Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 31, 2024

by | Jan 6, 2025 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 31, 2024

IF YOU’RE WATCHING THIS VIDEO, PLEASE COMPLETE OUR SHORT, 7-MINUTE ANCAN 2024 SURVEY…
AnCan needs your feedback and we also hope to take the results to medical conferences.
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AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.

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Editor’s Pick: Many ideas for dealing with cramps, pain, and neuropathy; outsmarting the system to get a PSMA PET scan. (bn)

Topics Discussed

Reminders: our survey, and our once-a-year appeal; he’s newly diagnosed and already being pushed to enter a clinical trial; American emigre in Israel holds a bad genetic hand — we suggest a visit to Dr. E when he’s stateside; what’s the point of an FDG PET scan if my PSMA PET was negative?; persistent back pain and bad hand and leg cramps has many potential causes — could a palliative care doc help? — and we have suggestions on the cramps and pain; success with Dr. Guancial; advice on palliatives for neuropathy; fever and extreme pain after a Lupron shot — it’s Orgovyx for him from now on; living it up with friends now that his radiation’s done; a disastrous second chemo round – RSV, a urinary tract infection, and he’s lost his voice; Pylarify vs gallium 68 scans — does the difference matter?; struggling to get community care approval from the VA; Kaiser doc tries to deny him a PSMA PET, but our man’s got a plan;  getting a GU medonc referral through the VA.

Chat Log

Dr. Jeff · 6:29 PM
A MUGA scan can provide information about: The heart’s pumping efficiency, Blood flow, The size of the heart’s chambers, The motion of the heart’s walls, and The amount of blood pumped out of the heart with each beat.

John A · 6:36 PM
That Cancer Center website seems like a radiation facility

TonyFig · 6:57 PM
A reminder for Dave and Jessica that this meeting is recorded so you can review the tremendous amount of information shared.

Joel Blanchette, Reston, VA · 7:21 PM
I also have PTEN and TP53.

Ethan Boger · 7:35 PM
Thanks Joel and Rick. I already clicked on the link. Will make contact after the holiday.

Ethan Boger · 7:38 PM
Thanks for allowing me to share my story. This is a great group. God bless.

Ethan Boger · 7:41 PM
Is that to me? Ethan? No, I served in the israeli army.BTW, my son lives in Alexandria.

Ethan Boger · 7:45 PM
Lots of good folk here. Interesting discussions. Looking forward to joining future meetings if I can figure out how to stay up (it’s 0245 over here right now!)

Ethan Boger · 7:49 PM
Yes I will.

marc valens · 8:09 PM
cbd salve massaged in to my feet and lower leg gave me some relief for my painful neuropathy

Ethan Boger · 8:13 PM
Thank you thank you – my Yiddish is a bit rusty but am Yisrael chai is good old Hebrew.

Ethan Boger · 8:16 PM
😀😃

Doug D · 8:23 PM
I was late to the meeting because I was at my initial appointment with a PCP, Dr Kinne, at the VA in Hillsboro, Oregon (near Portland).  Good news is that she referred me to Julie Graff or one of her colleagues.    Bad news is that she cannot guarantee that my appointment will be with Dr. Graff.
Thank you very much for your information and inspiration.  Best to all in the New Year.

kang · 8:47 PM
Happy New Year