Hi-Risk/Recurrent/Advanced PrCa Video Chat, 3/16/26
Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/
Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/
Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Toss up between ANDROMEDA trial and dormant cancer discussion
Topics Discussed
T3b Gent needs clarification on his Bx before starting treatment; how much HT before discussing intermittent; starting doublet; Nagar suggests IMRT is better for this Gent; switching HT drugs may address castrate resistance; Cialis for nocturia – maybe; potential cardio-onc in Portland, OR; Kishan’s ANDROMEDA trial attractive to men with slow recurrence; can prostate cancer cells be dormant?… follow up post-recording suggests YES.
Chat
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AnCan – Rick sent: 4:58 PM
RJ – please call 877 582 7011 for HELP!!
Dial In 646 749 3129 #222 583 973
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Jeff Marchi – San Francisco sent: 5:23 PM
Rajni Sethi is a Radiation Oncologist
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Jim Marshall, Vet Support Grp. Moderato sent: 5:33 PM
Dr Jonathan Epstein. Advanced Uropathology of New York 700 Stewart Ave, Suite 101 Garden City, NY 11530 Hours: Monday-Friday 9:00AM – 6:00PM P: 516-760-2037 F: 516-200-3899 jepstein@imppllc.com
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Jeff Marchi – San Francisco sent: 5:36 PM
orgovyx
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Jeff Marchi – San Francisco sent: 5:38 PM
Ductal is very aggressive, is it really Ductal
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Jeff Marchi – San Francisco sent: 5:39 PM
that would call for 2nd
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Bob Schwartz, USN, Venice, FL. sent: 5:44 PM
Veterans, in Capt. Jim, We Trust!
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Jim Marshall, Vet Support Grp. Moderator sent: 5:45 PM
Jim Marshall, USAF(RET), 703-338-7341. veterans@ancan.org
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AnCan – Rick sent: 5:46 PM
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Jim Marshall, Vet Support Grp. Moderator sent: 5:49 PM
DEXA SCAN.
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Jeff Marchi – San Francisco sent: 5:50 PM
testosterone base test
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Jim Marshall, Vet Support Grp. Moderator sent: 5:50 PM
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RJ Smith (Seattle) sent: 6:10 PM
Folks, feel free to reach out offline on ADT holiday/intermittent at smithrj_99@hotmail.com or (206)384-2455.
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Alfredo in Wimberley sent: 6:12 PM
I must leave early, best regards to all.
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AnCan–John A sent: 6:12 PM
dr.john@ancan.org
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Jim Marshall, Vet Support Grp. Moderator sent: 6:14 PM
Washington DC just got the BIG Blow and the connection is shakey. Jim M.
In the Lupron drug info it says Lupron should be avoided because of the heart. SO…..what is an alternative……suggest Orgovyx. jim M
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RJ Smith (Seattle) sent: 6:21 PM
That seems universally the reason to switch.
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Jim Stewart Reno, NV sent: 6:28 PM
have to run get grandkids…good night all!!
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Joseph (Sean) Siry – Laguna Woods, CA. sent: 6:30 PM
is it darolutamide?
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AnCan – Rick sent: 6:34 PM
vibegron, mirbegron
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AnCan – Rick sent: 6:42 PM
This is the ANDROMEDA trial https://clinicaltrials.gov/study/NCT07150715?tab=study
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Thomas Matica Vancouver,WA sent: 6:44 PM
May be a GU cardiologist: Maros Ferencik OHSU Knight Cardiovascular Institute Cardiology Clinic, Beaverton, OR 1-503-494-1775
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Jeff Marchi – San Francisco sent: 6:49 PM
Actinium major problem with dry mouth
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Jeff Marchi – San Francisco sent: 6:50 PM
more according to studies
10-25%have severe dry mouth
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Larry (Alaska-Estradiol as ADT monotherapy) sent: 6:52 PM
Alpha particles simply have a shorter penetration than beta particles, so cellular damage is more limited to the locations the ligand binds the radioactive material. The problem with both is that the radioactive material is placed everywhere there is uptake of the ligand.
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Joseph (Sean) Siry – Laguna Woods, CA. sent: 6:52 PM
So the actinium treatment does not rely on knowing the precise location of the metastasis?
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Larry (Alaska-Estradiol as ADT monotherapy) sent: 6:53 PM
Joseph/Sean, both treatments (using ligands) bind to the same cells. The ligand (sort of) “knows” where to bind.
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Joseph (Sean) Siry – Laguna Woods, CA. sent: 6:59 PM
my Testosterone is in the 180 + level, would systemic treatment rule me out due to ADT is just started?
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Jeff Marchi – San Francisco sent: 7:14 PM
The article on dormant cells
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RJ Smith (Seattle) sent: 7:15 PM
In the 1/24 reminder: “Cancer dormancy… the silent, sleeping ‘DTC’ cells!”
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AnCan–John A sent: 7:16 PM
Dr Ferencik has a “special interest” in cardio-oncology.
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Bruce Schrimpf sent: 7:16 PM
Good seeing all of you! Learned a lot bu shutting up!
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Frank Ciambra sent: 7:17 PM
Good Night