Hi-Risk/Recurrent/Advanced PCa Video Chat, Aug 1, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: Good riddance to abi, but the prednisone’s “side effects” were useful (bn)
Topics Discussed
Urgent call for AnCan’ers to help review salvage guidelines — contact Rick; triumphant 0.01 PSA after a year of drug holiday — he doesn’t miss abi, but arthritis is flaring without the prednisone; osteoarthritis from treatment or just old age?; retrying Pluvicto after chemo and side effects are roaring back; blindsided by doc’s recommendation to stand down on treatment; too early for an FDG concurrence scan; as disease worsens, choose a hospice carefully; sky-high testosterone reading while he’s still half-asleep; ED and urinary incontinence — ask radonc or medonc?; terrifying nightmares on olaparib
Chat Log
Jim Marshall, Alexandria, VA · 6:40 PM
Diclofenac Sodium Topical Gel, 1%
AnCan – rick · 7:04 PM
michael.hofman@petermac.org. Dr. Michael Hoffman
AnCan – rick · 7:06 PM
Jerry there is a group that meets in Tucson … I just got a message from them. The group is not that good.
Alan Babcock · 7:22 PM
I have another meeting at 7:30. Until next week
Jim Marshall, Alexandria, VA · 7:46 PM
Jimmy – Top down on a bicycle, try it.
TonyFig · 7:48 PM
Jimmy, Maybe there is a correlation between men having morning erections and your testosterone being up in the morning
Jim Marshall, Alexandria, VA · 7:51 PM
Julian. You actually have EM – erectile MALFUNCTION.
AnCan – rick · 7:52 PM
WE HAVE A HARD STOP in 3 min.
Julian – Houston · 7:57 PM
Thanks guys for the advise! I have to make dinner for the wife.
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s pick: Bones to boners in a little under two hours. (bn)
Topics discussed
A skeleton key to bone strengtheners, plus recommendations on calcium supplements; fracture adds to blood concerns; DLL3 as the PSMA for neuroendocrine PCa; apalutamide might not be a Tweedledee; hot flashes arrive after Firmagon has left the party; you can’t split a quarterback; delayed dose opens chasm of indecision; haze to hunger to relief then back to haze — is it ADT?; penile injections move the needle (not painful, sex great); long or short ADT after salvage; we run an ED joke up the flagpole as a grizzly bear reminiscence escapes.
Chat log
Julian – Houston · 6:56 PM
Have to leave early today. Thanks!
Steve Roux – Elk Rapids, MI · 7:38 PM
Gotta Run – new rescue puppy needs my attention. Great meeting! Thanks for all the info!
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 27, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
WEBINAR this week … PARP-Inhibitors and their role treating Prostate Cancer. Who saw the FDA approval for Talapro + Xtandi this week? Hear one of the investigators talk about this combo on Thu June 29. Register at https://tinyurl.com/ancanparpwebinar
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s pick:Where next when standard treatments are behind you? (bn)
Topics discussed
Chance a risky trial hundreds of miles away?; think ahead before firing the last bullet; mixed reviews of Cancer Commons; “too old for a PSA test” and now metastatic; what’s “Pluvicto” in Canadian?; one man, two dueling prostate cancers; making it through Pluvicto; check for PSMA avidity before a pricey treatment; will Pluvicto last?; facing chemo after six lucky years on ADT; after success with triplet therapy, time for drug holiday?; new man starting Keytruda; bad cancer + low PSA?; shrinking the unshrinkable prostate; turned away at OHSU and seeking something comparable; magnesium for neutropenia; BAT is no home run; what counts as exercise?
Chat Log
Mark Finn · 7:06 PM
Rick – finishing up packing for camping trip. Will have to depart soon.
David Muslin · 7:07 PM
Have fun Mark Finn
Ben Nathanson · 7:19 PM
Pluvicto – generic “lutetium Lu 177 vipivotide tetraxetan” – formerly “Lu-177 PSMA-617”
Frank Fabish Columbus OH · 7:32 PM
Got to go guys. Thanks again for good info. see you next Monday.
David Muslin · 7:48 PM
Got to roll men. See y’all next week.
AnCan – rick · 7:49 PM
646-749-3129 222 583 973
Steve Schuler · 7:49 PM
I think my laptop needs a reboot
Steve Schuler · 7:50 PM
My question was really simple actually: any suggestions in the northwest for good med oncologists for second opinions?
Bob G · 7:50 PM
Gotta go. Fatigue kicking in.
Steve Schuler · 7:51 PM
Yes, I’ve tried both the ear buds and now the laptop microphone, and neither is working for the microphone
Steve Schuler · 7:53 PM
Washington, Oregon, or I am also looking now at CA (San Francisco). I am willing to travel some. I am in Seattle
AnCan – rick · 7:53 PM
I’ll ask ….
Julian – Houston · 7:54 PM
Go to go – see you next week!
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 13, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant & Telix
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s pick: Prostatectomy after 70. Also: Pluvicto wiped out 99% of his cancer — time for a jig! (bn)
Topics Discussed
Metformin’s faded glory in PCa treatment; grateful for heads-up on Xgeva with radium-223; statins and PCa — still anybody’s guess; darolutamide monotherapy might cut fatigue; curious about new hot-flash drug for women; experience with Onco360 pharmacy; when will white blood cells rebound from radiation; bike seats and PCa; seeing metastasis in lymph nodes that radiation skipped; dry mouth and depression overshadow wild Pluvicto success; too old for prostatectomy?; Keytruda and more Keytruda.
Chat Log
Steve in MI · 6:09 PM
Suttons Bay is nice; my wife has a few properties she manages up there. We get to Interlochen at least 2 or 3 times during the summer for concerts. Styx is the next one.
Steve in MI · 6:13 PM
There is a few up around here in the summer: Charlevoix, Fish Town, Elk Rapids. Ours is in August I think.
Julian – Houston · 6:18 PM
stopped taking because it made my bones ache!
Gary P · 6:20 PM
While not actually diabetic, I was put on Metformin after my blood sugar levels went up significantly on Abiraterone.
Julian – Houston · 6:24 PM
Same here, Gary. Took for awhile and my A1C came down.
AnCan – rick · 7:33 PM
“Patients received Pluvicto 7.4 GBq (200 mCi) every 6 weeks for up to a total of 6 doses plus BSoC or BSoC alone.”
BSoC = best standard of care
Tom Maloney · 7:34 PM
The recommended Pluvicto dose is 7.4 GBq (200 mCi) intravenously every 6 weeks for up to 6 doses, or until disease progression or unacceptable toxicity.
Tom Maloney · 7:34 PM
up to 6 doses, not requiring 6 doses.
AnCan – rick · 7:34 PM
The trials all gave 6 doses
Len Sierra · 7:36 PM
Tom, the dry mouth usually resolves by itself soon after your treatment is complete.
AnCan – rick · 7:38 PM
We do not know anyone who did less than 5 doses by choice. Doesn’t mean there aren’t any. However your doc is recommending you finish up.
AnCan – rick · 7:39 PM
We’ve seen less than 6 doses but only where blood counts or other markers have been compromised.
AnCan – rick · 7:45 PM
Xgeva = denosumab
Steve in MI · 7:52 PM
Keep coming back Spencer.
? · 7:52 PM
Thank you to everyone for excellent advise.
Joe (Dubois WY) · 7:59 PM
keytruda
Julian – Houston · 7:59 PM
Keytruda
Julian – Houston · 8:00 PM
Thanks guys. Another great session.
Hi-Risk/Recurrent/Advanced PCa Video Chat, May 23, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: Handcuffed by HMO, making the best of it. (bn)
Topics Discussed
Memory issues, but HMO won’t allow him darolutamide — try monotherapy abi?; tumors block TURP surgery, hoping ADT will ease surgeon’s job; AnCan pushes for better Orgovyx pricing; acupuncture and hot flashes; abi first, then enzalutamide — not the reverse; doing well on daro doublet after chemo; Orgovyx probably won’t thin the fog; mulling DEXA scan report; daro monotherapy addresses heart issue; filling the need for exercise with an e-bike; how much vitamin D?; grateful after switching to a GU oncologist; keep alert to side effects in Xgeva and Prolia; AnCan’s prostate cancer forum is back (https://ancan.org/forums); Embr Wave outdoors; landing an appointment with Oliver Sartor.
Chat Log
Harry Spila · 7:58 PM gotta go, take care everyone
AnCan – rick · 7:59 PM Happy riding!
Harry Spila · 8:00 PM 🚴
Mike Yancey – Oklahoma · 8:06 PM Gotta run
julian – houston · 8:06 PM great conversation, as always. Enjoy your Memorial Weekend!
