Hi-Risk/Recurrent/Advanced PCa Video Chat, Nov 26, 2024

HAVE YOU COMPLETED THE ANCAN SURVEY??? 

We do a lot for you – here’s something you can do for AnCan. It’ll help us and yourself if you can take 7 minutes right now to complete our AnCan participant survey. Thanks… https://docs.google.com/forms/d/e/1FAIpQLSfw2B3rZTMWIPqTmzLYBl1CdN9qRJSpt0f72CoK6J00zllzWw/viewform.

MEDICARE RENEWAL – If you are comparing Traditional Medicare + Medigap to Medicare Advantage, please read this AnCan Blog Post: https://ancan.org/medicare-health-insurance-choices/
…and for more on Medicare drug costs in 2025 https://ancan.org/more-on-medicare-2025-drug-costs-for-2025/
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
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AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
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Editor’s Pick: He starts forgetting words in mid-sentence — is it his ADT? (bn)
Topics Discussed
Reminder to complete the AnCan survey — this includes those who watch our recordings!; entering “the most intense time of my 5 1/2 years with prostate cancer” as cancer recurs and chemo and bone radiation begin; 550 genes in his report — but not many will be actionable; close relatives have prostate cancer, but nothing shows on germline tests — perhaps it was a toxic exposure?; a colon cancer gene mutation is found to be driving his prostate cancer — does he have both?; bizarre insurance company denial has him scratching his head; don’t let VA paperwork stand in the way of a PSMA PET; platelet clumping in his blood tests isn’t likely to be disease-related; he starts forgetting words midsentence — is ADT to blame?; his doc restarts the ADT clock — this time with standard-of-care intensification; why CT and bone scan, but no PSMA PET?; doctors don’t talk to each other anymore, and patient care suffers.
Chat Log
Jim Marshall, Alexandria, VA · 6:36 PM
TCEs are known causes of Prostate. Cancer.    Jim
AnCan  – rick · 6:46 PM
MUTYH is the driver mutation that Joel had
AnCan  – rick · 6:50 PM
Pesticides adn Prostate Cancer  https://acsjournals.onlinelibrary.wiley.com/doi/abs/10.1002/cncr.35572?mc_cid=c1825f551a&mc_eid=838454d636
Jerry G, Brighton, MI · 7:19 PM
estradiol helps
Steve Roux, North Michigan · 7:24 PM
thanks! I’ll ask Dr. Fedak.
Steve  L · 7:54 PM
Thanks to all.  Happy Thanksgiving!
Steve  L · 8:01 PM
Orca in photo was taken from my boat .
Julian – Houston · 8:08 PM
Happy Thanksgiving to ALL!!!
Steve Roux, North Michigan · 8:09 PM
This group empowers us to be our own best advocate.
J. Ward · 8:09 PM
Thankful for AnCan.  Happy Thanksgiving, everyone!
Steve Roux, North Michigan · 8:10 PM
I need to sign off…..Tucker the rescue pup  and my wife require my attention. HAVE AN AWESOME THANKSGIVING DAY!