Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 9, 2025

UPCOMING PRESENTATIONS

MRI 2nd Opinions….. ProstateID solves the challenge It’s challenging. to get MRI 2nd Opinions… ProstateID solves it. Affordable & AI-validated Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Developer, Randall Jones, PhD explains the technology and its uses.

Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4

NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/

Hear John Maxwell on Solo Arts Heal https://youtu.be/UQuMUm6HHqU and buy Hammering Nails for AnCan fundraiser

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Ice hockey Newbie wants to consider intermittent hormone therapyrd)

Topics Discussed

Does an AUS interfree with RT?; hockey player want to consider IHT; urinary issues post RT; anti-morphing strategies; PSMA helps find possible salivary tumor; constipation pain from opiates; blood transfusion helps; osteopenia may warrant Prolia; is sleep apnea the cause of cachexic symptoms?; is cycling OK during RT?; mono Nubeqa working well; B12 and magnesiun for restless leg; John Maxwell on Solo Arts Heal;

Chat Log

• John Maxwell – Chicago sent: 3:11 PM

  Last week I was blessed to be interviewed by Hannah on Solo Healing Arts where I discussed my prostate cancer journey and lifelong journey as a poet and my book “Hammering Nails” Find the links to the Interview and to buy my book above. All net proceeds from the sale of my book during September 2025 will be donated to ANCAN.

• AnCan – rick sent: 3:39 PM

  PROMISE Test for germline/inherited mutations https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

• John M – Chicago sent: 3:47 PM

  I’m at the start of my ADT journey. I have been on Orgovyx for 6 months. I plan to stay on for the full 24 months. When I do stop taking Orgovyx how quickly does my testosterone return?

• AnCan – rick sent: 3:52 PM

  Dr. Russell Szmulewitz UofC GU MO – knows AnCan. https://www.uchicagomedicine.org/find-a-physician/physician/russell-szmulewitz

• Len Sierra sent: 3:59 PM

  John M — Guys on Orgovyx will recover T levels faster than those on Lupron/Eligard, etc. However, everyone is different and how fast your T levels recover will depend on your baseline T, how old you are, and how long you’ve been on Orgovyx.

• AnCan – rick sent: 4:01 PM

  John M …. the rule of thumb is twice the length of time you were on. It depends on age…. With orgo, it could well be shorter. It was shorter for me on Lupron – 9 mo. Should say the rule of thumb used to be…..

• Paul D in Little Rock sent: 4:40 PM

  Thanks everyone I have another meeting and have to sign off. See you again soon. I was able to sign up for the Promise tests, which are on the way. I appreciate the lead to that resource. Paul

• John G. sent: 4:45 PM

  https://www.drugs.com/mirtazapine.html  https://www.goodrx.com/conditions/weight-gain/appetite-stimulant

• John M – Chicago sent: 5:09 PM

• AnCan – rick sent: 5:10 PM

  CoQ10 for cramps    Theraworx for leg cramps

• AnCan Bill sent: 5:16 PM

  I had a Karate Sensei that swore by mustard for cramp relief. Like the kind of mustard packets you get at a fast food joint. He recommended sucking one down when students got a cramp. He kept them in the Dojo. I don’t know if it was just the power of suggestion but it seemed to work.