce Schrimpf sent: 7:03 PM

Thanks for the information about Dr. Stish writing an article! I have had a long day and will call it a night.
AnCan – Rick sent: 7:17 PM

Dr. Elizabeth Guancial https://flcancer.com/en/physician/elizabeth-guancial-md/

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/18/26