Solo Arts Heal with Kelle Jolly

Solo Arts Heal with Kelle Jolly

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

 

Our special October guest was fabulous Kelle Jolly!

 

Kelle, “The Tennessee Ukulele Lady”, is an accomplished music entertainer and educator. She shares musical stories and songs from the South. Her repertoire includes traditional African American music of blues, jazz, spirituals, and folk.  Kelle is a graduate of South Carolina State University, where she studied Music Education with Concentrations in Voice. Kelle is the 2011 Mountain Soul Vocal competition winner and the Knoxville Community Shares 2013 Artist of the Year.

 

Kelle Jolly is the host of Jazz Jam, Knoxville’s only vocal jazz radio show, on WUOT 91.9FM. She is the founder of the Women in Jazz Jam Festival and Ukesphere of Knoxville. Kelle and her saxophonist husband, Will Boyd, have served as ambassadors of jazz from Tennessee to Japan. They are Knoxville MLK Commission Artist Award recipients. In 2021, the City of Knoxville proclaimed July 21st, “Kelle Jolly and Will Boyd” Day in Knoxville, TN. Kelle Jolly is currently a graduate student in the Communication and Storytelling Studies program at East Tennessee State University, pursuing her Master of Arts degree.

 

Kelle told personal stories of loss and self-care. Loss: A baby story normally ends with a baby. But what happens when it doesn’t? “Losing a baby changes the story you tell about yourself as a woman. I saw myself as a sad failure. Not only did I lose a baby, I lost the ability to ever be pregnant again. My pregnancy loss left me feeling hopeless until l I was asked to conceive something else.” Self-care: Every year, the Women in Jazz Jam Festival has a theme. “I can’t always tell if the theme is a result of the festival planning experience or if the festival planning is shaped by the theme. But the year of the ‘Hearts’ theme was too relevant and real.”

 

Watch here:

 

AnCan Art Friends – October 20, 2022 – Fall Trees

AnCan Art Friends – October 20, 2022 – Fall Trees

Art Class was back in session with Hannah teaching us about fall trees, including fun add ons to your fall escape like owls, squirrels, and a swing.

Anything goes here! While markers were the main medium, we heard about coffee, soy sauce, and gum as potential art supplies.

You’ll need

  • Paper
  • Your choice of medium – markers, pen, pencil, colored pencils, paint, watercolor pencils, anything that can mark.

This art class was also in loving honor of our AnCan art friend, George Degnon, and we are holding his family tightly in our hearts. May his memory always be a blessing.

Watch here:

 

October Art Class Tomorrow!

october art class

To all our art enthusiasts! We have yet another art class for you TOMORROW!!

10/20/22 8pm ET / 5pm PT

Our Summer of Art classes were such a huge hit that we just had to keep them going. Though we won’t be able to send everyone free supplies this time, at least we are using some of the things we’ve used in previous classes.

All you will need for this project tomorrow is paper and markers – that’s it! Browns, yellows, oranges, purples, reds, a blue or two. I happen to use the Crayola 20pc set. You can also use colored pencils, crayons, and anything else you can think of. There are really no set rules, though. We can help you work with what you have so you won’t be left in the dark.

Please use THIS LINK HERE to register. You’ll get the Zoom link tomorrow before class!

 

Hope to see you there!

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 17, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 17, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 17, 2022

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/

Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:   Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://www.gotomeet.me/AnswerCancer        Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://www.gotomeet.me/AnswerCancer

Editor’s Pick: Is it prostate or lung cancer?? Plus a great discussion on Bipolar Androgen Therapy. Read Drs. Denmeade and Antonarakins BAT Patient Guide https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9313844/ (rd)

Topics Discussed

After 5 yrs on abi, consider a change in Tx and docs; 1.8 PSA nadir on abi & TAK-700 may require another Tx; PSA post RP comes back at 1.79; Dr.E gets full marks … again; Spot RT complements chemo to reduce PSA; Procrit – pros/cons; BAT to follow disappointing Pluvicto results; adjuvant RT now vs direction from scans and early salvage RT; PCa or NSCLC – confusion reins; tips on starting chemo; time for an Axumin scan; handling sciatic pain while on blood thinners.

Chat Log

George Rovder Arlington VA (to Everyone): 5:27 PM: Genito-Urologic Medical Oncologist

AnCan – rick (to Organizer(s) Only): 5:43 PM: Len – what’s the TAK-700; remember from years ago

Ben Nathanson (to Organizer(s) Only): 5:43 PM: orteronel It worked, just not well enough to meet the goals

Len Sierra (to Organizer(s) Only): 5:43 PM: Yes, orteronel. It’s similar to Abi

AnCan Barniskis Room/John (to Organizer(s) Only): 5:43 PM: could he have been on placebo? was there a placebo arm?

Len Sierra (to Organizer(s) Only): 5:44 PM: I think he said he took it for 7 years, so doubtful that it was placebo.

Peter Kafka – MN (to Everyone): 5:45 PM: Under 60 group candidate

AnCan Barniskis Room/John (to Organizer(s) Only): 5:45 PM: Oh yeah–must have been given the option to continue after study ended.

Mark Thompson (to Everyone): 5:47 PM: You are not alone Aaron, I was diagnosed at the age of 47 also with bone mets.

AnCan – rick (to Ian G (AZ)): 6:15 PM: The field is moving so fast; that’s why you have to have a GU med onc!! Deciding on the best Tx is difficult.

Ian G (AZ) (Private): 6:21 PM: CCCN has a lot of MOs. Is there noone there that can fill Dr V’s shoes.

Frank Fabish Columbus OH (to Everyone): 6:22 PM: Got to go guys. Thanks for the discussions.

AnCan – rick (to Ian G (AZ)): 6:26 PM: You will need a specialty GU med onc, Ian. You are better off at a Center of Excellence not a community practitoner. Dr. V z”l was a rare exception. Tony Crispino may have confidence in someone in LV so check with him but I would strongly recommend going to a Center of Excellence.

Julian Morales – Houston (to Everyone): 6:34 PM: Need to leave – It’s been a long day for me. Will catch you next week!

Ian G (AZ) (Private): 6:35 PM: Rick, this guy at CCCN is a GU MO: Oscar B. Goodman, Jr., MD, PhD. He has really good reviews.

Carl Forman (to Everyone): 6:37 PM: Denmeade is at Johns Hopkins in Baltimore.

AnCan – rick (to Ian G (AZ)): 6:39 PM: Like I say, Ian, if me, I would go to a Center of Excellence and have them work with a local person.

Ian G (AZ) (Private): 6:45 PM: Thanks Rick, I will email Tony right away.

AnCan – rick (to Ian G (AZ)): 6:46 PM: If me, I would see Alan Bryce at Mayo along with a local person.

George A Southiere Jr (to Everyone): 6:51 PM: Good to see everyone. Very tired these days so need to sleep. Goodnight fellows

George Rovder Arlington VA (to Everyone): 6:52 PM: Thank you gents. Goodnight.

Cal Van Zee (to Everyone): 6:53 PM: I have notes from a Nov ’21 webinar on BAT. Mike Schweitzer at SCCA uses BAT and has research on it.

Joe Gallo (to Organizer(s) Only): 6:54 PM: FYI. 3 mos after stop Orgovyx T was at 122

AnCan – rick (to Everyone): 6:55 PM: https://ancan.org/bipolar-androgen-therapy-bat-sam-denmeade-md/

Ian G (AZ) (to Everyone): 6:57 PM: Thanks for the warm welcome. Been a long day. See you next time!

James Davidson (Hou) (to Everyone): 7:05 PM: Gotta go. Thank you, gentlemen.

Len Sierra (to Organizer(s) Only): 7:05 PM: Signing off, Gents. G’night. Great job, Herb.

Marty Wice (to Everyone): 7:13 PM: Thank you. Goodnight.

Mark Thompson (to Everyone): 7:22 PM: Thank you all for a great dissussion, getting tired. Good night.

Ben Nathanson (to Everyone): 7:31 PM: https://conquer-magazine.com/issues/2022/vol-8-no-4-august-2022/1896-simple-strategies-for-relieving-oral-pain-caused-by-cancer-treatment

TonyFig (to Everyone): 7:46 PM: Thanks for another great meeting.

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 11, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 11, 2022

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 per month prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s Pick: Drug holiday…but what about that rising testosterone? (bn)

Topics Discussed

Longtime friend remembers John Birch; a thank-you from John’s wife; two more passings — George Degnon and Dave Myers; Dr. E patient wonders what’s next after discontinuing abi; newcomer gets care downstate when Dr. Antonarakis is in his backyard; mysterious red marks following chemo; why is genetic testing useful?; jitters as testosterone rises on a drug holiday; dosing at mealtime to economize on abi; PSMA ordered but PSA is undetectable; helping a new BRCA patient get help at UCSF.

Chat Log

Dennis McGuire (to Everyone): 6:04 PM: she is on

AnCan – rick (to Everyone): 6:59 PM: Dr. Emanuel Antonarakis https://med.umn.edu/bio/hematology-oncology-and-transp/emmanuel-antonarakis

Jim B (to Everyone): 7:27 PM: Hi Bob, I think I am feeling much better today. BTW the chemo sores appeared almost immediately in my case and went away very soon after the steroid cream. The name of the cream is Clobetasol Propionate Cream.

Len Sierra (to Everyone): 7:37 PM: Low dose Abi reference:

Len Sierra (to Everyone): 7:37 PM: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5941614/

Herbert Geller (to Everyone): 8:00 PM: Gotta go. See you all on Monday.

AnCan – rick (to Organizer(s) Only): 8:00 PM: Great job tonight getting through everyone, Peter.

Len Sierra (to Everyone): 8:02 PM: Chromogranin A (CGA) and neuron-specific enolase (NSE) levels are biomarkers for NEPC. Also, they are synaptophysin positive. DLL3 (Delta-like Ligand 3) is positive in 76% of NEPC.

 

Solo Arts Heal with Hannah Garrison

Solo Arts Heal with Hannah Garrison

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

Our guest for September was one of our very own – Hannah Garrison!

Hannah, who lives with multiple sclerosis (MS), took a blank canvas and created a piece of visual art throughout the show as she is interviewed by Rick Davis, with questions from the audience.

San Antonio, Texas-based artist Hannah received her Bachelor of Fine Arts from the University of Texas at San Antonio in 2014. Undiagnosed symptoms of MS started creeping into her life, resulting in a few tumultuous years. Her symptoms accelerated in severity in the spring of 2017; that summer she received her diagnosis. An identity crisis ensued, and she found that using the arts as meditation and therapy helped her to not only heal but also to become a better caregiver.

Being honest about her diagnosis to complete strangers was not only effective medicine for her but for them as well. She now teaches visual arts to those who are chronically ill—to those living with cancer, MS, and more. Inside hospitals, she creates large window paintings for patients at their bedside and has witnessed the life-changing effects of art combined with an empathetic ear. She teaches AnCan’s virtual arts classes and has been virtually teaching the arts through various other organizations since 2020, during the height of the pandemic.

Watch here:

 

 

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 17, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 3, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 3, 2022

Dr. John jumps in with two feet for his debut … and floats beautifully!

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 per month prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s Pick: Best comes late – beware of SELF-MEDICATING; and is a clinical trial preferable to Standard of Care? (rd)

Topics Discussed

John Birch dies – tribute next week; urinary block leads to posible denovo Mx Dx; bladder and bowel control during RT; Jevtana produces bloating; tamoxifen to address gynacomastia; dropping LHRH in daro monotherapy to address fatigue; Pluvicto preferred to CAR-T trial; switching QBs confuses decision; beware of self medicating; similarly, different man – Dr. A endorses self medication decision; should a PSMA be obtained at 0.38; clinical trial offered in lieu of SoC

Chat Log

Pat Martin (to Everyone): 5:06 PM: Thanks much. I’ll have my second infusion next Friday, so I’ll be looking out for it. Thanks

David Muslin (to Everyone): 5:21 PM: https://www.uchealth.org/provider/paul-maroni-md-urology/

George Rovder, Arlington Virginia (to Everyone): 5:26 PM: https://www.mskcc.org/nomograms/prostate

AnCan – rick (to Everyone): 5:28 PM: Telix Illucix

George Rovder, Arlington Virginia (to Everyone): 5:29 PM: https://www.appliedradiology.com/articles/fda-approves-telix-s-psma-pet-imaging-agent    genitourinary (GU) medical oncologist

Joe Gallo (to Organizer(s) Only): 5:38 PM: PSMA is much more detailed than CT and Bone scans    Although very desirable Brachy (boost) w IMRTmany RadOnc dont have experience    Sometimes it is good to vent

Frank Fabish – Columbus OH (to Everyone): 6:01 PM: Got to leave early. Thanks guys. see you next week.

George Rovder, Arlington Virginia (to Everyone): 6:10 PM: Palliative care https://www.mayoclinic.org/tests-procedures/palliative-care/about/pac-20384637

Dennis McGuire (to Everyone): 6:24 PM: Regarding Darolutamide… will Medicare approve if patient is CRPC and is metastatic ? thx

Herbert Geller (to Everyone): 6:25 PM: I am not sure, but have had trouble getting it approved.

AnCan – rick (to Everyone): 6:26 PM: Seems like it is very much up to how hard your doc fights for you.

Len Sierra (to Everyone): 6:27 PM: This is a systematic review of treatment of gynacomastia in men with PCa: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0136094 The authors concluded that both RT and tamoxifen were effective, but tamoxifen was more effective.

Joe Gallo (to Everyone): 6:30 PM: Just checked. treatment to prevent gynecomastia 3 sessions radiation 12 Gy total

Mark Finn (to Everyone): 6:34 PM: got to go. Thanks for conversation.

Julian Morales – Houston (to Everyone): 6:46 PM: I see Dr E and she will engage you fully as well as monitor your condition as well as your blood work. I did go to other places but glad I found Dr. E!!!

Bob G. Philadelphia (to Everyone): 7:00 PM: Enzalutamide has 6 – 8 day half life; maybe moving right from Enza to Darolutamide, still have effects of Enza to contend with.

Harry (to Everyone): 7:00 PM: gotta go everyone. thanks for the feedback

Julian Morales – Houston (to Everyone): 7:01 PM: Need to leave. Thanks guys for another great session. see you next week. Buenos noches!

Alan Moskowitz – NJ (to Everyone): 7:01 PM: bye all

Jerry Pelfrey (to Everyone): 7:03 PM: have to leave computer is dying.

Mike Yancey-Oklahoma (to Everyone): 7:04 PM: Gotta run; early appointment tomorrow

Len Sierra (to Organizer(s) Only): 7:12 PM: Definitely.

Thomas Jacobsen – CO (to Everyone): 7:18 PM: Gotta go. Thanks to everyone for your feedback and patience with the conversation.

Bob G. Philadelphia (to Everyone): 7:26 PM: Time to go. Thanks & see you all next week. Be well.

George Rovder, Arlington Virginia (to Everyone): 7:30 PM: Thank you all. Good night.

How You Can Help Hurricane Devastation

Our hearts are with Florida and Puerto Rico as two hurricanes hit the same general area in less than two weeks. Puerto Rico is still reeling from the devastation caused by Cat 5 Hurricane Maria only a few years ago. Fiona, a Cat 4 hurricane, only left the area less than a week ago.

As Hurricane Ian continues its rampage in Florida, AnCan would like to send our heartfelt sympathies to anyone and everyone affected by both of these storms.

Millions of people are in need of immediate assistance – whether that’s in the form of water. food, rescue efforts, medical supplies, and so much more.

Whether or not you have family members and friends impacted by one or both hurricanes, we want to provide a list of some organizations you can donate to. Please consider helping in any way you can.

Hurricane Ian makes its way to the Carolinas next; We’ll update this list as needed.

Florida Relief:

Volunteer Florida’s Florida Disaster Fund Provides funding to smaller local organizations and non profits

Volunteer Florida’s Volunteer Signup Provides volunteer opportunities where they’re needed

Good360 Provides critical need items, such as water, blankets, tarps, and much more, for both short term and long term recovery needs

Team Rubicon Unites the skills and experiences of US Veterans with first responders and other hands-on professionals. Their mission includes relief before AND after a disaster

American Red Cross

Puerto Rico Relief:

Multiple Sclerosis Foundation – Donate here or text “FIONA” to 50155. This pertains mostly to our neighbors with Multiple Sclerosis living in Puerto Rico

Hispanic Federation Emergency relief services and supplies

Both Florida and Puerto Rico Relief: 

Convoy of Hope Assists residents with immediate needs for food and water. You can even volunteer to build critically important kits that will be given to those in disaster zones

World Central Kitchen – providing hot meals to US and the world

 

 

 

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 27, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 27, 2022

Our Sept. 28 Solo Arts Heal will feature AnCan arts instructor Hannah Garrison — she’ll paint on a canvas while she’s being interviewed on how she’s used her art to heal herself and heal others — should be a great show. The recording will be available afterward on our Solo Arts Heal page.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 per month prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s pick: Under-60 newcomer looks for views on triplet therapy after bad advice from urologist sees PSA jump from 2 to 15 to 33 to 111. (bn)

Topics discussed

Passing of AnCan participant Steve Saft; 53-year-old newcomer with small prostate tumor but widespread mets asks about triplet therapy; good news marks 3rd year of treatment; first Keytruda infusion goes smoothly; after years on darolutamide the pills are now “like lead sinkers”; feeling good on Orgovix and flying to meet Dr. E; check for up-to-date radiation technology before treatment; how much radiation for gynocomastia?; heavy rectal bleeding a year after therapy; 6th Pluvicto complete, rechallenge later?; PSMA avidity unclear — try Axumin?

Chat Log

AnCan – rick (to Organizer(s) Only): 6:03 PM: Len – John Madden is the guy we missed last week. I expect you realized.

Len Sierra (to Organizer(s) Only): 6:04 PM: yep

Joe Gallo (to Organizer(s) Only): 6:07 PM: I have to leave at 7 for a 50 Vets meeting

George Rovder, Arlington VA (to Everyone): 6:13 PM: https://obits.levinefuneral.com/stephen-r-saft-saft

Jim Ward (to Everyone): 6:15 PM: Could someone please spell Steve’s last name?

John Antonucci–CT (to Everyone): 6:15 PM: Saft

Jimmy Greenfield (to Everyone): 6:15 PM: Saft

Jim Ward (to Everyone): 6:15 PM: Thank you!

Julian Morales – Houston (to Everyone): 6:21 PM: Rest in peace Steve!

Joe Gallo (to Organizer(s) Only): 6:39 PM: Except for 2 days before PSA

AnCan – rick (to Everyone): 6:42 PM: https://www.houstonmethodist.org/doctor/eleni-efstathiou/?inm=vfad Dr. Eleni Efsathiou

Dennis Correia (to Everyone): 6:49 PM: A Dexa scan for bone density should also be considered.

Joe Gallo (to Organizer(s) Only): 6:56 PM: Off to the Vets.

John Madden (Hou) (to Everyone): 7:01 PM: Kwon (chemo 1st followed by 2nd gen) https://youtu.be/IEToOBuca1Q?t=652

TonyFig – NYS (to Everyone): 7:04 PM: There was some discussion about nutrient interaction with drugs. Here is a data base link as a tool to search potential interactions. I check it prior to using any vitamins/minerals/supplements against any prescribed drugs http://naturaldatabaseconsumer.therapeuticresearch.com/nd/Search.aspx?cs=KAISER~CEPDA&s=NDC&rli=1&ufpl=1

Ravi (to Everyone): 7:04 PM: so is there an interaction between keytruda and darulatamide

TonyFig – NYS (to Everyone): 7:18 PM: Under what general guidelines would triple therapy be suggested.

Peter Kafka – MN (to Everyone): 7:20 PM: No interaction btwn Daroludamide and Keytruda that I am aware of. I am being treated at the moment at the Univ. of MN and they are pretty thorogh

Herbert Geller (to Everyone): 7:22 PM: The ARASENS and PEACE-1 trials supported the use of triple therapy in newly diagnosed hormone-sensitive disease:
Smith MR, Hussain M, Saad F, Fizazi K, Sternberg CN, Crawford ED, Kopyltsov E, Park CH, Alekseev B, Montesa-Pino Á, Ye D, Parnis F, Cruz F, Tammela TLJ, Suzuki H, Utriainen T, Fu C, Uemura M, Méndez-Vidal MJ, Maughan BL, Joensuu H, Thiele S, Li R, Kuss I, Tombal B; ARASENS Trial Investigators. Darolutamide and Survival in Metastatic, Hormone-Sensitive Prostate Cancer. N Engl J Med. 2022 Mar 24;386(12):1132-1142. doi: 10.1056/NEJMoa2119115. Epub 2022 Feb 17. PMID: 35179323.

Herbert Geller (to Everyone): 7:23 PM: Fizazi K, Foulon S, Carles J, Roubaud G, McDermott R, Fléchon A, Tombal B, Supiot S, Berthold D, Ronchin P, Kacso G, Gravis G, Calabro F, Berdah JF, Hasbini A, Silva M, Thiery-Vuillemin A, Latorzeff I, Mourey L, Laguerre B, Abadie-Lacourtoisie S, Martin E, El Kouri C, Escande A, Rosello A, Magne N, Schlurmann F, Priou F, Chand-Fouche ME, Freixa SV, Jamaluddin M, Rieger I, Bossi A; PEACE-1 investigators. Abiraterone plus prednisone added to androgen deprivation therapy and docetaxel in de novo metastatic castration-sensitive prostate cancer (PEACE-1): a multicentre, open-label, randomised, phase 3 study with a 2 × 2 factorial design. Lancet. 2022 Apr 30;399(10336):1695-1707. doi: 10.1016/S0140-6736(22)00367-1. Epub 2022 Apr 8. PMID: 35405085.

Ravi (to Everyone): 7:32 PM: There was a researcher who actually spoke to this group about using estrogen

AnCan – rick (to Everyone): 7:33 PM: Webinar w. Wassersug https://ancan.org/estrogen-based-hormone-therapy-treating-prostate-cancer/

Herbert Geller (to Everyone): 7:34 PM: Tamoxifen — Tamoxifen can be taken along with the hormonal anti-prostate cancer treatment (androgen deprivation or antiandrogen monotherapy). Tamoxifen must be taken every day for the duration of antiandrogen treatment. In one study, only 8 percent of men who took an antiandrogen plus tamoxifen developed gynecomastia (compared with 68 percent of men who took the antiandrogen alone) [2].

Herbert Geller (to Everyone): 7:35 PM: Gynecomastia that has already developed can be treated with higher radiation doses and may improve pain. However, when given after breasts have already developed, radiation is not very effective at reducing breast size.

Alan Babcock (to Everyone): 7:50 PM: I must go. See y’all next week.

AnCan – rick (to Organizer(s) Only): 7:53 PM: You have until 5.15 Len

Len Sierra (to Organizer(s) Only): 7:54 PM: Oh, ok, I thought we had to quit by 5pm

Frank Fabish – Columbus OH (to Everyone): 7:55 PM: Got to go guys. Great conversations. RIP Steven.

AnCan – rick (to Organizer(s) Only): 7:55 PM: The next group starts at 5.30 pm

AnCan – rick (to Organizer(s) Only): 8:01 PM: Same lab??

Peter Kafka – MN (to Everyone): 8:02 PM: psma scan?

AnCan – rick (to Everyone): 8:03 PM: D. Jack does not show on PSMA …. we don’t know if he’s avid

Norm Pollock (to Everyone): 8:07 PM: can you spell that scan

John Madden (Hou) (to Everyone): 8:07 PM: Mei saw this article, super early, isn’t even peer-reviewed yet, but this guy claims to be working on a test materially more accurate than psma, ..looks promising but probably pretty far off: https://www.eurekalert.org/news-releases/947867

Len Sierra (to Everyone): 8:08 PM: Norm, I think you want the spelling of Axumin.

Norm Pollock (to Everyone): 8:08 PM: thanks

Herbert Geller (to Organizer(s) Only): 8:09 PM: Sorry guys, gotta eat. See you next week.

Herbert Geller (to Everyone): 8:10 PM: See you next week.

David Muslin (to Everyone): 8:10 PM: Got to go men. See you next Monday

Jeff Wood (to Everyone): 8:12 PM: Got to go, goodnight

Julian Morales – Houston (to Everyone): 8:13 PM: see you guys next week!

AnCan – rick (to Everyone): 8:14 PM: https://ramparthealth.com

Peter Kafka – MN (to Everyone): 8:15 PM: Good night. Good meeting Len.

Jack (to Everyone): 8:19 PM: Www.clinicaltrials.gov/ct2/show/NCT04713371

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 17, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 19, 2022

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 19, 2022

Are you a Vet ? – Join AnCan’s new Vet’s group to help best navigate your healthcare. It’s not about your disease – it’s about getting the best care, bennies and allowances. So please invite other Vets and Care Partners – no matter gender, condtion, or where they get care. Read more at https://ancan.org/veterans/ . Next meeting Thu, Sep 22 , free, drop-in – https://www.gotomeet.me/AnswerCancer

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 per month prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s Pick: Mental health is much on AnCan’s mind right now. It’s highlighted this week by the anxiety suffered by an older gent. (rd)

Topics Discussed

Possible recurrence needs more skilled provider; denovo Mx w. no primary inervention requires a GU med onc; early report post testicualr surgery; short report on NY conference; PIK3CA; MSI-H makes gent a candidate for Keytruda; Gen. Joel needs a new QB; mice and purple tomatoes; treating gynacomastia but how much RT??; slow, creeping PSA gives rise to anxiety in older gent; is spinal pain cancer, asks long term, younger Mx gent?; Pluvicto only holds so what’s next – Jevtana?

Chat Log

Jeff Marchi, San Francisco (Private): 5:07 PM: my brother gene has been given Casodex 2 days before his first Lupron shot. isn’t 14 days the standard?

AnCan – rick (to Jeff Marchi, San Francisco): 5:10 PM: 10-15 days

Jeff Marchi, San Francisco (Private): 5:11 PM: thanks

Herbert Geller (to Everyone): 5:20 PM: Genitourinary Medical Oncologist They deal with prostate, bladder, etc.

Joe Gallo (to Organizer(s) Only): 5:21 PM: Should have had an MRI for a targeted rather than a standard BX.

Len Sierra (to Organizer(s) Only): 5:22 PM: True, Joe.

Pat Martin (to Everyone): 5:25 PM: Genetic testing?

Len Sierra (to Organizer(s) Only): 5:26 PM: This is unbelievable. At the UT website for GU oncology this is what they say: Our team treats the following conditions: (Hint – No mention of Prostate Cancer) Bladder Kidney Penis Testis Ureter Urethra

Herbert Geller (to Organizer(s) Only): 5:26 PM: Great!

Joe Gallo (to Organizer(s) Only): 5:26 PM: Weird

AnCan – rick (to Organizer(s) Only): 5:29 PM: Vanderbilt GU https://www.vanderbilthealth.com/program/urological-cancers#radiation-oncologists

David Muslin (to Everyone): 5:45 PM: Dr. Scott Herbert MD – Hematology & Oncology –

George Rovder, Arlington VA (to Everyone): 5:45 PM: https://www.christushealth.org/find-a-doctor/scott-herbert-40870

AnCan – rick (to Everyone): 5:50 PM: GU med onc = genitourinary medical oncologist

Julian Morales – Houston (to Everyone): 5:54 PM: Dr Eleni Efstathiou at Houston Methodist

TonyFig – NYS (Private): 5:58 PM: Who was the doctor at M D Anderson you suggested?

AnCan – rick (to TonyFig – NYS): 5:59 PM: Paul Corn

AnCan – rick (to Organizer(s) Only): 6:00 PM: who produced the conference?

Len Sierra (to Organizer(s) Only): 6:02 PM: NY Presbyterian, Weill Cornell and MSK.

Len Sierra (to Organizer(s) Only): 6:10 PM: PIK3/AKT inhibitor drug in development is ipatasertib.

AnCan – rick (to Organizer(s) Only): 6:11 PM: that’s it!!!

Pat Martin (to Everyone): 6:19 PM: Thanks for the input. Have to run

George Rovder, Arlington VA (to Everyone): 6:22 PM: https://www.inova.org/doctors/joshua-m-allen-md

AnCan – rick (to Everyone): 6:30 PM: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)00580-8/fulltext ipatasertib for P1K3CA ?…. also PTEN

George Rovder, Arlington VA (to Everyone): 6:36 PM: https://www.inova.org/doctors/jeanny-b-aragon-ching-md

Mike Yancey (to Organizer(s) Only): 6:44 PM: Early morning doc appointment, so gotta run. Thanks for another great call and discussion AnCan – rick (to George Rovder, Arlington VA): 6:45 PM: If I had to see a doc at Innova, it would be her. George Rovder, Arlington VA (to Everyone): 6:46 PM: Thanks Rick. Good if it’s a go with Dr. E. If not she’s local and more experienced than Joshua Allen. AnCan – rick (to George Rovder, Arlington VA): 6:46 PM: It’s always tough to switch docs within a practice. George Rovder, Arlington VA (Private): 6:47 PM: Of course. Richard Cramond – Oakton, VA (to Everyone): 7:06 PM: I have to go David Muslin (to Everyone): 7:16 PM: What about Dr. O? Julian Morales – Houston (to Everyone): 7:16 PM: Need to drop off. These discussions are only getting better!!! Ben Nathanson (to Organizer(s) Only): 7:18 PM: Sorry, must go — see you all next week Joe Gallo (to Everyone): 7:21 PM: David. 3 sessions 12Gy Mark Thompson (to Everyone): 7:38 PM: Thank you all. George Rovder, Arlington VA (to Everyone): 7:39 PM: Happy New Year. George Rovder, Arlington VA (to Everyone): 7:39 PM: Thanks to all.