Webinar: Managing Your Medical Team

Webinar: Managing Your Medical Team

On August 31st, we had the utmost pleasure having an all-star line up of wonderful health care members of all different specialties to come together and discuss being part of a team, including how patients and care partners can work together!

 

With the wonderful Dr. BJ Miller (Palliative Care specialist, Co-founder Mettle Health, and AnCan Advisory Board Member) who you may know from his multi-million viewed TED Talk and Netflix documentary End Gamemoderated the conversation.

 

On our panel we had Ladybird Morgan, RN, MSW (Mettle Health, executive director and co-founder Humane Prison Hospice Project), Dr. Aaron Boster (Neurologist, MS expert, The Boster Center for Multiple Sclerosis), Dr. Pamela Munster (Oncologist, UCSF Helen Diller Family Comprehensive Cancer Center), and Karen Schanche, LCSW (psychotherapist).

 

You’ll hear open and honest dialogue, and great answers to questions from our audience.

 

Watch this amazing webinar here:

 

Special thanks to Myovant Sciences – Pfizer and Foundation Medicine for sponsoring this webinar.

 

 

For information on our peer-led video chat VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.

Jerry Deans on Walking in the Wilderness

Jerry Deans on Walking in the Wilderness

We are so grateful to have Jerry Deans on our Advisory board here at AnCan. His book Lost But Not Forgotten: How Wilderness Experiences Can Transform Your Life, is just of the few days he and his wife Patsi turn pain into purpose.

Jerry was recently on the REimagine podcast, which you can listen to by clicking here.

Then, Patsi joined Jerry on another of REimagine episodes, which you can listen to by clicking here.

You’ll hear about faith, grief, and how families go through trials and tribulations.

We highly recommend listening to both, and know you will find them inspiring and uplifting!

Solo Arts Heal with Michael Bihovsky

Solo Arts Heal with Michael Bihovsky

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On July 28th, we had the pleasure of having Michael Bihovsky!

Michael shared his award-winning film and musical theater works, ranging from Les Mis parodies to full musicals about neuroplasticity to his brand new music video, Paperweight, which documents the COVID-19 pandemic experience through the lens of disability. Through this wide range of creations, Michael demonstrated how he has created music and art whose poignancy (and comedy) shines through not merely despite his struggles with the connective tissue disorder Ehlers-Danlos Syndrome, but because of those struggles.

Watch this incredible performance here:

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.

Solo Arts Heal with Stephanie Weisman

Solo Arts Heal with Stephanie Weisman

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On June 23rd, we had the pleasure of having Stephanie Weisman!

Stephanie is Artistic Director and Founder of The Marsh, and has been personally touched by her own and loved ones’ cancer experiences.

June’s Solo Arts Heal was the grand premiere of “Stephanie’s Tidbits on Living While Maybe Dying“. This solo performance short is focused on Cancer Victim/Survivor PTSD (post-traumatic stress disorder). It explores what recovery means when the outlook is unpredictable, And how one copes, both at survival and creative levels, with the stress of cancer, its treatment and moving beyond.

Watch this incredible performance here:

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.

Webinar: Managing Your Medical Team

Webinar: Advocating for Rare Diseases

On June 30th, we hosted a fascinating and informative webinar titled “Advocating for Rare Diseases“.

We had Katelyn Laws (Rare Disease Legislative Advocates Program Coordinator) give a great outline of what advocacy is, what types of advocacy there are, and how to do it. AnCan’s Sarcoidosis virtual support group moderator Cathleen Terrano moderated and sparked fascinating conversation with our panelists Ritchie Johnson (Renal Medullary Carcinoma), Charles Mickles (Young Onset Parkinson’s Disease), and Trina Massey Davis (Sarcoidosis).

I had the pleasure of jumping in for the Q&A segment, which was a wonderful (and real!) discussion many topics, such as discouragement when advocating, how to write out your story, and more.

Watch this phenomenal presentation here:

 

Special thanks to Myovant Sciences – Pfizer, and Foundation Medicine for sponsoring this webinar.

 

 

 

To view the slides from this webinar, click here.

For information on our peer-led video chat VIRTUAL SUPPORT GROUPS, click here.

To SIGN UP for the Group or any other of our AnCan Virtual Support groups, visit our Contact Us page.