Hi-Risk/Recurrent/Advanced PCa Video Chat, May 15, 2023
AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix
AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://mailchi.mp/ancan/remembering-…
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/ Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/
Editor’s Pick: Controversial Death with Dignity discussion starts – and Keytruda shows up more than once at the back end … after passing Dude Wipes along the way! (rd)
Topics Discussed
Talking ‘Death with Dignity’ with AnCan Advocate; urologist refuses Provenge – get a GU med onc!; pros & cons of treating the primary; timing of RT; handling multiple QBs; Bx find no NEC; salvage RT commenced; clean up with Dude Wipes; brain fog/short term memory loss – drug and non-drug remedies; Flomax and brain fog; some Gents take just 2.5mg/daily prednisone with abi; Eligard & ukuleles; another Gent looks to pembro/Keytruda; proteomics; wean off Prolia; pembro vs chemo decision
Chat Log
Ben Nathanson sent · 5:14 PM As the End Nears: Dying with Metastatic Cancer https://join.compassionandchoices.org/a/end-nears-dying-metastatic-cancer Compassion & Choices https://www.compassionandchoices.org States where medical aid in dying is authorized, and dates when it took effect: Oregon 10/27/1997 Washington 3/5/2009 Montana 12/31/2009 Vermont 5/20/2013 California 6/9/2016 Colorado 12/16/2016 Washington, D.C. 2/18/2017 Hawai‘i 1/1/2019 New Jersey 8/1/2019 Maine 9/19/2019 New Mexico 6/20/2021
Joe Comanda (Philadelphia) sent · 5:21 PM I don’t want to cause trouble, but I am troubled by the advocacy of Compassionate Choices, formerly the Hemlock Society. I would hope that men would not take that way out.
Len Sierra sent · 5:23 PM Everyone has to make that decision for themselves. No one else should make it for them.
rd sent · 5:24 PM We think it’ s each person to his own… AnCan believes everyone has a choice, Joe.
Jim B sent · 5:36 PM Hi Bob, I just had a Pluvicto treatment this morning. No side effects so far but I’m sure that dry mouth, nausea and slight fatigue will continue. How is your WBC coming along?
Joe Gallo sent · 5:47 PM Genito Urinary (GU) Oncologist Dr. Eleni Efstathiou
John Madden & Meiying Hu (May) – Houston TX sent · 5:49 PM https://www.houstonmethodist.org/doctor/eleni-efstathiou/
sent · 5:49 PM Eleni Efstathiou, MD, PhD Genitourinary Medical Oncology, Medical Oncology
John Madden & Meiying Hu (May) – Houston TX sent · 6:15 PM Open/Ongoing: https://www.swog.org/clinical-trials/s1802
John A sent · 6:15 PM https://reference.medscape.com/medline/abstract/31082943?icd=login_success_email_match_norm
Henry sent · 6:15 PM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9173627/
John A sent · 6:15 PM kinda old
sent · 6:16 PM http://www.stampedetrial.org/participants/about-stampede
Henry sent · 6:19 PM https://www.sciencedirect.com/science/article/pii/S1047279723000042
Peter K sent · 6:37 PM I have had 3 med oncs for over a year now. 2 up to a year ago. They are all valuable and I keep them all informed and they all have vaulable input
rd sent · 6:38 PM MDA – maybe the best cancer hospital … but not the best prostate cancer hospital
Peter K sent · 6:42 PM They are doing MRidian SBRT with View Rayt in Michigan- low toxicity in trials
Henry sent · 6:56 PM https://dudeproducts.com/
John Madden & Meiying Hu (May) – Houston TX sent · 6:59 PM Lions Mane: https://www.amazon.com/dp/B09FD8C16B?psc=1&ref=ppx_yo2ov_dt_b_product_details
Frank Fabish Columbus OH sent · 7:04 PM Got to go guys. See you next week.
Jack sent · 7:05 PM Have to go. See you next time.
Bob G sent · 7:09 PM https://pubmed.ncbi.nlm.nih.gov/29971698/
Pat Martin sent · 7:15 PM I appreciate all you. You are great source of strength an encouragement. see you next Tuesday
Bob G sent · 7:23 PM Info on stopping Xgeva: https://www.myeloma.org/videos/it-safe-stop-xgeva-denosumab
sent · 7:32 PM Time to go. Thank you for the Good information.