Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 25, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 25, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 25, 2023

AnCan is grateful to the following sponsors for making this recording posssible:
Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://mailchi.mp/ancan/remembering-herbert-geller?e=838454d636

WEBINAR RECORDING: What is a Pelvic Floor Physical Therapist – & why you need one
https://ancan.org/webinar-what-is-a-p…

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern
https://ancan.org/men-speaking-freely/
Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: After surgery, 15% of prostate beds are…what, exactly? (bn)

Topics Discussed

Is PSA uptick to 0.155 ripe for PSMA PET?; Keytruda patience paying off; the sweat is real as he sweats out a decision on longer ADT; bad liver enzymes on Pluvicto plus apalutamide — whodunit?; invisible on PSMA PET, he’s starting darolutamide and hoping for the best; how loved ones benefit from your germline test; doubting and defending murky claim that “15% of recurrence is in prostate bed”; PSA uptick is tiny but he hopes to be proactive; docs disagree on more radiation after PSA rise; getting genetic testing in Canada.

Chat Log

AnCan- rick · 6:38 PM Dr. Channing Paller https://www.hopkinsmedicine.org/profiles/details/channing-paller

AnCan- rick · 6:42 PM AnCan’s link for Promise https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

Erwin Zoch · 7:17 PM I’m not sure if this is applicable to the question re. recurrence in the prostate bed, but my recurrence is currently confined to the prostate gland per PSMA PET and MRI scans.

Erwin Zoch · 7:22 PM Thanks for the info. I have to leave for an appointment.

Stan Friedman· 7:42 PM Good night, everyone. It’s my birthday today and have a dinner date with my wife.

AnCan- rick · 7:47 PM Mark – here’s Schweizer’s presentation https://ancan.org/special-presentation-meds-a-potential-new-path-to-keep-men-on-as/

Mark Baldridge (Seattle area) · 7:48 PM Thank You

AnCan- rick · 8:00 PM Dr. Vapiwala https://www.med.upenn.edu/apps/faculty/index.php/g333/p2009716

Henry · 8:02 PM Regarding Allen C., did I hear correctly that a biopsy is expected? If so, could a genomic analysis drive tx decisions?

AnCan- rick · 8:03 PM Zelefsky http://www.mskcc.org/cancer-care/doctor/michael-zelefsky

AnCan- rick · 8:17 PM https://www.foundationmedicine.ca/

AnCan- rick · 8:19 PM 888-650-4835

Julian – Houston · 8:20 PM Thanks for the discussion.

AnCan Friends Art Class – April Edition!

Hello friends! In case you missed April’s AnCan Friends Art Class, we wanted to share the recording with our amazing community. This project uses both crayons and watercolors for a crayon wax resist effect! Check it out below:

 

 

You’ll need crayons, watercolors, mixed media paper or watercolor paper, and either a round brush or a flat brush. I happened to use a size # 8 round brush.

In case you’re having trouble figuring out what colors to use, you’ll see a few different examples of paintings I’ve done in the past. Mostly I just had fun experimenting with the colors, and I hope you can do the same, too! We’re always so proud of the work that comes out of this class. Happy painting!!!

If you’d like to see past artworks from past art classes, check out the gallery here

Hannah,

AnCan Art Class Instructor

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 25, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 11, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 11, 2023

AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://mailchi.mp/ancan/remembering-herbert-geller?e=838454d636

WEBINAR RECORDING: What is a Pelvic Floor Physical Therapist – & why you need one https://ancan.org/webinar-what-is-a-p…

All AnCan’s groups are free and drop-in … join us in person sometime!      You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/     Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/            Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: We are all devastated aboout Herb GRHS – it didn’t have to be this way!

Topics Discussed

Remembering Herbie; another octogenarian with mystery mets; man with a 7.5 Gleason(???) does well on recurrence; community oncologist provides sub-standard care; capaversitib trial failing – sequencing needed; chemo drops nadir – and more sequencing needed; is 8 months ADT enough for early salvage RT?; PSA drops and tumors shrink except for the new one!; Next Generation Somatic Sequencing IS available if your doc says so; monotherapy darolutamide does the trick; exercise + anxietyDr. S accepts our man and orders HT; PROMISE is the path of least resistance.

Chat Log

CF sent · 5:19 PM We will miss him.

rd sent · 5:20 PM Thank you for observing the silence. Herb details …. Hope you can open this …. https://mailchi.mp/ancan/remembering-herbert-geller?e=[UNIQID]

AnCan- rick sent · 5:23 PM Sponsors Bayer, Pfizer, Janssen, Myovant, Myriad, Telix, Foundation Medicine

sent · 5:36 PM What was Gleason after surgery?

Vic St. Louis, MO sent · 6:15 PM triplet therapy?????

Len Sierra sent · 6:16 PM Good call, Vic. He fits the profile for triplet therapy.

Vic St. Louis, MO sent · 6:17 PM since may 2021!!!

Larry Fish sent · 6:17 PM What kind of scans? Sounds like he may have lit up like a Christmas tree. Then there was probably something to biopsy- eg hip

Vic St. Louis, MO sent · 6:18 PM 10-4

Bob G sent · 6:22 PM Goodnight all. Thanks.

sent · 6:33 PM My name is MarkK and I just joined today. I am stage 4 to the bone and want someone like me to talk to This chat barely works so try spartybbmark@yahoo.com

sent · 6:38 PM Mark Cuban’s discount drug site sells Abbie for $145 for 120 pills. https://Costplusdrugs.com

Pat Martin sent · 6:39 PM I appreciate your input. Going to log off and get this shoe out of my butt that Rick put there See all next Tuesday

Julian – Houston sent · 6:44 PM Thanks everyone! Good discussion as always! Have a good evening.

AnCan- rick sent · 6:56 PM Allen Edel https://pcnrv.blogspot.com/

Len Sierra sent · 6:58 PM Tony, at the site Rick sent you, look for this discussion titled: “Duration of ADT needed with salvage radiation” from Feb 2023

AnCan- rick sent · 7:29 PM Patient Assistance Foundation

AnCan- rick sent · 7:31 PM PROMISE Trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 25, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 28, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 28, 2023

 

UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one
Wed, 3/39 8pm Eastern
Dr. Rachel Rubin + Pelvic PT Tracy Sher
Register https://tinyurl.com/4sdhzucf

AnCan is grateful to the following sponsors for making this recording posssible:

Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

IF YOU HAVE NOT YET WRITTEN TO THE FDA ABOUT THE PLUVICTO SHORTAGE – PLEASE DO.
DIDN’T RECEIVE OUR REQUEST … LMK rd@ancan.org

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: Genetic test detects a rare mutation — with a treatment — showing the value of somatic testing. (bn)

Topics Discussed

AnCan’s proposals on the Pluvicto shortage get the FDA’s ear; new man hopes for support as salvage winds up; ultrasensitive PSA creeping up — time to worry?; PSA kicks down after darolutamide; is abi “shortage” real?; treading carefully before radiotherapy due to colitis; PSA rising despite Pluvicto — are some metastases non-avid?; PSA OK after run-in with Covid; atrial fibrillation complicates his treatment choices; what’s the story with BAT?; genetic test turns up BRAF mutation, rare in prostate cancer; update on Herb.

Chat Log

AnCan- rick · 6:09 PM WEBINAR tomorrow night …. What’s a Pelvic Floor Therapist …and why you need one! REGISTER HERE https://tinyurl.com/4sdhzucf

Julian – Houston · 6:08 PM I am registered!

Len Sierra · 6:15 PM CDER =Center for Drug Evaluation and Research

AnCan- rick · 6:22 PM WEBINAR tomorrow night …. What’s a Pelvic Floor Therapist …and why you need one! REGISTER HERE https://tinyurl.com/4sdhzucf

AnCan- rick · 6:37 PM Dr. Jaqueline Vuky OHSU https://www.ohsu.edu/providers/jacqueline-vuky-md

David Muslin · 6:39 PM The following are GU Med Ons at OHSU

David Muslin · 6:39 PM Jacqueline Vuky, M.D. Associate Professor of Medicine, School of Medicine ExpertiseCancerCancer and Blood Disorders Special focusBladder
CancerBlood DiseasesBreast CancerColorectal CancerGenitourinary CancersKidney CancerProstate CancerTestis Cancer
David Muslin · 6:40 PM To schedule call 503-346-1500

AnCan- rick · 7:27 PM bicalutamide

John A · 7:35 PM SNMMI just came out with GU guidelines in January–does anyone know what they said about concordance checking?

AnCan- rick · 7:41 PM Life on ADT …. Richard W’s website

AnCan- rick · 7:42 PM https://www.lifeonadt.com/

AnCan- rick · 7:54 PM Here’s the BAT paper …. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9313844/

Kirt Schaper · 7:57 PM Dabrafdnib

John A · 7:58 PM dabrafenib

David Muslin · 8:07 PM I have to roll guys. See you next week.

Frank Fabish Columbus OH · 8:08 PM see you guys

Julian – Houston · 8:08 PM see you guys next week!

Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 25, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 20, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 20, 2023

AnCan is grateful to the following sponsors for making this recording posssible:

Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

IF YOU HAVE NOT YET WRITTEN TO THE FDA ABOUT THE PLUVICTO SHORTAGE – PLEASE DO. DIDN’T RECEIVE OUR REQUEST … LMK rd@ancan.org

UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one Wed, 3/39 8pm Eastern Dr. Rachel Rubin + Pelvic PT Tracy Sher Register https://tinyurl.com/4sdhzucf

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/       Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/      Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s pick: What’s to fear about hormone therapy when intermittent is an option? (rd)

Topics Discussed

Recurrent gent from 2013 has not yet had HT .., and fears it; successful hyperbaric Tx for RT cystitis; update on capaversitib trial; ‘young’ man starts IHT after 10 years; how many chemo cycles??; more IHT; what’s the right HT combo with heart issues? … and the right SPOT RT?; very low level recurrence after 6 years; Herb’s brief update; Next Generation Sequencing; dispelling the fear of HT

Chat Log

David Muslin sent · 5:41 PM also Joe, attending these Ancan meetings educated me enough to no longer fear our disease. We welcome your attendance.

AnCan- rick sent · 5:53 PM UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one Wed, 3/39 8pm Eastern Register https://tinyurl.com/4sdhzucf Dr. Rachel Rubin + Pelvic PT Tracy Sher Wed, Mar 29, 2023 8:00 PM – 9:30 PM EDT

AnCan- rick sent · 6:05 PM capavasertib + docetaxel

Richard Tolbert sent · 6:11 PM Jim, I was able to receive $3500 from the Co-Payment Assistance Fund which covered my Feb Orgovyx and Xtandi. Earlier today I received some fiunding support from a private healthcare company which will help. Thanks for asking Jim!

Peter Kafka-Maui sent · 6:14 PM See you all next week. Got to drive my grandchildren down to beach volleyball practice.

George Rovder, Arlington VA sent · 6:14 PM Thank you Gentlemen for your wisdom and caring. Gotta go now.

Jim B sent · 6:15 PM Great to hear that worked out for you! I think that I may have mentioned that I had success with the Mark Cuban Cost Plus web site which gave me access to medications at remarkably low costs.

Richard Tolbert sent · 6:23 PM You did mentioned Mark Cuban Cost Plus. I checked and Orgovoyx and Xtandi are not available since there is no generic. I am also still working to gain co-payment support from Astellas and Myovant.

Henry sent · 6:38 PM What about orgovyx? Just one pill per day, + 2nd line.

Henry sent · 6:39 PM ok Hey Prof. Herb — what do you have to lose from ADT + abi? Everyone cares about you, Prof. Herb!!

AnCan- rick sent · 6:50 PM UPCOMING WEBINAR What is a Pelvic Floor Physical Therapist – & why you need one Wed, 3/29 8pm Eastern Register here https://tinyurl.com/4sdhzucf

Frank Fabish Columbus OH sent · 6:52 PM Got to go guys. Praying for you Herb.

Len Sierra sent · 6:53 PM Continuous vs Intermittent ADT: https://jamanetwork.com/journals/jamaoncology/fullarticle/2436836 Conclusions and Relevance Intermittent androgen deprivation was not inferior to continuous therapy with respect to the overall survival. Some quality-of-life criteria seemed improved with intermittent therapy. Intermittent androgen deprivation can be considered as an alternative option in patients with recurrent or metastatic prostate cancer.

AnCan- rick sent · 7:00 PM peterk@ancan.org

Peter M sent · 7:02 PM Good night gents!

Bob G sent · 7:02 PM Goodnight all.

Michael Wyn, Colorado Springs sent · 7:15 PM thx. g nite

gary peters sent · 7:19 PM Thanks, guys. Take care. G