Active Surveillance Prostate Cancer Video Chat, September 10th, 2025
UPCOMING PRESENTATION MRI 2nd Opinions….. ProstateID solves the challenge; getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID. Join us on Wednesday, September 17th at 6:30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer. Founder and Developer Randall Jones, PhD, explains the technology and its uses. Hosted by an AnCan Advisory Board Member and prostate cancer peer, Cdr. Mike Crosby *Sensitivity and Specificity in the mid-90% range … and hold Monday, September 29th, 8 pm Eastern for Dr. Jonathan Epstein. Title TBD and webinar link to follow.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us. You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.
Chat Log:
Eric- Atlanta
2nd Opinions for Biopsies: -Jonathan Epstein, MD, Contact: Contact:jonathaniraepstein@gmail.com https://advanceduropathology.com -Ming Zhou, MD, PHD, Now at Mount Sinai Health System in New York City. If you have questions for him, please contact him directly at Email: Ming.zhou@mountsinai.org -John Hopkins Pathology https://pathology.jhu.edu/patient-care/second-opinions
Eric- Atlanta
PROMISE/COLOR Genetic Study (Free) w/ANCAN affiliate link: https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Low/Intermediate PCa Video Chat, September 8, 2025
Low/Intermediate PCa Video Chat, September 8, 2025
UPCOMING PRESENTATION MRI 2nd Opinions….. ProstateID solves the challenge Getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID Join us on Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Founder and Developer, Randall Jones, PhD explains the technology and its uses. Hosted by AnCan Advisory Board Member and prostate cancer peer, Cdr. Mike Crosby *Sensitiviy and Specificity in the mid-90% range … and hold Monday, Sept 29th 8 pm Eastern for Dr. Jonathan Epstein. Title TBD and webinar link to follow.
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Get a second opinion on biopsy results for prostate cancer. (bj)
Topics Discussed Importance of getting a second opinion on biopsy results and who to get them from; dealing with multiple healthcare concerns at the same time; having an integrated healthcare team to manage comorbidities; bladder and kidney side effects from radiation treatment; ProstatID — FDA-cleared AI software for the Screening, Detection and Diagnosis of Prostate Cancer; using genetic testing (e.g. Decipher and Prolaris) to guide treatment decisions.
Chat
AnCan – rick sent a chat · 8:16 PM
PROMISE Inherited/Germline trial – free test w. Color https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
John A sent a chat · 8:23 PM
advanceduropathology.com 516 280-7930
AnCan – rick sent a chat · 8:23 PM
That’s Epstein
John A sent a chat · 8:24 PM
ming.zhou@mtsinai.org https://profiles.mountsinai.org/ming-zhou
AnCan Bill sent a chat · 8:44 PM
bfranklin@ancan.org
Bill (VA) sent a chat · 9:03 PM
Have to drop.
AnCan – “Col” Boykin Jordan sent a chat · 9:33 PM
Advanced Group https://ancan.org/event/high-risk-recurrent-advanced-men-and-caregivers/2025-09-09/
AnCan – “Col” Boykin Jordan sent a chat · 9:35 PM
AnCan Barniskis 9/9 at 5PM Central
UPCOMING PRESENTATION MRI 2nd Opinions….. ProstateID solves the challenge Getting 2nd opinions is critical. It’s easy to find a medical 2nd opinion, and you can get your pathology reread by the best! But MRIs – that’s been challenging. Now there’s an affordable AI-validated option that’s proven very reliable* – ProstateID Join us on Wed. Sep 17th at 6.30 pm Eastern in the AnCan Barniskis Room https://www.gotomeet.me/AnswerCancer Founder and Developer, Randall Jones, PhD explains the technology and its uses. Hosted by AnCan Advisory Board Member and prostate cancer peer, Cdr. Mike Crosby *Sensitiviy and Specificity in the mid-90% range … and hold Monday, Sept 29th 8 pm Eastern for Dr. Jonathan Epstein. Title TBD and webinar link to follow.
AnCan is grateful to Johnson and Johnson for making this recording possible.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Choosing military medical retirement or VA disability? (bj)
Topics Discussed Navigating VA claim process while living abroad; decision point – choosing military medical retirement or VA disability; downloading VA letters to verify benefits; VA compensation & benefits; Combat-Related Special Compensation (CSRC); Agent Orange and PACT Act; toxic exposure for Gulf War or Post-9/11 Veterans; ionizing radiation.
Chat
AnCan – “Col” Boykin Jordan sent a chat · 8:37 PM
boykin@ancan.org
AnCan – “Col” Boykin Jordan sent a chat · 8:54 PM
Dave – you can download or request your benefit summary and service verification letter from the VA
AnCan – “Col” Boykin Jordan sent a chat · 8:57 PM
Benefit Summary and Service Verification Letter
AnCan – “Col” Boykin Jordan sent a chat · 9:15 PM
Is it in the prostate bed?
AnCan Bill sent a chat · 9:30 PM
I have to drop and help with some homework for my son. Good meeting and everyone have a good night!
AnCan – “Col” Boykin Jordan sent a chat · 9:30 PM
Good night Bill!
Tyneal Edwards sent a chat · 9:33 PM
I also have to get ready to go to bed as I have duty tomorrow morning at 0500. Thank you all for having me and it’s a pleasure to meet you! Stay safe and until next time🙏🏾
AnCan – “Col” Boykin Jordan sent a chat · 9:33 PM
Good night Tyyneal! Thanks for coming!
Bruce Schrimpf sent a chat · 9:42 PM
HIPAA: Health Insurance Portability and Accountability Act
Active Surveillance Prostate Cancer Video Chat, August 27th, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Hi Rick! We managed, no damage other than smoke smell in the house. We did have to evacuate for a week, the Marriott chain in our area has three properties that welcome dogs (a must for us). Other than the expense, it went okay. How have you been?
AnCan – rick
Join us at 7.30 pm PACIFIC tonight to hear prostate cancer gent, JOHN MAXWELL interviewd by AnCan about his cancer experience and how his poetry has helped him and others. Join via link on https://ancan.org/solo-arts-heal/
Bill Harris (Los Angeles)
Same number still. Is Maxwell time pacific?
Bill Harris (Los Angeles)
Would love to get on the list for a question about my rising PSA
2nd Opinions for Biopsies: -Jonathan Epstein, MD https://advanceduropathology.com -Ming Zhou, MD, PHD Now at Mount Sinai Health System in New York City. If you have questions for him, please contact him directly at Email: Ming.zhou@mountsinai.org) -John Hopkins Pathology https://pathology.jhu.edu/patient-care/second-opinions
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 26, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Bright hopes for estradiol patches to reduce ADT effects, from Dr. Paul. (bn)
Topics Discussed
A professor’s worry about hot flashes while teaching prompts many familiar suggestions — plus an unexpected one: an illuminating discussion of estradiol by Dr. Paul, who’s serious about seeing it get wider use; Marc V., starting chemo, shares a “week that’s been one of the most challenging in my life”; PSA relapse after April’s Pluvicto leaves him wondering — more Pluvicto? xaluritamig trial? alpha trial?; wrestllng with Orgovyx side effects — on top of severe back pain, sleep apnea, and multiple sclerosis — and he’s seeing the wrong cancer specialist; new research of muscle loss in cancer; muscle loss hits a patient in his 80s harder than one in his 60s; why get two DNA tests — germline and somatic — for his RB1 gene?; he’s wondering what to expect when starting ADT — and while experiences vary, nobody here is a fan.
Chat Log
Jon McPhee Toronto · 6:26 PM
What about estrogen patches?
AnCan – rick · 6:26 PM
soy isoflavones
John A · 6:27 PM
Jon, yes that’s partly what I meant by if simple measures don’t work consider hormone treatment.
John Maxwell · 6:29 PM
HOT FLASHES: I am having good success with the Embr Wave 2 wrist band reducing, not eliminating my hot flashes, especially at night. I am very happy with it.
Alain · 6:30 PM
Thanks John!
Frank Ciambra · 6:52 PM
Xalurtamig
Len Sierra · 7:15 PM
www.mskcc.org
Charles James Ryan, MD – MSK Genitourinary Medical Oncologist
480 Red Hill Rd, Middletown, NJ 07748
Len Sierra · 7:18 PM
Phone for Ryan: Call 646-392-1746
AnCan – rick · 7:23 PM
Activin-A , Think the researcher may be David Hyman at MSKCC
AnCan – rick · 7:24 PM
first-in-human phase I study of the Activin A inhibitor, STM 434, in various solid tumors.
Jon McPhee Toronto · 7:48 PM
Question: I am going to get a shot of Zoladex (goserelin). Apparently popular in Canada, but I never see it mentioned in US. Any idea why?
