Active Surveillance Prostate Cancer Video Chat, June 10th, 2026

Active Surveillance Prostate Cancer Video Chat, June 10th, 2026

Active Surveillance Prostate Cancer Video Chat, June 10th, 2026

 

 

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, Telix, and Foundation Medicine.

Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.

You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.

Chat Log:

Ray E 8:11 PM
https://advanceduropathology.com/about-dr-epstein/

Andy Douglas, Florida 8:11 PM
Jonathan Epstein, MD

Andy Douglas, Florida 8:11 PM
Advanced Uropathology of New York 700 Stewart Ave, Suite 101 Garden City, NY 11530 Hours: Monday-Friday 9:00AM – 6:00PM P: 516-760-2037 F: 516-200-3899 jepstein@imppllc.com

Ray E 8:12 PM
Ming Zhou Md

Ray E 8:12 PM
https://profiles.mountsinai.org/ming-zhou

Andy Douglas, Florida 8:23 PM
Shaw Zhou, MD St Petersburg 38th Avenue 5747 38th Ave N, St. Petersburg, Florida 33710 Phone (727) 381-8667

Ray E 8:26 PM
https://www.youtube.com/watch?v=XXTcYilkPJo

Ray E 8:26 PM
Newton exercise video above

Ed Cirimele, Ca 8:39 PM
Ed Cirimele: jocimo@gmail.com

Eric 8:41 PM
Gotta head back to it. Thanks!

Andy Douglas, Florida 8:43 PM
https://www.healthcare6.com/physician/san-rafael-ca/joseph-lee-2179445.html

AnCan – Rick 8:45 PM
Here’s the KP link Ed…. https://mydoctor.kaiserpermanente.org/ncal/providers/jhlee

Andy Douglas, Florida 8:49 PM
PSA density is a measure that relates the level of prostate-specific antigen (PSA) in the blood to the size of the prostate gland, calculated by dividing the PSA value by the prostate volume. A higher PSA density can indicate a greater risk of prostate cancer, especially if it is above 0.15 ng/mL/cc.

Andy Douglas, Florida 8:50 PM
0.36 density

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Sports Fans – hear pioneer female sportscaster Laurie Singer tell stories about Pete Rose, Johnny Bench and Bill Walton https://ancan.org/solo-arts-heal-with-laurie-singer/

Watch AnCan’s newest PROSTOX video “Predicting Radiation Side Effects” https://ancan.org/predicting-radiatio…

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Two (2) younger Newbies both need better QBs… AND we have another hydrocele

Topics Discussed

Agent Orange Newbie doing well on RT and doublet; younger Newbie with possible variant PrCa needs solid GU med onc; 2nd younger Newbie also needs to upgrade his MO – is he stuck in doublet?; scans suggest Jevtana not holding disease – pasritamig trial next?; debulking to start with IMRT; does coffee creamer interfere with treatment?; hydrocele not the first time for AnCan; nocturia and RT proctitis cause problems; Orgovyx coming soon; Dr. E in his future

Chat

  • Bob Schwartz, USN, Venice, FL sent: 3:20 PM

    Having WIFY problems, thanks to T-Mobile.

  • Steve L sent: 3:28 PM

    Where did Heather Chang go?

  • AnCan – Rick sent: 3:56 PM

  • Pete sent: 4:08 PM

    John, thank you for the recommendation! And yes, I can get to UofC easily! I just retired…..lots of free time!

  • Don Rogers sent: 4:08 PM

    Hi John, Nice to hear you are doing well. Everything here in Boca Raton is also wonderful. I am doing great, PSA still undetectible. Looking forward to going on a Disney Cruise with the entire family in early July. Mary and I then go on a 10 day camping trip to Yellowstone. Let me what you find out at your 3 month visit with your oncologist. My best always, Don

  • Len Sierra sent: 4:21 PM

    EZH2 inhibitors: Mevrometostat (PF-06821497): An investigational selective inhibitor of enhancer of zeste homolog 2 (EZH2) being studied in combination with XTANDI for mCRPC. Several Phase 3 trials (MEVPRO-1 and MEVPRO-2) are ongoing.

  • Bob McHugh sent: 4:49 PM

    Lomotil or Immodium?

  • Jim Ekrut, Ft. Worth, TX sent: 4:51 PM

    Imodium doesn’t seem to help much. I’m hoping the gastroenterologist will prescribe Lomotil, but he initially hesitated because it’s a controlled substance.

  • Jim Marshall, Vet Sup Grp. Moderator sent: 4:56 PM

    The LATITUDE Trial, 2017, had HS Abi + 10mg. and a few years later HS dropped to 5mg although CR stayed at 10mg. Jim M

  • Jim Ekrut, Ft. Worth, TX sent: 5:04 PM

    Thanks so much for a helpful session! Until next time.

  • Bruce Schrimpf sent: 5:06 PM

    Good seeing everyone!

Living with the Fear of Recurrence

Living with the Fear of Recurrence

Living with the Fear of Recurrence

Living with cancer often means living with uncertainty, and for many patients, that uncertainty shows up as fear of recurrence and the very real stress of upcoming scans, tests, and follow-up appointments. In his introduction for the most recent Men Speaking Freely on June 4th, Dr. John provides a great summary of the Fear of Cancer Recurrence:

I thought I’d take a new look at a favorite topic of ours, Fear of Recurrence. Here is an update from recent literature.

 

Not that we need a definition, but FCR is defined in the literature as the fear, worry, or concern that cancer will return or progress. It’s among the most common and persistent concerns for cancer survivors, including men with prostate cancer.  It seriously affects our quality of life, mental health, and even relationships.

 

Recent studies confirm that at least half of cancer survivors experience moderate to high FCR, with 10–20% experiencing severe, disabling FCR.  Younger age, female gender, recent diagnosis, low social support, poor physical condition, and previous psychological difficulties are risk factors for higher FCR in general.  For prostate cancer, younger patients and those with PSA increases or ambiguous test results are at higher risk. Of course, men may underreport FCR due to stigma or stoicism (fancy word for being stupid).

 

Cognitive Behavioral Therapy (CBT) and Mindfulness-Based Interventions are still the most evidence-based approaches. New trials support the efficacy of both in reducing FCR, including when delivered via telehealth.

 

Structured interventions like ConquerFear (iConquerFear) and SWORD (Survivors’ Worry Reduction) are scientifically validated in multiple countries and are worth looking at. There’s supposed to be an Australian intervention called iCanADAPT for prostate cancer, but I can’t seem to navigate to it from icandapt.adaptcancer.org.au. Meta-analyses show modest benefit for these interventions, with high patient acceptability.

 

Medications addressing fear of recurrence are still not supported as primary treatment, but they sure got me by those early months without adverse effects.

 

The International Psycho-Oncology Society and ASCO survivorship guidelines, as well as recent research, recommend regular assessment and referral for FCR. Tools like the Fear of Cancer Recurrence Inventory (FCRI), FCR-7, and Cancer Worry Scale are available, but I’ve never heard of anyone being screened.  Wake up, docs.

 

On the horizon, studies are examining genetics, inflammation, and personality traits as predictors of FCR. Interventions are becoming culture-specific.

 

So, FCR is normal, and severe/persistent FCR is treatable. Routine discussion and screening for FCR should be part of survivorship care. Effective interventions (CBT, mindfulness, research-based web-based programs) are available and increasingly accessible.  Patients should not hesitate to raise FCR concerns – help is available.

 

-Dr. John Antonucci MD

With thanks to one of our own, Andy Douglas, a recent webinar from Smilow Cancer Hospital at Yale, part of its Survivorship Series, goes into far more detail and is worth watching. In Unraveling Fear of Cancer Recurrence: Realities and Tools for Coping (https://www.youtube.com/watch?v=27aHVlFsgN4), presenters Gabriel Cartagena, PhD, Angela Khairallah, MSW, LCSW, and Susanne Lee-Baldassini, LCSW, examine fear of cancer recurrence and “scanxiety,” explaining how common these experiences are and offering practical coping strategies for managing them.

Not everyone will experience fear of cancer recurrence or scan-related anxiety in the same way, but these concerns are common across the cancer community. This webinar will not make uncertainty disappear, but it does offer grounded, practical tools that can help patients and families navigate it with more confidence. If you’re struggling with anxiety, read the recent Substack post by Howard Hertz: Anxiety and the Miscalibrated Mind. Hertz breaks down how our brains are evolutionarily hard-wired to prioritize survival over factual accuracy, meaning your brain would rather make the mistake of feeling anxious than risk being caught off guard.

-Dan Gifford

Watch Here: 

 

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 06/02/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: Hypertension is presumptive for Vietnam-era vets. (bj)

Topics Discussed
Monitor high blood pressure for a VA disability claim; hypertension is presumptive for Vietnam Era Vets; develop a claims strategy to avoid complexity; changes in urinary incontinence rates; why you should enroll in VA Healthcare; new prostate cancer diagnosis – high risk.

Chat

AnCan – Boykin sent a chat · 8:14 PM
veterans@ancan.org

Bob Schwartz, USN, Venice, FL. sent a chat · 8:58 PM
Good mtg., have to go, see everyone next mtg.,

Leon Roberts sent a chat · 9:02 PM
Hi all so many problems getting in, still no audio or camera. Would like to file for loss o creatie organ that I just heard. Got a phone nr I can call in?

AnCan – Boykin sent a chat · 9:04 PM
@Leon – give me a second

Bruce Schrimpf sent a chat · 9:32 PM
Good seeing all of you!  Have a great week!

AnCan – Boykin sent a chat · 9:33 PM
veterans@ancan.org

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 05/25/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: Using Artificial Intelligence (AI) to understand medical information. (bj)

Topics Discussed
New diagnosis with history of BPH and Gleason Score of 3+3; MRI false positive, but fusion biopsy detected PCa; health insurance company don’t want to cover treatment for BPH when PCa present; life insurance companies have turned away men with a Gleason Score of 3 +3; Gleason Score 3 +3 is now Gleason Grade Group 1; VA electronic health records not compatible with other electronic health records makes sharing results across health systems difficult; importance of sharing your all of your healthcare information with all of your doctors, let them decide what is important; chose open prostatectomy because penile implant ruled out robotic prostatectomy; active surveillance contemplating active treatment because PSA rose from 7 to 10 over the past year; how do I advocate for myself post-prostatectomy so that my recovery goes as smooth as possible; advice for dealing with radiation proctitis; preparing for a prostatectomy and concerns about Erectile Dysfunction (ED); using Artificial Intelligence (AI) to understand medical information.

Chat

AnCan – Stuart sent a chat · 8:09 PM

Prostate Cancer and GU Pathology 2nd Opinions

AnCan – Stuart sent a chat · 8:11 PM

2nd Opinions for MRIs

AnCan – Rick sent a chat · 8:12 PM
MRI 2nd opinions  https://ancan.org/2nd-opinions-for-mris/

RonnieKeys  (Sharon,Pa) sent a chat · 8:25 PM
ronniekeys@gmail.com

Larry in AK sent a chat · 8:44 PM
A cheap laptop can be had for ‘way less than $1,000 – maybe $500 on sale.  Optical disk (CD/DVD) reader for under $50, sometimes $20 on sale.

AnCan – Rick sent a chat · 8:54 PM
ECE is not automatically T3

Larry in AK sent a chat · 9:07 PM
A well-exercised and well-nourished body withstands the rigors of treatment (ADT, radiation, surgery, whtever) better much better.

Larry in AK sent a chat · 9:14 PM
Sorry, everyone.  I gotta go

AnCan – Rick sent a chat · 9:40 PM
You need to run the MSKCC nomograms -http://nomograms.mskcc.org/Prostate/index.aspx

David in Portland, OR sent a chat · 9:52 PM
Add this to all AI questions: When answering, rely only on medically and scientifically credible sources, and provide links to your sources. Double check the accuracy of the links before including them, because you’ve been making a lot of errors lately in inserting incorrect links. Use only PubMed.gov pages as the clickable links in the citations, rather than pasting raw URLs. Avoid weaker secondary sources. Give preference to studies published in the past seven years, especially any meta-analyses and review articles published in well-respected medical journals, but also include any older studies of notable importance. Omit all images.

Ignacio – San Jose sent a chat · 9:53 PM
Thank you!

AnCan – Rick sent a chat · 9:56 PM
Has he had germline testing?

RonnieKeys  (Sharon,Pa) sent a chat · 9:57 PM
It’s 9:53 here, and I have an early start tomorrow. Thanks for all your support and interesting discussions!

Jim Ekrut, Ft. Worth TX sent a chat · 10:05 PM
Gentlemen, thanks so much for an excellent and helpful session. I have sent a message to my gastroenterologist about hyperbaric oxygen treatIment. I appreciate your help.

AnCan – Rick sent a chat · 10:08 PM
Paul Maroni  Denver, colorado Anschutz https://www.uchealth.org/provider/paul-maroni-md

AnCan – Rick sent a chat · 10:12 PM
Brian Helfand https://www.northshore.org/apps/findadoctor/physicians/brian-t.-helfand

Ignacio – San Jose sent a chat · 10:12 PM
Thank you all for the support and encouragement.  Have a good evening.

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 05/19/2026

Veterans Video Chat, 05/19/2026

Veterans Video Chat, 05/19/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: What happens when your doctor won’t support your VA disability claim? (bj)

Topics Discussed
VA primary care doctor reluctant to make referral to oncology or community care; establishing service connection for Chronic Kidney Disease (CKD); coordinating your final affairs with your VA social care worker; decision process for establishing service connection when multiple causes exist; what happens when your doctor won’t support your VA disability claim; positive VA experience — medicare billing issue resolved; lessons learned on health insurance copay; qualifying for VA Healthcare with TERA; clarification on purpose of C&P exam in the disability claims process; explanation of spouse pension benefits for deceased veteran spouse.

Chat

Bruce Schrimpf sent a chat · 8:16 PM
Sounds like a potential conflict of professional interest.

Leon Roberts sent a chat · 8:20 PM
Hi Jim, still having a problem getting audio and camera. Did you receive the requested info from me?

Leon Roberts sent a chat · 8:51 PM
at wits end why I can’t get sound and site. Leon

Eric Baker – Lafayette sent a chat · 8:53 PM
Leon, do you have the ability to call in?  Connect With A Phone   These are all domestic toll calls  +1 646 749 3129  (US)  Access Code:  656-182-845 (Schmier Room)

Leon Roberts sent a chat · 8:53 PM
Keeps telling me GoTo needs to access mic and cam, I’m lost. Leon

Per Ankh sent a chat · 9:26 PM
I have to run. Good night everyone. Great sharing with you.

Leon Roberts sent a chat · 9:44 PM
Thanks all, I have to dismiss myself this evening. Appreciate the fellowship. Leon

Bruce Schrimpf sent a chat · 9:52 PM
Have a good night all!

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 6/1/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 6/1/26

 

Sports Fans – hear pioneer female sportscaster Laurie Singer tell stories about Pete Rose, Johnny Bench and Bill Walton https://ancan.org/solo-arts-heal-with-laurie-singer/

Watch AnCan’s newest PROSTOX video “Predicting Radiation Side Effects” https://ancan.org/predicting-radiatio…

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: No Newbies – but repeating topics: incontinence; heart issues; and, intermittent vs continuous hormone therapy

Topics Discussed

Foamy gland AnCan’r does well with Pluvicto but has urinary issues; incontinence issues defer salvage RT; PCPEP program solid but time consuming; AnCan’r getting AUS this week; neck fan outperforms venlafaxine for hot sweats; low T and still hot sweats; Gent on abi cuts back his prednisone and has muscle pains; are cardio issue down to oncology treatments/; after 24 mo doublet, is it time for a change?; Dr. E’s available to sort his protocol – our AnCan’r just has to call; ending HT takes time to reverse the side effects

Chat

  • Len Sierra sent: 5:02 PM

    This page on the AnCan website contains info on both MRI and Biopsy second opinions. https://ancan.org/prostate-cancer-and-gu-pathology-2nd-opinions/

  • AnCan–John A sent: 5:49 PM

    SDHA sig for paragangliomas (noncancerous) and GI stromal tumors, and pheos. We need not be concerned it looks like

  • Len Sierra sent: 6:18 PM

    From the AnCan website, my comments from 2024: Tumor responses improved following a steroid switch from prednisone to dexamethasone in castration-resistant prostate cancer patients progressing on abiraterone: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4264443/ Conclusions: Durable PSA responses occur in up to 40% of patients following a ‘steroid switch’ for PSA progression on abiraterone and prednisone

  • Jim Stewart Reno, NV sent: 6:34 PM

    have to sign off to get grandkids…good night all!

  • AnCan – Rick sent: 6:41 PM

  • Eric Curtis sent: 7:08 PM

    thanks to all for a great meeting!! Aloha

Solo Arts Heal with Laurie Singer

Solo Arts Heal with Laurie Singer

Solo Arts Heal featuring Laurie Singer on May 27th, 2026

 

Laurie Singer is a broadcast journalist, award-winning storyteller, and media producer whose career reflects her commitment to breaking barriers and elevating meaningful narratives.

Singer began her pursuit at KFMB-TV Channel 8 in the 70’s as one of the first female sportscasters in the country. She was the first woman to cover the MLB World Series, opening the door for future generations of women in sports journalism.

She continued her career, reporting and producing major sporting events and national news for CBS and NBC news for over four decades. She later brought her storytelling expertise to cancer healthcare, producing impactful content for Johns Hopkins that advances patient and caregiver education and awareness. Through her work in media and healthcare, Laurie continues to demonstrate how storytelling can inform, inspire, and drive meaningful change.

Hear remarkable stories about American sports legends Johnny Bench, Pete Rose, and Bill Walton and her own late husband, Leroy Sievers, war journalist and Executive Producer of Nightline who documented his own cancer journey publicly.

Watch Here: 

 

Active Surveillance Prostate Cancer Video Chat, June 10th, 2026

Active Surveillance Prostate Cancer Video Chat, May 27th, 2026

Active Surveillance Prostate Cancer Video Chat, May 27th, 2026

 

 

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine. 

Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.

You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.

Chat Log: 

Eric- Atlanta 8:18 PM
2nd Opinin for Biopsy links: https://ancan.org/prostate-cancer-and-gu-pathology-2nd-opinions/

Eric- Atlanta 8:22 PM
The Active Surveillor: https://howardwolinsky.substack.com

Eric- Atlanta 8:32 PM
New Prostate Cancer Guidelines and ASPI Pathway: https://ancan.org/new-prostate-cancer-guidelines-and-aspi-pathway/

Eric- Atlanta 8:39 PM
Ancan Solo Arts Heal: https://ancan.org/solo-arts-heal/ Tonight at 10:30EST

AnCan – Rick 8:52 PM
Here’s another more direct link if you’d like to listen to Laurie and myself. https://themarsh.org/soloartsheal/

Eric- Atlanta 8:53 PM
‘Threading the Clinical Needle’ on Gleason 6/GG1: A Matter of Language and Math: https://howardwolinsky.substack.com/p/threading-the-clinical-needle-on

Andy, Florida 8:56 PM
https://aspatients.org/surveillor/new-study-shows-strong-support-for-re-labeling-gleason-6-growths-as-noncancers/

Joe C 9:14 PM
Thanks, guys. Appreciate the discussion, information and all the good advice. I have to drop.

AnCan – Rick 9:25 PM
Cipro is the standard GU antibiotic

AnCan – Rick 9:28 PM
Gotta run over for the Solo Arts Heal tech check. Please join us at 7.30 pm Pacific https://themarsh.org/soloartsheal/ Good night, Gents…

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/26/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/26/26

 

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: LDR recurrence requires HDR follow-up. Low meeting demand leads to many open-mic Qs.

Topics Discussed

Focal HIFU therapy recurs as 3+3 in gland – which group to attend?; our military chaplain is stable but needs VA help; Frank very happy with AnCan’s GU med onc match; treating LDR brachy recurrence with HDR and SBRT; seeking next line of systemic treatment that’s not chemo or PSMA driven; spot RT for skull Mx; low tech swamp cooler hangs around the neck; old ivermectin/fenbendazole chestnut booted; 6x Pluvicto successfully completed; strategy for next chemo session; oxybutynin for hot flashes; E2 patch does not cause leg DVT; germline Gent questions need for counseling

Chat

  • Bob Schwartz, USN, Venice, FL sent: 3:45 PM

    Frank, you help as much as you get help. Don’t ever doubt how much we appreciate you.

  • AnCan – Rick sent: 3:59 PM

  • Danny Lankford (Minnesota) sent: 4:00 PM

    I missed the 15 day return window. If someone wants it, it’s yours for a $100 off the list price.

  • Damon K sent: 4:16 PM

    Thanks for connecting us and for the advice today. Unfortunately I have to drop to attend a meeting at work.

  • AnCan–John A sent: 4:20 PM

    KalliKrein2

  • AnCan – Rick sent: 4:21 PM

    Curtland DeVille, Channing Paller both at Sibley

  • Len Sierra sent: 4:23 PM

    Fun fact: PSA’s official name is KLK3 or Kallikrein-related peptidase 3.

  • Bruce Schrimpf sent: 4:26 PM

    Nice seeing and hearing from you guys. I will see you again at VETS. BDS

  • Frank Ciambra sent: 4:27 PM

    good night my granddaughter sleeping over

  • Julian-Houston sent: 4:29 PM

    Good night everyone ! Glad I could relate my experience and help.

  • Danny Lankford (Minnesota) sent: 4:30 PM

    I’ll give a quick update

  • Bob Schwartz, USN, Venice, FL. sent: 4:35 PM

    Dan, remember, even a broken clock is right twice a day.

  • Paul schellhammer sent: 4:46 PM

    ..maybe 1 E patch twice a week to make life easier

  • Steve Roux, Up North, Michigan sent: 4:50 PM

    Great Meeting gang! See you next week!

  • TonyFig sent: 4:59 PM

    For some humor The naysayer reasons with the E patch Emperor

  • Bob Alvord sent: 4:59 PM

    The wearable fan is Vrbgify Portable Neck Fan from Lowes.

  • “Thomas” Matica sent: 4:59 PM

    Thanks for a great meeting. Good night to all.