Hi-Risk/Recurrent/Advanced PrCa Video Chat, 3/2/26
Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/
Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/
Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: AnCan’r considering AMG509 STEAP T-Cell engager; does IDC-P make you high risk?
Topics Discussed
Newbie needs GU MO and doublet; ADT and heart issues; BRCA2 germline Gent progresses after P; no evidence for doublet; long-timer needs to switch treatment; moving from Pluvicto to xaluritamig/ AMG509/ STEAP trial; supplemental E2 discussed by peer – insurance issues, gui9dance on E2 blood levels; IDC-P man on RT asks how much HT; with BCR, doubling time may be more significant guide to BCR than actual PSA level
Chat
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Jim Marshall, Vet Support Grp. Moderator sent: 6:33 PM
Genitourinary Medical Oncologist
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Steve Schuler (Seattle) sent: 7:05 PM
STRIKE-1 trial for KTX-2001
https://www.urologytimes.com/view/fda-greenlights-phase-1-trial-of-nsd2-inhibitor-in-mcrpc
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Bob Y — Los Angeles sent: 7:07 PM
Have to leave early. Thanks, all.
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Bruce Schrimpf sent: 7:08 PM
Nice meeting, but must leave. BDS
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Jim Stewart Reno, NV sent: 7:18 PM
have to go pick up grandkids, good night all and thanks for the comments!
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Steve Schuler (Seattle) sent: 7:25 PM
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AnCan – Rick sent: 7:27 PM
Joining from the air. No mic available. I just blogged the Estradiol conversation.
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AnCan – Rick sent: 7:36 PM
Kishan would say 6 months per his recent meta study
Show Tran the Kishan paper
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Jeff Marchi – San Francisco sent: 7:37 PM
has he had genetic testing? it can frequently be associated with genetic issues
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AnCan – Rick sent: 7:37 PM
12 months if you’re more aggressive.
Is Spratt the final author
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Steve Schuler (Seattle) sent: 7:40 PM
I just wrapped it up a month ago. Now I’m on nothing, no ADT either. I was on Lupron for 2 years, abiraterone also for 2 years, but started a year after the Lupron started (there’s a story there, but later), and then on Estradiol for most of the time I was on abiraterone. But now on nothing. For most of the E2, it was .05mg (50 microgram) patches 2 per week. So a box of 8 lasts you 4 weeks. With GoodRX, those were $13/box
A word about the dose level of the patches: that’s the estimated dose delivery of a patch per day. The amount of E2 in the patch itself is higher, something like 600 microgram is what I remember, but then it releases slowly at an ESTIMATED rate of 50. But that release rate is highly dependent on the amount of fat under the skin, etc. So your milage will vary
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Mark N sent: 7:44 PM
Thanks for the feed back!
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dan-s alexandria sent: 7:48 PM
thanks Jimmy
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Pierre D., Olean, NY sent: 7:52 PM
Thank you all for your input.
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Jeffrey G sent: 7:53 PM
We were in the 90s today. Ugh, warmest AZ winter i’ve ever been in. Still, gotta be grateful for warm weather and for a psa of 0.02…Adios
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Steve Schuler (Seattle) sent: 7:54 PM
I grade my energy on a curve