Please note that any links referenced in this recording can be found in the Prostate Cancer Forum. Log in top right.
We also welcome our Advisory Board Member, Allen Edel (@TallAllen) tonight to contribute his moderation.
Topics:
No CT or bone scans prior to Gleason 9 surgery; peritoneal implants; accessing darolutamide; tragic consequences of complementary medicine alone; positive darolutamide experience; treating advanced PCa without hormone therapy; Tru-beam for spot radiation; oligometastasis radiation; pros and cons of debulking the primary tumor; treatment after enzalutamide fails.
Chris O’Connor lost; access to pain meds; benefits of darolutamide; NIH – Bone biopsy experience, mutation analysis & CTC’s; CBD – hemp or marijuana?; failing Xytiga – AR V7?; darlutamide and AR V7; exercise and chemotherapy; lung nodules
Is it OK for PSA to stabilize in the 20’s?; debulking the Primary tumor and iterating metastatic cells; repeating bicalutamide use; anti-fatigue drugs; generic abiraterone; shingles vaccines; HERO trial for relugolix; switching LHRH drugs; monotherapy anti-androgen treatment; using Technitium99 scan for darolutamide; can your MSI change over time?; pembrolizumab for PCa; your doctor’s attitude to you and your treatment; separating designated resources in your final wishes.
To view links referenced in this recording, please visit our Prostate Cancer Forum
Through my attendance at HealtheVoices 2019, I had the good fortune to meet Andrew Schorr, the founder of Patient Power. In their own words…… Patient Power® is devoted to supporting cancer patients, care partners and other loved ones through education and advocacy – to get the right treatment at the right time working with the right healthcare team.
A couple of months later I was approached to do an interview with their Prostate Cancer Community Manager, Andrea Hutton that I just learned was published on their PCa page in October. You can watch for yourself by clicking on this link ; hopefully for our veterans, there won’t be too much new. And from my standpoint, it’s a great visual lesson in how to improve my interviewing technique!!
