Hi-Risk/Recurrent/Advanced PrCa Video Chat, Dec 1, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: How do you pick a doctor for a second opinion?
Topics Discussed
bladder control during salvage RT sessions; surgery vs RT for Gent with IDC-P; who to trust for a 2n opinion; gratitude for AnCan’s support; embarking on chemo on ice – report after 1st round;… abd finishing chemo – what next?: recurrence after salvage RT 7 yrs calls for PSMA – but KP is slow on the uptake; T level falls in hours after starrting Orgovyx… really??
Chat
AnCan – rick
sent: 6:03 PM
877 582 7011
AnCan – rick
sent: 6:05 PM
Number for GoTo technical support
Bob Y — Los Angeles
sent: 6:21 PM
Gerry, How did you decide on surgery as the first line of treatment?
Jeff Marchi – San Francisco
sent: 6:27 PM
wiesner clamp
AnCan–John A
sent: 6:40 PM
MSKCC nomogram
AnCan – rick
sent: 6:40 PM
http://nomograms.mskcc.org/Prostate/index.aspx
Gerry & Cynthia
sent: 6:41 PM
thank you
AnCan–John A
sent: 6:44 PM
I see PSA, gleason, age, NCCN risk, and tumor stage on the arterra report
AnCan–John A
sent: 6:45 PM
and the bx slides of course
AnCan – rick
sent: 6:51 PM
Partin tables
Mark N
sent: 6:52 PM
Labcorp test 481220
TonyFig
sent: 6:53 PM
here is another similar labcorp test https://www.labcorp.com/tests/483555/vistaseq-prostate-panel
AnCan–John A
sent: 6:56 PM
If your focus is on inherited genetic risk factors, the Color gene test is likely more complete. If you are seeking tumor-specific genetic profiling or somatic mutations relevant to prostate cancer management, Labcorp #481220 might be more comprehensive.
Jeff Marchi – San Francisco
sent: 6:57 PM
Check out how running may stop prostate cancer from getting worse https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
AnCan–John A
sent: 6:57 PM
All I can find so far on #483555 is it’s specially for prostate cancer
Eric James; Tyler TX
sent: 7:05 PM
has anyone had trouble with their camera working on Go To Meeting? Sometimes my camera works on these meetings and sometimes it doesn’t.
Jeff Marchi – San Francisco
sent: 7:06 PM
5 years, 4 different camers on PC, IPADs and iphone
Jeff Marchi – San Francisco
sent: 7:06 PM
never a problem
Jeff Marchi – San Francisco
sent: 7:06 PM
are you on a PC?
Eric James; Tyler TX
sent: 7:06 PM
yes
Jim Marshall, Veteran, Alexandria, VA
sent: 7:07 PM
When I cheaped out on buying Internet bandwidth. Jim
Jeff Marchi – San Francisco
sent: 7:07 PM
if camera doesn’t work go to gear at top right and check camera settings. is the right one selected
Eric James; Tyler TX
sent: 7:08 PM
I only have one camera. In the PC.
Eric James; Tyler TX
sent: 7:08 PM
I suppose I could try adding a new external camera
Gary Martin
sent: 7:08 PM
My PC camera did not work tonight for first time (after WIndows 11 update). Had to switch to external camera.
Jeff Marchi – San Francisco
sent: 7:08 PM
some windows 10 cameras don’t work with win 11
Mark N
sent: 7:09 PM
I had to restart my laptop to get it connect to my mic tonight
Eric James; Tyler TX
sent: 7:09 PM
I
Jeff Marchi – San Francisco
sent: 7:09 PM
restarting is a real fix many times
Jim Marshall, Veteran, Alexandria, VA
sent: 7:09 PM
When I do GOTO I make sure no other apps are running. Many folks leave a whole bunch of apps open which takes memory. Jim
Eric James; Tyler TX
sent: 7:09 PM
I’ve restarted, tried in Chrome and Outlook.
Jeff Marchi – San Francisco
sent: 7:10 PM
did the camera work with zoom or other app
Jim Marshall, Veteran, Alexandria, VA
sent: 7:10 PM
Are you using the Browser Interface for Chrome. Jim
Eric James; Tyler TX
sent: 7:11 PM
It has always worked in the past with zoom
Eric James; Tyler TX
sent: 7:11 PM
I’ve opened in Chrome and Outlook. I don’t know what an interface is.
Jeff Marchi – San Francisco
sent: 7:11 PM
ask goto support 877 582 7011
Jeff Marchi – San Francisco
sent: 7:12 PM
you mean edge not outlook
Eric James; Tyler TX
sent: 7:12 PM
yes
Eric James; Tyler TX
sent: 7:13 PM
I’ll try calling go to support and possibly try an external camera
Larry Schuller
sent: 7:13 PM
Interface: where two systems or programs talk to each other/exchange signals
Eric James; Tyler TX
sent: 7:13 PM
thanks
Jeff Marchi – San Francisco
sent: 7:13 PM
electrolytes give more energy
Larry Schuller
sent: 7:14 PM
Exercise begets Energy…Putit on your car’s sunvisor. Put it on your refrigerator. Put it on your mirror
Jeff Marchi – San Francisco
sent: 7:15 PM
Check out how running may stop prostate cancer from getting worse https://pmc.ncbi.nlm.nih.gov/articles/PMC12535562/
Jeff Marchi – San Francisco
sent: 7:17 PM
i could not run a mile on the track until I started taking electrolytes that enabled me to build up my stamina so I didn’t need it any longer
Jeff Marchi – San Francisco
sent: 7:18 PM
i run a mile twice every day
Jim Stewart Reno, NV
sent: 7:24 PM
have to sign off. grandkid duty…good night all!!!
Hank Zajic Springfield VA
sent: 7:24 PM
Thank you all for tonight’s session. I have to drop off.
RJ Smith (Seattle)
sent: 7:25 PM
Thanks all for the great words of encouragement! I’ll give myself a few breaks and still try to push through as far as is reasonable (without going too far).
Mark N
sent: 7:28 PM
Signing off, thanks !!
Larry Schuller
sent: 7:28 PM
Wait for it to come back? Or get ahead of what you think MIGHT happen? Hard choice.
Len
sent: 7:43 PM
Gary Martin and Mods – the PEACE-1 trial has a group of patients receiving RT added to the systemic triple therapy (ADT + Docetaxel + Abiraterone). The full results regarding the role of RT in this specific quadruplet combination are “highly anticipated.”
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 25, 2025
Happy Thanksgiving to all our AnCan particpants, especially if not on our mailing list. We’d have to ask why not, when you can sign up at https://ancan.org/contact-us/ and recive our great Newsletter/Reminder.
CORRECTION (rd)
I want to apologize and make a correction for someting I said in last Tuesday’s support group. At the end we were discussing adding a couple of Pluvicto treatments to Metastatic Directed Therapy. However this was for a man who had progressed rather than having just been diagnosed oligometastatic as in the LUNAR trial reported in the Reminder last week. I mentioned he might be eligible in the USA as Pluvicto is approved for metastatic hormone sensitive prostate cancer. This is not the case, and I misspoke. PSMAddtion was positively reported for mHSPC use at the recent ESMO conference – thank you Dr. Paul for this link. To date, it has not been FDA approved. I knew of the trial and got ahead of the game; although I was confusing it with PSMAFore.
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Robust discussion around testoterone early on – and thoughts about combining therapies at the end.
Topics Discussed
how long to stay on HT leads to rich discussion on testosterone; did salvage cryo bring his PSA down? And he needs a GU MO QB; cupplementing T with Clomid is new to AnCan; casting around for intial treatment; ststarting Prolia that’s NO lifetime drug; tachycardia and AFib; recovering from 6x dicetaxel; b est treatment options for Stage T3 ; holding steady; allowing PSA to rise to find source of oligo-Mx; can we add Pluvicto to MDT later in the cycle?
Chat
Frank Ciambra sent: 5:10 PM
my wife is a nurse working in cardiology ,im going to share this witth her
John M – Chicago sent: 5:11 PM
Don I am doing great. Feeling stronger. Exercise is the KEY. Everything progressing according to plan. I’m going to my sons house to be with him, his wife and my grandson. What about you?
Jim Marshall, Veteran, Alexandria, VA sent: 5:27 PM
AFib – Join the club with others. Jim Marshall
Julian – Houston sent: 5:29 PM
I had AFIB then had cardiac ablation in March 25 and then it went away!
Jim Marshall, Veteran, Alexandria, VA sent: 5:30 PM
AFib is Mutually exclusive with Vitamin K. Jim Marshall;
Jim Marshall, Veteran, Alexandria, VA sent: 5:32 PM
Have AFib and take Blood Thinner, Pradaxa, Metropolol Tartrate and a Statin – Pravastatin. Jim Marshall
AnCan – rick sent: 5:33 PM
abir-A-terone
Jim Marshall, Veteran, Alexandria, VA sent: 5:34 PM
Lupron/Eligard and Abi have warnings for those who have heart issues. Jim Marshall
Alfredo in Houston, TX sent: 5:37 PM
Vitamin K potentially interferes with anticoagulants (blood thinners). And you also get vitamin K in your diet from leafy greens. Everyone please remember to discuss ALL supplements with your physician AND pharmacist.
TonyFig sent: 5:39 PM
There is a strong link between sleep apnea bringing on A-Fib.
Alfredo in Houston, TX sent: 5:41 PM
I am being called to supper now, so I must leave — but not before wishing a Happy Thanksgiving to everyone. Good night
AnCan–John A sent: 5:48 PM
stereotactic body radiation therapy
Julian – Houston sent: 5:53 PM
Happy Thanksgiving to all!!!
TonyFig sent: 5:56 PM
Blood Thinner – a naturopath approach for anticoagulation can be quite risky as it may not present consistent and reliable levels to address A-Fib episodes or other cardiac issues. I discussed this with cardiac surgeons as well as a heart biologic replacement valve supplier. I would not take the risk of naturopath solution for this application.
Nattokanese, Vit E, Ginger, Omega Oils in high dose, Cayene Pepper Tumeric, etc
John M – Chicago sent: 6:04 PM
Have a great Thanksgiving everyone!
Dennis Correia sent: 6:07 PM
Happy Thanksgiving all
Barry Blomquist sent: 6:07 PM
Have to jump – Happy Thanksgiving to everyone and thank you all!
dan-s sent: 6:09 PM
Thanks all – Happy Thanksgiving
Jerry Pelfrey sent: 6:10 PM
Time to go. Everyone have a wonderful Thanksgiving.
Larry (Alaska) sent: 6:14 PM
Suggesting Pluvicto as first-line treatment instead of ADT as first-line?
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Nov 11, 2025
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Can abiraterone impact your hearing?
Topics Discussed
Newbie’s uro pushes surgery against the odds; abi Gent back on prednisone – no harm, no foul; bladder clots resolved and catheter removed – but watch the heavy lifting; hyperbaric treatment for RT cystitis; treatment plan is durable; more bladder clots during Pluvicto; PSA 435 to 0.12 after 6x chemo; alcohol + LHRH = liver problems; moving apalutamide from a.m. to p.pm. helps; could abi effect hearing?; triplet Gent seeks solid 2nd opinion; for how long can you take bone strengtheners?; small porotid tumor requires action; Scott Adams tries bladder cancer drug with Pluvicto
Chat
Keith sent: 4:10 PM
I’m new to this group and accessing: I’m Keith in Oregon–I can’t get my camera to work, yet. I can hear all you fine, thankyou. I will work on getting it so you can hear me and see me. thank you!
NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14.
Sign up at https://ancan.org/contact-us/
AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: What’s the right group for me? (rd)
Topics Discussed
Older Newbie on longer term HT is concerned about bone health; post-RRP Gent at high risk considers preemptive radiation; a ‘regular’ preparing to complete HT wonders which group he belongs to; balancing estradiol and testosterone levels; reluctantly considering intermittent hormone therapy; challenges with an out-of-state GU med onc; treatment update and AnCan gratitude; chemo contunues with tests and GU MO encouraging; Gent takes AnCan advice switching to MSKCC.
Chat Log
Steve L
sent: 5:23 PM
No response needed but I want to share that I have lost 18 pounds since my pulmonary embolism cleared. Unfortunately I had gained 48 pounds during the nearly 12 months it took to clear. So 30 plus to go.
Larry (Alaska)
sent: 5:26 PM
Bone strengthening: Bone loss on ADT is considered to be because of too-low estradiol level (same reason post-menopausal women) caused by depression of estradiol that accompanies suppressing testosterone. A man needs a certain level of estradiol which can be supplemented by patches or gel taken through the skin. Standard-of-Care bone strengtheners have side effect that estradiol does not.
Good input, Larry. I agree completely. Lots of docs pitch a fit about it, often based on very old work with non-bioidentical estrogens, orally administered.
Larry (Alaska) sent: 5:42 PM
Look up the “PATCH” study which compared E2 to Lupron over 15 years time
Jeff Marchi – San Francisco sent: 5:44 PM
UCSF bone health seminar May 2025 Therapy – for all men on hormonal therapy • Calcium 1200mg daily • Vitamin D 400 units daily • Denosumab or Zoledronic Acid for mCRPC or Osteoporosis
Thomas Matica sent: 5:49 PM
K2 works in conjunction with vitamin D (D3 preferred) aiding with absorption of the vitamin D. Good idea to take both.
Larry (Alaska) sent: 5:50 PM
AND weight-bearing exercise strengthens bones. Take it as seriously as you take your other medications!!!!!!
Jim Marshall, Veteran, Alexandria, VA sent: 5:51 PM
Vitamin K is great except for those of us on Blood Thinners. Jim M
Brian Haack – Eagle, ID sent: 5:54 PM
Gotta run. Great discussion!
Lee Baylin, Baltimore sent: 6:08 PM
good night all
Steve L sent: 6:12 PM
My radiation was not an initial treatment but 42 months after my De novo diagnosis and after numerous treatments. My prostate had been substantially reduced in size prior to the radiation.
Steve White sent: 6:16 PM
Need to run. Thanks for the discussion
Jim Akin, Bradenton, FL sent: 6:26 PM
Larry, try using app ChatGPT in your research. That is an AI app.
Jeff Marchi – San Francisco sent: 6:28 PM
At U of Chicago Russell Szmulewitz, MD – UChicago Medicine Or at Northwestern David J VanderWeele :
Larry (Alaska) sent: 6:30 PM
Jim, I have used the heck out of AI, especially “Perplexity” and extensively studied the source materials it cites. A number os AI engines are very good. Check out also David Diaz’s book “How to use AI to fight your prostate cancer” available through AMAZON Thanks for the suggestion, Jim.
Hi-Risk/Recurrent/Advanced PCa Video Chat, May 5, 2025
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix, Blue Earth Diagnostic and Foundation Medicine.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: How to follow PARP-I for BRCA1 Gent (rd)
Topics Discussed
Setting up for recurrence treatment in Alberta, Canada; PSMA rules out Mx, but what about other pelvic issues – bone Bx to follow; debulk IMRT done – SBRT boost to follow; 2 Pluvicto sessions reveal good progress; 90 days max for vacay meds on Medicare; is darolutamide monotherapy enough?; will new test to replace PSA work for recurrence?; how long to PSA nadir on HT?; Tricare alone not enough – join Vets to learn how to dual enroll; Payer denies Orgovyx – what to do; Marine Chaplain can’t find his voice – so uses Chat!
