AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Unpredictable & outstanding response to surgery for G4+5 man
Topics Discussed
Is Metastasis Directed Therapy right for me; G4+5 Gent has unpredictable & outstanding response to surgery; did his MSKCC GU MO really clock this Gent was taking abi w/o prednisone?; good response to ‘triplet’ post Pluvicto, but for how long then what next… alpha RLT?; is G4+5 hi-volume denovo Mx man ready for IHT after 18 months? what about debulking?; CARIS has good webinar on CHIP mutations; muscle pain from ADT; don’t just call, put it in your patient portal; Dr. Jack doesn’t favor ibuprofen
Chat Log
Bob McHugh sent: 3:37 PM
Curious to know who did the surgery … What about side effects, if I may ask? Please remind RD that there is no government work right nowL LOL
Steve – My respone is a bit complicated. If you’re interested, send me you email.
Julian – Houston sent: 4:00 PM
Need to leave early. Thanks again!!!
Steven T sent: 4:27 PM
Thanks everyone. Have a good night.
AnCan–John A sent: 4:36 PM
i have always been uncomfortable that RT wasn’t part of his treatment plan. I think he’s undertreated, though psa is .02. so I’m not happy about deintensifying
J. Ward sent: 4:42 PM
Need to leave early. Thanks, all!!
dan- no time needed tonight sent: 4:48 PM
Thanks all… another good session
AnCan – rick sent: 4:54 PM
Theraworx
Bruce Schrimpf sent: 5:03 PM
I will offer a prayer for Mr. Mason.
5Nice being with you all and thanks for the good imformation!
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 21, 5.30 pm Eastern.
Sign up at https://ancan.org/contact-us/
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: One Gent rechallenges Pluvicto… another follows rechallenge with a ‘triplet’.
Topics Discussed
Addressing recurrence after focal tx (IRE) 10 yrs ago; new GU MO in northern New Jersey; how much adjuvant doublet HT is needed; another treatment line with triplet… abi+carbo+docetaxel; blood thinners; rechallenging Pluvicto is largely well tolerated; look at blood count numbers as a whole; nutrition… how about chicken?; how far ahead of RT should adjuvant HT start?
Steve L sent: 6:25 PM I was recently taken off Eliquis and but back on 81mg aspirin.
Jim Marshall, Veteran, Alexandria, VA sent: 6:26 PM Abi can affect the QT & QTc elongation time which I have when I get a EKG. Am also on Pradaxa for AFib. Pradaxa =. Dabigatran Etexilate
Jim Marshall, Veteran, Alexandria, VA sent: 6:38 PM Hey Jersey Mike has TUNA Subs!!!!
Jeff Marchi – San Francisco sent: 6:44 PM peter Kafka had 2 pluvicto treatments and his PSA went to .04 after a lot of hot spots in a PSMA pet. stopped at 2 sessions it was so successful
Julian – Houston sent: 6:45 PM Another wonderful conversation! Good Night all!!!
Bruce Schrimpf sent: 6:48 PM Great meeting! Thanks to all!
AnCan–John A sent: 6:57 PM Anticancer Lifestyle website has nutrition information I think is reliable. https://anticancerlifestyle.org/
Jeff Marchi – San Francisco sent: 6:59 PM chicken articles from National Cancer institute and NIH
Richard B, Silver Spring, MD sent: 7:02 PM I need to step away for the evening. Thanks to everyone for their insightful commentary it was beneficial . Take care
Bruce Schrimpf sent: 7:06 PM I have gotten all sorts of information about chicken and chicken eggs. It has more to do with how the chicken is grown and prepared. I eat my eggs poached, never fried. I eat my chicken baked and hopefully raised without antibiotics or growth hormones. I love fried and broasted (pressurized deep frying) but almost ever eat it. BDS
Alfredo in Wimberley sent: 7:09 PM Thank You. and Good Night!
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 15, 2025
UPCOMING PRESENTATION…Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern! “Interpreting Prostate Needle Biopsies in Today’s World” He’ll discuss Bx from early AS to advanced Pr Ca inc. AI – with plenty of time for Q&A. Register at https://ow.ly/PpoX50WVsJ4
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14. Sign up at https://ancan.org/contact-us/
Hear John Maxwell on Solo Arts Heal https://youtu.be/UQuMUm6HHqU and buy Hammering Nails for AnCan’s fundraiser https://www.amazon.com/Hammering-Nails-Poems-strange-topics/dp/B0BNJHYVG3?mc_cid=8e4adc6969&mc_eid=838454d636
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine. Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Whether old or young, consider carefully before opting for surgery with hi-risk disease (rd)
Topics Discussed
Older gent who did surgery now faces MDT, salvage RT and HT; contrast an under 50 gent who did surgery and lso needs salvage RT; and another 4+5 younger man debating RP; chemo resulted in pleural effusion damage; hearing loss and abi??; Novartis re-ups with 12 mos addtional Pluvicto; PSMA shows slight increase in tumor size and L3 met for our Mod; something else cud be going on beyond the prostate cancer
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 1, 2025
UPCOMING PRESENTATION MRI 2nd Opinions….. ProstateID solves the challenge
Getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID Join us on Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Roomhttps://www.gotomeet.me/AnswerCancer Founder and Developer, Randall Jones, PhD explains the technology and its uses. Hosted by AnCan Advisory Board Member and prostate cancer peer, Cdr. Mike Crosby *Sensitiviy and Specificity in the mid-90% range
… and hold Tuesday, Sept 30th 8 pm Eastern for Dr. Jonathan Epstein. Title TBD and webinar link to follow.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ 8.00 pm Eastern Schmier Room
Editor’s Pick: recurring themes – RT cystitis, HT fatigue and a young man with hi-volume 4+5 (rd)
Apologies for the profane expletive – it was aimed at T-mobile and Verizon who kept kicking me off the meeting.
Topics Discussed
Young man in Germany Dx with high volume 4+5; what’s the story on ‘Azo’ to control serious bladder pain?; oligo-Mx man faces upcoming SBRT on T2 and lymph nodes; will CT worsen radiation cystitis?; adaptive hormone therapy is explained and considered; fatigue resuming daro after IHT; gynecomastia after breast reduction; fatigue from orgovyx
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 18, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: Confirm PSMA signs in esophagus are prostate cancer before starting hormone therapy (rd)
Topics Discussed
Active and healthy 85 yr old asks how to best manage recurrence; bladder neck involvement from surgery may complicate matters; Pluvicto in store fo foamy gland Gent; addressing neuropathy; waiting on test results to confirm small cell trial; anxiety is crippling; blood thinners may explain RT cystitis/proctitis; starting salvage RT; addressing osteoporosis during advanced treatment; RB mutation may invoke adtional chemo agent; check out PSMA signs in esophagus before starting HT for PrCa; following recurrence up to PSA of 1.0; holding a coupl eof Pluvicto sessions in reserve??
Thanks gents for another excellent group mtg… I have to check-out now.
Alain sent: 6:57 PM
I have to go guys, many thanks for a great meeting, I can present my update next time.
Gary V Portland, Oregon sent: 6:59 PM
Jeff thanks for all the suggestions these last 2+years .. You gave me the strength to fight to get Nubeqa and Orgovyx and you tied me up with AnCan.. you made a difference
Ed L sent: 7:11 PM
Thanks for the advice. Good night all time for bed.
