Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 1, 2025

by | Sep 2, 2025 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups, Uncategorized

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 1, 2025

UPCOMING PRESENTATION  MRI 2nd Opinions….. ProstateID solves the challenge

Getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID Join us on Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Founder and Developer, Randall Jones, PhD explains the technology and its uses. Hosted by AnCan Advisory Board Member and prostate cancer peer, Cdr. Mike Crosby *Sensitiviy and Specificity in the mid-90% range

… and hold Tuesday, Sept 30th 8 pm Eastern for Dr. Jonathan Epstein. Title TBD and webinar link to follow.

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room

Editor’s Pick: recurring themes – RT cystitis, HT fatigue and a young man with hi-volume 4+5 (rd)

Apologies for the profane expletive – it was aimed at T-mobile and Verizon who kept kicking me off the meeting. 

Topics Discussed

Young man in Germany Dx with high volume 4+5; what’s the story on ‘Azo’ to control serious bladder pain?; oligo-Mx man faces upcoming SBRT on T2 and lymph nodes; will CT worsen radiation cystitis?; adaptive hormone therapy is explained and considered; fatigue resuming daro after IHT; gynecomastia after breast reduction; fatigue from orgovyx

Chat Log

  • AnCan – rick sent: 5:22 PM

    MSKCC nomogram http://nomograms.mskcc.org/Prostate/index.aspx

  • AnCan – rick sent: 5:47 PM

    rd@ancan.org , ben@ancan.org, len@ancan.org

  • Dinu sent: 5:57 PM

    Thanks Jim

  • Lee Baylin, Baltimore sent: 6:05 PM

    Rick–AZO pain is Phenazopyridine

  • Bob Alvord sent: 6:22 PM

     always good to share our extensive research efforts. The only trial I saw, Phase I Knights trial from clinical trials dot gov I think.

  • Jeff Marchi – San Francisco sent: 6:26 PM

    Cancer risk from CT scan https://www.nih.gov/news-events/nih-research-matters/radiation-ct-scans-cancer-risks

  • Bob Alvord sent: 6:27 PM

    Thank you Barry. I’ll be on the look out for your information and thank you very much.

  • Lee Baylin, Baltimore sent: 6:28 PM

    Jeff, that’s the one.

  • David Muslin sent: 6:42 PM

    Is adaptive therapy for Hormone sensitive or resistance?

  • Julian – Houston sent: 6:43 PM

    Need to leave – Thanks for the great discussion!!

  • AnCan – rick sent: 6:43 PM

    I think either – but earlier the better.

  • AnCan – rick sent: 6:47 PM

    The Gatenby talk does not appear to have been posted yet. Here’s teh YouTube link. https://www.youtube.com/@CancerPatientLab/featured

  • AnCan – rick sent: 6:57 PM

    I’ll put it in the Chat Window.

  • Dinu sent: 6:57 PM

    Thanks Barry

  • AnCan – rick sent: 6:59 PM

    Activin-A …. made by cancer cells. Activin-A depletes muscles. Causes sarcopenia

  • Dinu sent: 6:59 PM

    Thanks everyone for the good advice. I have to drop off now and try to still catch some zzz. Lots of respect from Germany.

  • Alain Morin (Calgary) sent: 7:01 PM

    Thanks guys for a great meeting!

  • Barry Blomquist sent: 7:01 PM

    Great discussions, thank you all. Have to jump. Until next meeting.

  • AnCan – rick sent: 7:01 PM

    Sorry for the profanity, Gents. When I try to speak the platform breaks down. Vey slow up upload.

  • Bruce Schrimpf sent: 7:04 PM

    Thanks everyone for the discussion! I must leave. BDS

  • dan, alexandria sent: 7:07 PM

    Thanks all… I must leave also….

  • Thomas M sent: 7:14 PM

    Thanks for the informative meeting. Got to scoot.

  • Lee Baylin, Baltimore sent: 7:16 PM

    Good night gentlemen. Thanks,