Hi-Risk/Recurrent/Advanced PrCa Video Chat, Dec 9, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Lotsa confusion throughout this week! To pick just one, Signatera MRD test.
Topics Discussed
Newbie has a great HCP team – but seeking more; Mayo bamboozles this Newbie – needs more and reliable information; another Newbie chose to leave himself on ADT for 5 years – and wonders about fatigue and weight gain he’s now shed w. GLP; muscle mass with low T; Regular finds Signatera MRD test – but it’s not yet FDA approved for prostate cancer… & Dr. Jack’s been following this test a long time; Epstein downgrades Gent from 4+5 to 4+3 – Kishan & MR Linac next; elevated liver enzymes after chemo; steady as he goes with 0.03 rise; what’s pituitary’s role for testosterone; PSA testing during Pluvicto
Chat
Alexander Lalov, Pendleton, IN
sent: 4:13 PM
Is the recording going to be made public?
Eric James; Tyler TX
sent: 4:13 PM
yes, on Youtube
AnCan – rick
sent: 4:14 PM
All our Recordings are posted on YuTube – over 700
Larry (Veteran, Alaskan)
sent: 4:16 PM
Check your camera shutter at the top of your screen
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
Jay – those are the 2 pathologists for a 2nd opinion.
Alexander Lalov, Pendleton, IN
sent: 5:27 PM
Bary, would you post the web address, please
Alexander Lalov, Pendleton, IN
sent: 5:28 PM
Oh, Withing is the name. Thnx!
John G.
sent: 5:28 PM
https://www.youtube.com/watch?v=Ado6dItMebE Yes, even on androgen deprivation therapy (ADT) with testosterone suppressed to near-zero (castration levels), you can increase muscle mass and strength through resistance training, though gains are typically modest and focused on counteracting atrophy rather than dramatic hypertrophy.[1][3] ## Evidence from Studies Multiple clinical trials show prostate cancer patients on ADT gaining muscle mass and fiber size after 12–20 weeks of supervised resistance training, including compound lifts like squats and presses, performed 2–3 times weekly. Progressive overload—gradually increasing weights—prevents fiber size decline in both type I and II muscles and boosts capillarization for better performance. These adaptations occur via mechanical loading and protein synthesis pathways independent of testosterone, such as IGF-1 signaling.
Larry (Veteran, Alaskan)
sent: 5:28 PM
YMCA “Livestrong” program is designed for cancer survivors. Look it up
Larry (Veteran, Alaskan)
sent: 5:29 PM
Government funded, so it is free and includes YMCA membership for the 12 week duration,
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Dec 1, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: How do you pick a doctor for a second opinion?
Topics Discussed
bladder control during salvage RT sessions; surgery vs RT for Gent with IDC-P; who to trust for a 2n opinion; gratitude for AnCan’s support; embarking on chemo on ice – report after 1st round;… abd finishing chemo – what next?: recurrence after salvage RT 7 yrs calls for PSMA – but KP is slow on the uptake; T level falls in hours after starrting Orgovyx… really??
Chat
AnCan – rick
sent: 6:03 PM
877 582 7011
AnCan – rick
sent: 6:05 PM
Number for GoTo technical support
Bob Y — Los Angeles
sent: 6:21 PM
Gerry, How did you decide on surgery as the first line of treatment?
Jeff Marchi – San Francisco
sent: 6:27 PM
wiesner clamp
AnCan–John A
sent: 6:40 PM
MSKCC nomogram
AnCan – rick
sent: 6:40 PM
http://nomograms.mskcc.org/Prostate/index.aspx
Gerry & Cynthia
sent: 6:41 PM
thank you
AnCan–John A
sent: 6:44 PM
I see PSA, gleason, age, NCCN risk, and tumor stage on the arterra report
AnCan–John A
sent: 6:45 PM
and the bx slides of course
AnCan – rick
sent: 6:51 PM
Partin tables
Mark N
sent: 6:52 PM
Labcorp test 481220
TonyFig
sent: 6:53 PM
here is another similar labcorp test https://www.labcorp.com/tests/483555/vistaseq-prostate-panel
AnCan–John A
sent: 6:56 PM
If your focus is on inherited genetic risk factors, the Color gene test is likely more complete. If you are seeking tumor-specific genetic profiling or somatic mutations relevant to prostate cancer management, Labcorp #481220 might be more comprehensive.
Jeff Marchi – San Francisco
sent: 6:57 PM
Check out how running may stop prostate cancer from getting worse https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
AnCan–John A
sent: 6:57 PM
All I can find so far on #483555 is it’s specially for prostate cancer
Eric James; Tyler TX
sent: 7:05 PM
has anyone had trouble with their camera working on Go To Meeting? Sometimes my camera works on these meetings and sometimes it doesn’t.
Jeff Marchi – San Francisco
sent: 7:06 PM
5 years, 4 different camers on PC, IPADs and iphone
Jeff Marchi – San Francisco
sent: 7:06 PM
never a problem
Jeff Marchi – San Francisco
sent: 7:06 PM
are you on a PC?
Eric James; Tyler TX
sent: 7:06 PM
yes
Jim Marshall, Veteran, Alexandria, VA
sent: 7:07 PM
When I cheaped out on buying Internet bandwidth. Jim
Jeff Marchi – San Francisco
sent: 7:07 PM
if camera doesn’t work go to gear at top right and check camera settings. is the right one selected
Eric James; Tyler TX
sent: 7:08 PM
I only have one camera. In the PC.
Eric James; Tyler TX
sent: 7:08 PM
I suppose I could try adding a new external camera
Gary Martin
sent: 7:08 PM
My PC camera did not work tonight for first time (after WIndows 11 update). Had to switch to external camera.
Jeff Marchi – San Francisco
sent: 7:08 PM
some windows 10 cameras don’t work with win 11
Mark N
sent: 7:09 PM
I had to restart my laptop to get it connect to my mic tonight
Eric James; Tyler TX
sent: 7:09 PM
I
Jeff Marchi – San Francisco
sent: 7:09 PM
restarting is a real fix many times
Jim Marshall, Veteran, Alexandria, VA
sent: 7:09 PM
When I do GOTO I make sure no other apps are running. Many folks leave a whole bunch of apps open which takes memory. Jim
Eric James; Tyler TX
sent: 7:09 PM
I’ve restarted, tried in Chrome and Outlook.
Jeff Marchi – San Francisco
sent: 7:10 PM
did the camera work with zoom or other app
Jim Marshall, Veteran, Alexandria, VA
sent: 7:10 PM
Are you using the Browser Interface for Chrome. Jim
Eric James; Tyler TX
sent: 7:11 PM
It has always worked in the past with zoom
Eric James; Tyler TX
sent: 7:11 PM
I’ve opened in Chrome and Outlook. I don’t know what an interface is.
Jeff Marchi – San Francisco
sent: 7:11 PM
ask goto support 877 582 7011
Jeff Marchi – San Francisco
sent: 7:12 PM
you mean edge not outlook
Eric James; Tyler TX
sent: 7:12 PM
yes
Eric James; Tyler TX
sent: 7:13 PM
I’ll try calling go to support and possibly try an external camera
Larry Schuller
sent: 7:13 PM
Interface: where two systems or programs talk to each other/exchange signals
Eric James; Tyler TX
sent: 7:13 PM
thanks
Jeff Marchi – San Francisco
sent: 7:13 PM
electrolytes give more energy
Larry Schuller
sent: 7:14 PM
Exercise begets Energy…Putit on your car’s sunvisor. Put it on your refrigerator. Put it on your mirror
Jeff Marchi – San Francisco
sent: 7:15 PM
Check out how running may stop prostate cancer from getting worse https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
Jeff Marchi – San Francisco
sent: 7:17 PM
i could not run a mile on the track until I started taking electrolytes that enabled me to build up my stamina so I didn’t need it any longer
Jeff Marchi – San Francisco
sent: 7:18 PM
i run a mile twice every day
Jim Stewart Reno, NV
sent: 7:24 PM
have to sign off. grandkid duty…good night all!!!
Hank Zajic Springfield VA
sent: 7:24 PM
Thank you all for tonight’s session. I have to drop off.
RJ Smith (Seattle)
sent: 7:25 PM
Thanks all for the great words of encouragement! I’ll give myself a few breaks and still try to push through as far as is reasonable (without going too far).
Mark N
sent: 7:28 PM
Signing off, thanks !!
Larry Schuller
sent: 7:28 PM
Wait for it to come back? Or get ahead of what you think MIGHT happen? Hard choice.
Len
sent: 7:43 PM
Gary Martin and Mods – the PEACE-1 trial has a group of patients receiving RT added to the systemic triple therapy (ADT + Docetaxel + Abiraterone). The full results regarding the role of RT in this specific quadruplet combination are “highly anticipated.”
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 25, 2025
Happy Thanksgiving to all our AnCan particpants, especially if not on our mailing list. We’d have to ask why not, when you can sign up at https://ancan.org/contact-us/ and recive our great Newsletter/Reminder.
CORRECTION (rd)
I want to apologize and make a correction for someting I said in last Tuesday’s support group. At the end we were discussing adding a couple of Pluvicto treatments to Metastatic Directed Therapy. However this was for a man who had progressed rather than having just been diagnosed oligometastatic as in the LUNAR trial reported in the Reminder last week. I mentioned he might be eligible in the USA as Pluvicto is approved for metastatic hormone sensitive prostate cancer. This is not the case, and I misspoke. PSMAddtion was positively reported for mHSPC use at the recent ESMO conference – thank you Dr. Paul for this link. To date, it has not been FDA approved. I knew of the trial and got ahead of the game; although I was confusing it with PSMAFore.
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Robust discussion around testoterone early on – and thoughts about combining therapies at the end.
Topics Discussed
how long to stay on HT leads to rich discussion on testosterone; did salvage cryo bring his PSA down? And he needs a GU MO QB; cupplementing T with Clomid is new to AnCan; casting around for intial treatment; ststarting Prolia that’s NO lifetime drug; tachycardia and AFib; recovering from 6x dicetaxel; b est treatment options for Stage T3 ; holding steady; allowing PSA to rise to find source of oligo-Mx; can we add Pluvicto to MDT later in the cycle?
Chat
Frank Ciambra sent: 5:10 PM
my wife is a nurse working in cardiology ,im going to share this witth her
John M – Chicago sent: 5:11 PM
Don I am doing great. Feeling stronger. Exercise is the KEY. Everything progressing according to plan. I’m going to my sons house to be with him, his wife and my grandson. What about you?
Jim Marshall, Veteran, Alexandria, VA sent: 5:27 PM
AFib – Join the club with others. Jim Marshall
Julian – Houston sent: 5:29 PM
I had AFIB then had cardiac ablation in March 25 and then it went away!
Jim Marshall, Veteran, Alexandria, VA sent: 5:30 PM
AFib is Mutually exclusive with Vitamin K. Jim Marshall;
Jim Marshall, Veteran, Alexandria, VA sent: 5:32 PM
Have AFib and take Blood Thinner, Pradaxa, Metropolol Tartrate and a Statin – Pravastatin. Jim Marshall
AnCan – rick sent: 5:33 PM
abir-A-terone
Jim Marshall, Veteran, Alexandria, VA sent: 5:34 PM
Lupron/Eligard and Abi have warnings for those who have heart issues. Jim Marshall
Alfredo in Houston, TX sent: 5:37 PM
Vitamin K potentially interferes with anticoagulants (blood thinners). And you also get vitamin K in your diet from leafy greens. Everyone please remember to discuss ALL supplements with your physician AND pharmacist.
TonyFig sent: 5:39 PM
There is a strong link between sleep apnea bringing on A-Fib.
Alfredo in Houston, TX sent: 5:41 PM
I am being called to supper now, so I must leave — but not before wishing a Happy Thanksgiving to everyone. Good night
AnCan–John A sent: 5:48 PM
stereotactic body radiation therapy
Julian – Houston sent: 5:53 PM
Happy Thanksgiving to all!!!
TonyFig sent: 5:56 PM
Blood Thinner – a naturopath approach for anticoagulation can be quite risky as it may not present consistent and reliable levels to address A-Fib episodes or other cardiac issues. I discussed this with cardiac surgeons as well as a heart biologic replacement valve supplier. I would not take the risk of naturopath solution for this application.
Nattokanese, Vit E, Ginger, Omega Oils in high dose, Cayene Pepper Tumeric, etc
John M – Chicago sent: 6:04 PM
Have a great Thanksgiving everyone!
Dennis Correia sent: 6:07 PM
Happy Thanksgiving all
Barry Blomquist sent: 6:07 PM
Have to jump – Happy Thanksgiving to everyone and thank you all!
dan-s sent: 6:09 PM
Thanks all – Happy Thanksgiving
Jerry Pelfrey sent: 6:10 PM
Time to go. Everyone have a wonderful Thanksgiving.
Larry (Alaska) sent: 6:14 PM
Suggesting Pluvicto as first-line treatment instead of ADT as first-line?
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 17, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Assessing recurrence and IDC-P repeat this week.
Topics Discussed
Signs of recurrence after 8 years; lymphedema and RT; does Newbie understand his proposed RT – is it optimal?; signs of BRCA2 recurrence post RP; doublet or triplet for denovo Mx Gent with IDC-P; explaining types of HT treatment; likely PSMA negative Gent challenged to confirm recurrence; PSA spike & fall for IHT man; fatigue after ARSI is added; estradiol supplement experience; pushing exercise helps mitigate HT; IDC-P teatment challenge – RP vs RT; bisphosphonate vs denosumab as bone strengthener
Chat
Larry (Alaska)
sent: 6:17 PM
Was there a decipher test? indicating aggressiveness?
Larry (Alaska)
sent: 6:24 PM
I wonder how old those NIH studies Barbara and Joe are reading?
while that email may work I got a different address
Jeff Marchi – San Francisco
sent: 6:53 PM
Send an email to Ming.zhou@mountsinai.org to inquire about a second opinion and ask for his specific instructions for the process.
Jim Stewart Reno, NV
sent: 7:07 PM
have to sign off, thanks all and have a good night
Jon McPhee Toronto
sent: 7:33 PM
Have to go. Thanks for the meeting.
Larry (Alaska)
sent: 7:37 PM
AI just told me that 1- micro-ultrasound does not require a contrast dye and uses equipment that is more accessible than MRI. 2- Other than that, they seem to be seen as complementary rather than competing. MRI is better at detecting some lesions and micro-ultrasound better at others.
Stan Friedman
sent: 7:48 PM
Sorry. Need to sign off. Will update on my pluvicto treatments next week. Thanks.
Jim Marshall, Veteran, Alexandria, VA
sent: 7:53 PM
Chocolate is a veggie!!!!!! Jim
TonyFig
sent: 7:53 PM
Rick will get a 3 knot boost when rowing with caffeine
St
sent: 7:56 PM
my experience has been that the fatigue comes mainly from lack of estrogen, not from the lack of T. An E2 patch helped me enormously
Bob Y. Los Angeles
sent: 7:57 PM
I had a couple of short questions, but I have to leave now. I’ve had an MRI and a biopsy, Gleason 4+5. I’m waiting to get a PET Scan on Dec 5th. I was hoping to get the PET earlier and so I made an appt with a urologic oncologist, Timothy Daskivich for a 2nd opinion on Nov 26th. Now I’ll be going to see him without being able to show him the PET results. I’m wondering if that appt is still valuable.
Barbara and Joe
sent: 7:59 PM
why do you have to take something as toxic as prednisone with abiraterone?
Don Rogers
sent: 8:00 PM
got to go
Eric James; Tyler TX
sent: 8:00 PM
Barbara and Joe: side effects of abiraterone. Your body stops producing cortisol on abiraterone so it needs to be replaced with something similar.
AnCan–John A
sent: 8:00 PM
Barbara and Joe the body absolutely needs the corticosteroid.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:01 PM
Abi stops the Adrenal Glands which makes Cortisol. Presidnsone makes the Cortisol.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:02 PM
One needs Cortisol. Jim Marshall
AnCan – rick
sent: 8:10 PM
Estradiol seminar w. Steve S https://ancan.org/talking-estradiol-e2-for-recurrent-and-advanced-prostate-cancer/
Keith H. (southern Oregon)
sent: 8:15 PM
thanks for all this, I got to go, but grateful for expertise and this group.
Thomas Matica
sent: 8:21 PM
Short update. Can wait till next meeting. Got to run. Thanks everyone.
Barbara and Joe
sent: 8:23 PM
I hope it’s a low dose of predisone — it just about killed my mother with her rheumatoid arthritis.
Jim Marshall, Veteran, Alexandria, VA
sent: 8:23 PM
5mg of Prednisone is used. Jim M
Jim Marshall, Veteran, Alexandria, VA
sent: 8:24 PM
Although once you stop it one still should taper off versus Cold Turkey. Jim
Steve White
sent: 8:28 PM
Have to drop…thanks again
Alfredo in Houston, TX
sent: 8:35 PM
I must drop off now, thank you everyone; stay well.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 11, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Can abiraterone impact your hearing?
Topics Discussed
Newbie’s uro pushes surgery against the odds; abi Gent back on prednisone – no harm, no foul; bladder clots resolved and catheter removed – but watch the heavy lifting; hyperbaric treatment for RT cystitis; treatment plan is durable; more bladder clots during Pluvicto; PSA 435 to 0.12 after 6x chemo; alcohol + LHRH = liver problems; moving apalutamide from a.m. to p.pm. helps; could abi effect hearing?; triplet Gent seeks solid 2nd opinion; for how long can you take bone strengtheners?; small porotid tumor requires action; Scott Adams tries bladder cancer drug with Pluvicto
Chat
Keith sent: 4:10 PM
I’m new to this group and accessing: I’m Keith in Oregon–I can’t get my camera to work, yet. I can hear all you fine, thankyou. I will work on getting it so you can hear me and see me. thank you!
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 3, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: High volume de novo metastatic diagnosis calls for triplet therapy.
Topics Discussed
Newbie with IDC-P (intraductal ) graduates from Low/Intermediate to High Risk Group; … and this Newbie goes the other way; last Newbie’s in the right group – denovo Mx & triplet Tx; wait on debulking treatment; 6 mo. doublet may not have been enough – discuss resumption w. Rettig; restart that prednisone ASAP; what to watch out for starting chemo – Neulasta, freeze packs et al; surgery removes cystitis tissue and finds no cancer
Chat (unabridged)
AnCan – rick
sent: 6:13 PM
877 852 7011 GoTo help
Jim K
sent: 6:18 PM
Yes, my med onc suggested that I check out AUS bcz of my incontinence.
I’d like to see if anyone in the group has had the artificial sphincter put in.
I used to attend X (?) years ago, and stay in touch with Rick, and read the emails. I’ve been undetectable since June 2019, after a recurrence and radiation, after a Rad Pros in Aug 2017.
Jeff Marchi – San Francisco
sent: 6:23 PM
Jay from Miami raised his hand about intraductal
Jim K
sent: 6:23 PM
Thumbs up.
No. Vietnam started to wind down by the time I hit 18, if I recall correctly.
AnCan–John A
sent: 6:25 PM
Jim K; So you have no mike but can hear us, right? I have had the AUS. —John A
Jim K
sent: 6:25 PM
Yes, no mic, but can hear the members.
Jim Marshall, Veteran, Alexandria, VA
sent: 6:26 PM
Think Jim K mike may work. Jim M
Jim K
sent: 6:27 PM
I’m using the browser, on Chrome, not the app, but it’s not enabling my mic. I’m on a Mac laptop.
Yeah, no discernable improvement with Kegels. I use 7 or more pads per day. Just one at night. BUT, to keep my remaining kidney in good shape, I drink 96 oz of water per day, so, lots of peeing, understandably.
Thanks, Larry, I’ll email you.
Steve R.
sent: 6:30 PM
A short video on Intraductal diagnosis and treatment from Urology Times https://www.urologytimes.com/view/dr-miron-on-the-treatment-of-intraductal-carcinoma-of-the-prostate
Will discuss it tomorrow night. Give Dr P my best. My PSA = 0.12 and I do not go back to her till it reaches PSA=0.8-1.0. Might be sometime next year. Jim
Frank Ciambra
sent: 7:06 PM
good night
Mark N
sent: 7:12 PM
Dr. John, I just sent you Dr. Epstein’s biopsy results. Thank you
Jeff Marchi – San Francisco
sent: 7:12 PM
Chicago Illinois Which one? At U of Chicago Russell Szmulewitz, MD – UChicago Medicine Or at Northwestern David J VanderWeele : Physician Profile: Robert H. Lurie Comprehensive Cancer Center of Northwestern University : Feinberg School of Medicine: Northwestern University
Jeff Marchi – San Francisco
sent: 7:15 PM
MSI (microsatellite instability) testing for prostate cancer is performed in specialized pathology laboratories using tissue samples obtained during a biopsy or surgery.
Len Sierra
sent: 7:17 PM
According to AI, Tumor Mutational Burden (TMB) can be measured in both solid tissue biopsy (tTMB) and liquid biopsy (bTMB
Concordance between liquid TMB and tissue TMB can vary if tumor is not shedding into the blood.
Gary Martin
sent: 7:23 PM
Thank you very helpful information.
Jim Marshall, Veteran, Alexandria, VA
sent: 7:30 PM
I did 60 mionths of ADT + Abi and now am 39+ months into a Treatment Holiday. Jim Marshall
Jon McPhee Toronto
sent: 7:31 PM
What duration of doublet is recommended?
Jim Marshall, Veteran, Alexandria, VA
sent: 7:32 PM
Amount of time answer …. It Depends on many factors.
Bob Schwartz U.S.N. Venice, FL.
sent: 7:35 PM
Congrats Capt. Jim, 39+ months is GREAT!
Jim Marshall, Veteran, Alexandria, VA
sent: 7:37 PM
Eligard & Lupron is the exact same drug with a different method of delivery. Jim
Jim K
sent: 7:40 PM
I have to go, but am interested in AUS surgery. My email is: jimkubat@yahoo.com, if any of you have any time to chat about it. Larry, I’ll reach out. Thanks, Rick!!
AnCan – rick
sent: 7:42 PM
Orgovyx
Hank Zajic Springfield VA
sent: 7:48 PM
I have to go. Thank you everyone.
dan-s
sent: 7:51 PM
I have to go Gents… thanks for another great session
Gary Martin
sent: 7:57 PM
I asked about getting the anti-neutropenia meds and was told they did not plan on ordering those. My blood counts have not been extremely low and I seem to be tolerating docetaxel so far thru 5 infusion, though fatigue has been increasing.
Bruce Schrimpf
sent: 7:59 PM
Must run. Thanks for a great session! I will see Capt. Jim tomorrow.
Joe Comanda (Philadelphia)
sent: 8:00 PM
Need to take off. Will hold my question for another time.
Eric Curtis
sent: 8:05 PM
Gotta run. Appreciate the info
Gary Martin
sent: 8:05 PM
I’ve used cryotherapy (gloves and socks) circulating ice water with Polar Products equipment (available on Amazon) Use it 15 minutes before, during, and 15 minutes after infusion. So far, it’s working to avoid/minimize neuropathy. I also got the frozen gel gloves and socks as backup. It’s a hassle but I think wellworth the effort.
