Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 11, 2025

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Editor’s Pick: A long discussion on dealing with ADT-induced edema. (bn)

Topics Discussed

Swollen ankles and face, “incredible pain in my hips,” spiking blood pressure — these are common with ADT, and the medoc should be taking charge; a fruitful exchange follows about blood pressure, bone strengtheners, and edema; radonc we like surprises us by treating 7 tumors with spot radiation; osteoarthritis doesn’t seem a likely cause for a positive PSMA; Tennessean likes Dr. Antonarakis, who’s great — but Dr. E’s closer; what are the right questions to ask his radoc before starting treatment?; you can’t know how much ADT will affect you — but exercise definitely helps.

Chat Log

Steve Roux, North Michigan · 6:26 PM
abiraterone and prednisone can both raise blood pressure.

AnCan  – rick · 6:31 PM
Boniva or Reclast are the injectable bisphosphonates

Gary V  Portland, Oregon · 6:35 PM
Would recommend Sectral as Beta  blocker much more effective at controlling heart rhythm issues.

Jim Marshall, Alexandria, VA · 6:37 PM
For my heart Bypass follow on and the Edema in the legs there are Compression Socks.

Wes – San Diego · 6:43 PM
Yes, elevation above the heart, which can be hard to do even at night, or hard on the hips. But compression socks or anklets are both helpful.

Wes – San Diego · 6:45 PM
Good compression socks are expensive, $30 each. But well worth it. Huge door I did not know after 10+ years of eroding my foot bones and pain via gout, with near  constant edema, especially in my lower left leg.

Jim Marshall, Alexandria, VA · 6:45 PM
Compression socks from the VA come from “Ames Walker” retailing for around $34.  Be sure to get the meausrement right.  They work well.    Jim

Dr Jeff · 6:46 PM
$30 for a good pair is on target. Have your family and friends buy them for you for your birthday. Well worth the $

Dr Jeff · 6:48 PM
You probably need 20-30 mm Hg

Jerry Grimes, Brighton, MI · 6:53 PM
Search Dr. Richard Wassersug online for information about estradiol therapy for recurrent/advanced prostate cancer.

He has spoken here before:

AnCan  – rick · 7:08 PM
Estradiol Session recording with Richard Wassersug https://ancan.org/talking-estradiol-e2-for-recurrent-and-advanced-prostate-cancer/

david opp · 7:25 PM
I was attacked by a cow and had bruised and 1 cracked ribs, 2 weeks later a PSMA scan lit up those bruised ribs but the radiologist did not give a suv number saying this should be confirmed by patient information.

Julian – Houston · 7:39 PM
https://www.houstonmethodist.org/doctor/eleni-efstathiou/

Michael – TN · 7:41 PM
I had trouble getting in touch with Dr E and noticed there was a typo in the email address provided in the emails and other groups.

Here is the right contact gdeliguori@imppllc.com

Craig Christensen · 7:51 PM
Recommended rad oncs at Irvine City of Hope for MR guided RT?

AnCan  – rick · 7:52 PM
Percy Lee GU RO https://www.cityofhope.org/percy-lee

AnCan  – rick · 7:53 PM
Kishan UCLA  RO https://www.uclahealth.org/providers/amar-kishan

TonyFig · 8:02 PM
Dr. Sholtz thoughts on radiation versus surgery  https://www.youtube.com/watch?v=aGEVAWx2oNs

Craig Christensen · 8:04 PM
Decipher range  is 0 to 10

Len Sierra · 8:04 PM
Just be aware that Scholz has a strong bias against surgery.

Wes – San Diego · 8:12 PM
Note should take K2 with D3; I take 5K-10K/day and finally got back to normal range, took years; and I live in SD and see the sun routinely.