Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 17, 2025

by | Feb 20, 2025 | Cancer Resources, High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 17, 2025

(Apologies for late posting… still catching up from GU ASCO25: rd)
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
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AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
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Catch weaver, Jose Picayo speaking to AnCan’s Hannah Garrison in Solo Arts Heal about how his weaving has helped him and others heal. Next Wed, Feb 26th at 7.30 pm PACIFIC https://themarsh.org/soloartsheal

Editor’s Pick: Listen to Al L’s 30 yr survival story with a G5+4 (rd)

Topics Discussed

starting on Pluvicto; can a ctDNA test reveal disease – and how do you get it?; photon =proton; can you biopsy a rib – generally not; debulking the primary with radiation; spot RT to T10; do you have to give up alcohol on abi?; good small cell NE like markers.; 30 yr. 5+4 survivor tells his story!

Chat Log

Al L sent: 6:16 PM

biotene

AnCan – rick sent: 6:20 PM

Heh Gents… just back from SF – literally

Len Sierra sent: 6:20 PM Welcome back, Rick!

Jim Marshall, Alexandria, VA sent: 6:33 PM    Internet connect tonight is BAD!!!! Will catch all on the recording

Steve L sent: 6:34 PM   Compassionate Care Program If a patient is uninsured or is concerned about their ability to pay for Natera genetic testing, they can contact us at Tel:+1.650.489.9050 option 2 | oncologybilling@natera.com

Joel Blanchette, Reston, VA sent: 6:43 PM   Try unplugging your headphones

Wes – San Diego sent: 6:44 PM   Sorry, yes. Looks good now; question of if there is anything I do to rule out the rib, after an xray was not definitive in identifying an old break.

AnCan – rick sent: 6:57 PM   FDG PET scan, Axumin scan

Steve L sent: 7:14 PM   I understand that Abiraterone isn’t Chemo, however mine arrives in a bag labeled ” chemotherapy drug ”

Wes – San Diego sent: 7:25 PM    No, if a drug is not on a formulary, then deduction does not apply.

AnCan – rick sent: 7:26 PM   triagecancer.org Triage Health

Wes – San Diego sent: 7:26 PM    I found Blue Cross honors my 3 expensive drugs; medicare B does not.

Dr. Jeff sent: 7:26 PM   https://pmc.ncbi.nlm.nih.gov/articles/PMC11116681/ At times rib biopsy can be performed. (Ed: This citation is grossly misleading and should not be considered evidence that a rib Bx is possible in a fragile location: rd)

Len Sierra sent: 7:27 PM  Medicare B does not cover any drugs

Wes – San Diego sent: 7:27 PM   True, so it would be me adding B, D.

George Wesoloski sent: 7:29 PM    My Alt & AST are three times normal. Believe it is due to the Rheumatoid Arthritis drugs, Methotrexate & Arava. Developed a serious body itch & now on Claritin and Zantac for the itch & ceased the Arthritis drugs. Waiting for another blood test in a month.

AnCan – rick sent: 7:30 PM   As I said Dr. Jeff – anecdotally most docs will NOT biopsy a rib spot. Especially if it is round the front. It depends where the spot is. You posted a case study, so that is also anecdotal.

Len Sierra sent: 7:40 PM   Neuroendocrine biomarkers: Chromogranin A (CGA) and neuron-specific enolase (NSE) levels are biomarkers for NEPC. Also, synaptophysin positive. DLL3 (Delta-like Ligand 3) is positive in 76% of NEPC.

Dr. Jeff sent: 8:01 PM   sorry gotta go Thanks