Hi-Risk/Recurrent/Advanced PCa Video Chat, March 25, 2025

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostic.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

Editor’s pick: A visit from Dr. Paul Schellhammer, first diagnosed with PCa in 2000. (bn)

Topics Discussed

Since 2000, he’s had every treatment on offer, including estradiol since 2008, but not docetaxel — and VA now is letting him skip it and get Pluvicto; experts say PSMA whole-body SUV is an important predictor — but where is it in the reports?; he’s opted for brachy and surgery and orgovyx and hoping PSA falls soon; doublet vacation quickly brings less fatigue and more enthusiasm; Pluvicto seemed a dud, but then PSA started plummeting around the fourth treatment – though blood marrow took a hit, and some lingering dry mouth 9 months later; don’t stay on zoledronic acid too long — get off and go back on; be careful with darolutamide and certain statins; American Cancer Society can help with lodging if you travel to treatment; despite high-risk cancer, he’s getting only Lupron — and wants to know why; drug holiday began Sept 2023 and he’s still celebrating; chemo “much tougher than I even thought it was” — but PSA went from 325 to 0.82; darolutamide monotherapy works, but timing is everything; how do you get darolutamide monotherapy when it’s not in the guidelines?; bloody urine can appear 18 months or more after radiation treatment.

Chat Log

AnCan – rick · 6:12 PM
dr.john@ancan.org

Larry (Alaska) · 6:44 PM
Patches, gel are OK; but don’t forget injections which I find to be more convenient

AnCan – rick · 7:49 PM
https://www.cityofhope.org/alan-bryce