Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

by | Jul 3, 2024 | mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

Apologies for the delay this week… it was a GoTo issue because we had a double session with a lot of slides. The ASCO24 presentation can be found at https://ancan.org/patient-highlights-from-the-2024-asco-annual-conference/

Men Speaking Freely is on for July 4 – we’re talking parent-child relationships with Dr. John Happy July 4th to all

If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

Editor’s Pick:  Dr. Jeff advises you read your medical records carefully – he’s found mistakes and typos in his! (rd) 

Topics Discussed
Solution to chafing from sweats; put a GU med onc in place before you finish up at Fort Belvoir; Promise germline test; advocating for yourself at KP; play anxiety card to get Casodex buffer; couple of Gents update us; read your medical records carefully; PSA creeps – possible post-RP recurrence – when to get PSMA PET?; testing PSA in Panama and US; how does PSMA change as disease advances; responding well to HT; good immune system can slow disease
Chat Log

  • Norm Pollock

    sent: 5:19 PM

    Monistat chafing relief powder gel

  • AnCan – rick

    sent: 5:22 PM

    https://www.hopkinsmedicine.org/profiles/results/directory/profile/3138167/channing-paller

  • Joel Blanchette, Reston, VA

    sent: 5:40 PM

    Invitae gene test

  • GARY Z

    sent: 5:42 PM

    Hi, Dr. John. I’m 66. Inova Oncology Genetic testing ~ 2018. No BRCA. No prostate cancer history immediately family (father, uncles, cousin). Mother breast cancer (survived 30 years) died of uterine cancer (BRCA, I think). After an ADT vacation three years – 2020 > 2023. Orgovyx February 2024 and scheduled to stop end of July 2024. (Received continuous ADT 2017-2018. Had intermittent ADT 2018 through 2019.) Thank you, Doctor.

  • John A

    sent: 5:49 PM

    Color includes PTEN.

  • Richard Fiske

    sent: 5:56 PM

    Long Term AnCan title: BSd

  • dan straub

    sent: 6:02 PM

    I just received my COLOR genetic test results… it does NOT analyze P10 or RB1

  • AnCan – rick

    sent: 6:04 PM

    BSd….. I like it

  • Frank Fabish Columbus OH

    sent: 6:12 PM

    Thanks everyone gotta sign off.

  • AnCan – rick

    sent: 6:35 PM

    Here’s the D’Amico paper https://www.medpagetoday.com/reading-room/asco/prostate-cancer/105340?xid=NL_ASCORR_2023-07-20&eun=g10110736d39r&pos=

  • Julian – Houston

    sent: 6:43 PM

    Thanks again everyone – Great discussion: See you next week

  • AnCan – rick

    sent: 6:44 PM

    http://nomograms.mskcc.org/Prostate/index.aspx

  • Larry

    sent: 6:44 PM

    should be cautious about rushing to see surgeon and opting for surgery before not knowing a lot more

  • Stephen

    sent: 6:49 PM

    Nope – Not a vet – I’ll be back for more info – I have time to explore my best options. Thanks guys!

Our Recent Blog Posts – In Case You Missed Them

Our Recent Blog Posts – In Case You Missed Them

by | Jun 28, 2024 | Active Surveillance PCa, Nutrition, Pancreatic Cancer, Prostate Cancer, Recorded Groups, RMC, Solo Arts Heal, Veterans, Webinars

Editor’s Note: We know you’ve missed receiving email notifications about our blog posts. Now that we are up and running on the new system via mailchimp (the same system you receive our group reminders on), here are the posts may have missed. They are categorized for your connivence. Enjoy!

Hi-Risk/Recurrent/Advanced PCa Video Chat Recordings

 

General Prostate Cancer 

 

Solo Arts Heal

 

Veterans

 

Webinars

 

Pancreatic Cancer

 

RMC

 

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 25, 2024

by | Jun 26, 2024 | mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 25, 2024

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

Editor’s Pick: After a 10x PSA rise on Pluvicto, it’s time for new therapy — and a new genetic test (bn)

Topics Discussed
Poised to start ADT, de novo Floridian has two good choices for GU medonc; with PSA of 700 and a cancer “that’s really gotten out of hand,” he starts chemo but it sends him to the ICU;  tenfold rise in PSA puts an end to his Pluvicto treatment — he needs a fresh genetic test before changing course; a go-ahead for spot therapy, so he’s headed to a free NYC hotel room; wheeze raises concern about his lung mets, but multiple tests find nothing;  switching from treadmill to recumbent bike, max heart rate sags; back pain woes on Provenge; recurrence after prostatectomy but PSMA PET is giving no guidance; don’t pick a hospital, pick a doctor — and we like Dr. E; medoncs won’t talk with him because he’s not metastatic, so choose a great radonc for now.
Chat Log
Unknown · 6:16 PM
Promise study …. https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Paul Freda Lake Worth FL · 6:29 PM
Genutourinary Medical Oncologist, Abraham Schwartzberg, Jupiter and Palm Beach Florida. I can highly recommend as I have been with him for 9 years.
Dr. Jeff · 7:06 PM
Six-transmembrane epithelial antigen of prostate 1= STEAP1
Julian – Houston · 7:07 PM
STEAP: A prostate-specific cell-surface antigen highly expressed in human prostate tumors, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC24469/
Joel Blanchette, Reston, VA · 7:19 PM
Hope Lodge
Joel Blanchette, Reston, VA · 7:20 PM
Hope lodge is in 30 cities
Geoffrey Nourse – Denver · 7:42 PM
So doctors I am meeting with over the next 3 weeks to discuss my T4N1M1 diagnosed 6/5/24.
Dr. Corbin Eule – Anschutz (Denver)  6/27
Dr. Michael Serzan – Dana Farber (Boston) 7/15
Dr. Karen Autio – MSK (NYC) 7/16
Working to get in to Dr. Eugene Kwon – Mayo (Rochester)
On Orgovyx (4 days in) and will be starting Nebeqa and xgeva (osteo).
PSA 21 –> 35 in last 30 days
Baselined all blood work – normal except PSA  (35)
Genetic tests in progress.
Anyone work with these doctors and have any opinions of them?
Joel Blanchette, Reston, VA · 7:51 PM
Posluma
Frank Fabish · 8:02 PM
Thanks guys. See you Monday.
Steve Roux, MI · 8:08 PM
Thanks guys. Great Meeting! See you next time!
Unknown · 8:11 PM
Retig not taking patients w my profile rising psa post rep
Unknown · 8:15 PM
They are referring me to a dr Kareem chamie
Unknown · 8:17 PM
Dr. John,  thank you it was a very good meeting.
Richard Tolbert · 8:18 PM
Thanks for another great discussion.
Peter M · 8:19 PM
Good night gents!
John A · 8:25 PM
got to go guys, I will leave Rick to finish up
Geoffrey Nourse – Denver · 8:25 PM
at Houston Med.
Joel Blanchette, Reston, VA · 8:25 PM
Dr. Eleni Efstathiou, Houston Methodist
Julian – Houston · 8:26 PM
Dr Eleni Efstathiou
Joel Blanchette, Reston, VA · 8:27 PM
That is the value of ANCAN
Julian – Houston · 8:28 PM
Full Name: Dr Eleni Efstathiou
Efstathiou, Dr Eleni
(713) 441-9948
+1 (832) 755-3261
Geoffrey Nourse – Denver · 8:29 PM
Ranna McKy UC SD
AnCan – rick · 8:30 PM
Eleni Efstathiou
Joel Blanchette, Reston, VA · 8:30 PM
DR Rana Mckay
Jim Marshall, Alexandria, VA · 8:31 PM
Dr Oliver Sartor.
AnCan – rick · 8:31 PM
Oliver Sartor
Geoffrey Nourse – Denver · 8:37 PM
Need to go.  Thank you all SOOOO much!
Julian – Houston · 8:39 PM
Thanks again – great conversation!
THOMAS  Matica · 8:42 PM
Thanks to all. Great meeting. Got to go.
Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 17, 2024

by | Jun 18, 2024 | mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 17, 2024

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s pick: “Do no harm” – does that also mean waiting to start HT? Good debate ensues! (rd)
Topics Discussed:
All good with The General; TP53 and radiation; best combos with which to start HT on recurrence; pre-treatment PSMA reveals Nx and changes treatment decision; stopping Orgovyx after 13 months may prove a good move; switching to 3 mo. from 6 mo. LHRH Depot; weight gain on LHRH; spot too close to bladder for safe RT – stick with HT alone; more rowers than just ardee; our mountain climber’s doing very well and happy with his GU MO; slow albeit steady climb in PSA shows no source – intervene with HT or wait?; starting HT on Lupron and testicular pain – any connection?
Chat Log
APOLOGIES but a GoTo glitch only downloaded these 2 posts – who knows why??? If anyone who attended has entire Chat transcript, please forward to rd@ancan.org
Jeff Marchi: Withings Body+ Scale. Synchs to your phone
Alan Babcock sent: 6:40 PM:  I have to go.
Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 11, 2024

by | Jun 12, 2024 | mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 11, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s pick: Two men with metastasis sites that raise thorny questions (bn).
Topics Discussed:
His de novo metastasis was discovered less than a week ago — family rallies to his side as he weighs who to see and how to treat; midway through Provenge — leukapheresis yesterday, infusion in two days — what to expect?; radiating a spot near his clavicle means a tricky tradeoff; insurance cutover puts Orgovyx so near yet so far; will node radiation reignite bad radiation prostatitis?; at a treatment crossroads, but his spirits are too low to act; testosterone rising after ADT — why gynecomastia now?; Pluvicto’s been great and he wishes it could last.
Chat Log
AnCan – rick · 6:18 PM
PROMISE clinical trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=WebinarRO
G – Denver · 6:23 PM
Please do put the names here or to my email.  Any help will be appreciated!
G – Denver · 6:25 PM
Buzby – Boulder CO
G – Denver · 6:30 PM
Dr. Michael Morris  – MSK
G – Denver · 6:30 PM
Dr. Thomas Flaig… anShultz
Gary P · 6:31 PM
Gents, I have to jump to another call. I will catch the recording.  Take care.
G – Denver · 6:31 PM
TY Gary
G – Denver · 6:32 PM
Dr. Leslie Busby, MD – Boulder, CO
AnCan – rick · 6:33 PM
rd@ancan.org
John A · 6:34 PM
Busby: Blood and GI
AnCan – rick · 6:38 PM
Flaig is a GU medical oncologist but we have no experience with him
G – Denver · 6:41 PM
Elizabeth S . . .?
G – Denver · 6:41 PM
Kessler.
John A · 6:42 PM
We should keep Flaig in mind for BC he’s deep into it
AnCan – rick · 6:49 PM
Fong – Provenge https://ancan.org/5th-monday-webinar-dr-larry-fong-explains-immuno-oncology-mon-sept-30-8pm-edt/
Len Sierra · 6:51 PM
From the Provenge website: Eat calcium-rich foods, such as dairy products and dark leafy greens, or take supplements; Eat a hearty meal within 4 hours of your appointment
AnCan – rick · 7:13 PM
Good suggestion, Dr. Jeff
AnCan – rick · 7:14 PM
But Ben has a good point too.
Ken Doyle · 7:29 PM
Prostate removed in 2009 and PSA has slowly increased to 4 but has accelerated some to about an increase of about 1 per year.
My 2018 Axumin scan showed two hotspots in prostate bed.
Then 2023 PSMA did not show hotspots due to distended bladder with tracer in it.
1. Should the scan provider have made sure that my bladder was empty and should I expect them to do a do over of the PSMA scan?
2. At age 80 and 14 years out with PSA increase of 1 per yr should I just “forget about it”?
AnCan – rick · 7:30 PM
Tx ken – for sure we’llg et to you!
Dr. Jeff · 7:31 PM
ImagingWest
Dr. Jeff · 7:31 PM
Hawthorne NY
Dr. Jeff · 7:32 PM
https://www.imagingwest.com/about
Ben Nathanson · 7:32 PM
thanks!
G – Denver · 7:34 PM
Need to drop – looking forward to our next session!
Matt M – Sac · 7:44 PM
Good evening gents!  Have a great night andweek!
eric · 7:51 PM
I was going to say that there are exercises  you can do from your chair.
eric · 7:52 PM
I do them expecailly when I’m in the office
AnCan – rick · 7:53 PM
He’s a big exerciser… we have to change attitudes
Adam · 7:59 PM
Gotta drop. Thanks for another great session!
Adam · 7:59 PM
You should!
Kirt Schaper · 8:07 PM
gotta drop
Steve Roux, MI · 8:11 PM
Good night gents! Time for some pills and a slice of pie. Have a GREAT week all!