There are so many great sources of highly quality information that we at AnCan do not need to contribute to the overload. But when we see a good article we will bring it to you, especially if it pertains to any of our groups. So here are two that fall into that category.
The first follows up on a queston raised in our Advanced Prostate Cancer Group on Tuesday, when a particpant asked whether he could delay treatment … in particular androgen deprivation and bone strengthening shots. And the week before we had a discussion about hospital visits at this time of virulent crisis. This article from The Washington Post reports on how the Covid19 is effecting several different cancer patients including one advanced prostate cancer patient enrolled in a clinical trial, who has adjusted his treatment.
The second link is to a CURE Talks interview with Dr. Stephen Pergam, Fred Hutchinson Cancer Center, University of Washington and several multiple myeloma patient advocates on the interesection of Covid19 and MM/blood cancers. You can listen to it here .
For us at AnCan, we have definitle seen an upswing in attendance to our meetings. In response we have added two sessions, and two new meetings for blood cancers, and for ovarian cancer.
For our prostate cancer followers, patients & caregivers, PCRI announced yesterday that its mid-year one-day conference on Saturday, March 28 will now be held as a virtual gathering with a live FREE stream …. all you need do is register here.
The conference features as always the dynamic variety duo, Drs. Mark Moyad and Mark Scholz. They will be joined by 3 excellent speakers:
GU Medical Oncologists, Dr. Evan YU from Seatle Cancer Alliance/ University of Washington Med School
Radiation Oncologist, Dr. Jeffrey Demanes from UCLA
Genomic specialist, Dr. Joannne Wiedhaas, UCLA
Each speaker will be followed by Q&A fielding your written questions that can be submitted ahead of time. And it will conclude with 90′ of Q&A with Moyad & Scholtz.
This is a terrific opportunity for you to ask the experts all those questions your own medical team has not answered completely and/or we are not fielding in one of our NINE, yes 9!, monthly VIRTUAL PC support groups. AND this crew will respond to personal situations and provide somewhat filtered medical advice that we cannot do.
That should cover it all, but just in case not, here again is the PCRI Conference website:
Like many of you this week, I have been reading multiple articles about how the corona virus may effect those living with cancer and how best to protect ourselves. Many of us who did not take this threat too seriously 3 weeks ago, are now reevaluating although I remind everyone that it may be no worse than the influenza threat that kills many each year – albeit we don’t read about it daily. WHO estimates between 250,000 – 650,000 die from influenza annually.
Amongst several articles that are in my inbox, I have a couple of first hand experiences. The first is from Shira Zwebner, a regular contributor to the CURE website, that you’ll find here; and the second is by our Board Chair Peter Kafka, reprinted from his meeting reminder to the virtual group Peter moderates. (rd – apologies for all the typos first time around; forgot to proof!!)
What A Difference A Week Makes
All of the sudden the world is thrust into a new paradigm in reaction to the onslaught of the Covid-19 coronavirus. I suspect that many of us can tell stories about how our lives and communities are already being impacted by this new threat. It looks like we are all in for quite a ride for some time to come. Some might discount these events or downplay the seriousness of the virus, but it can’t be denied that there is an overriding sense of fear and anxiety in many quarters.
How does this relate to those of us dealing with cancer? Oddly enough there are many crossovers and “take homes”. Who among us did not feel fear and anxiety and a sense that our world as we had known it was coming to an end when we were first diagnosed with this cancer? I know for myself that fear was a dominant feeling. Because it was all so new and I was unprepared and uninformed my emotional response was quite out of control. Fortunately, I found support quickly and was led to experts in the field who could set me on a steady course and explain exactly what was going on and help put things in perspective.
Most of us have found that our worlds did not completely fall apart. Yes, many things may have changed – they certainly have for me and those closely around me. But life has gone on and adjustments have been made. We humans are remarkably resilient creatures and can adapt to amazing challenges and circumstances. For myself, I have just embarked upon a heavy-duty regimen of chemotherapy for my aggressive advanced prostate cancer. Perfect timing to put myself into a situation where my immune system will be further compromised by the chemotherapy infusions. And what a time to have to show up at our local hospital every three weeks for a day of infusions. So much for my luck.
I guess I am one of the lucky ones who has jumped to the head of the line in the high-risk category for dying from Covid-19 Coronavirus, over 70 years old with cancer and a compromised immune system. But somehow, I am just not over consumed by this thought at the moment. I am not going to be cavalier and take stupid risks, but I can really only deal with one big threat at a time and for me it happens to be the prostate cancer. I think my ongoing 6-year journey with this disease has put me in a mindset of preparedness. Fear is no longer driving my decisions and actions. Understanding and intelligence rule the day for me.
I am copying a post recently received from New PCI publcizing a short ASCO survey on how you embrace exercise and diet. As many know, AnCan strongly endorses exercise as part of any cancer management program; and sensible diet may also be significant and rarely hurts. I have taken the survey and encourage anyone previously diagnosed with any type of cancer to do so. (rd)
The American Society of Clinical Oncology (ASCO) has put together a brief research survey to learn more about patients’ experiences with cancer care. Specifically, ASCO is interested in patient’s perspectives on how things like diet, exercise, and weight management are incorporated into cancer care.
The survey should take most people no more than 10 minutes maximum to complete. All questions are optional, and ASCO has stated clearly that no personally identifiable information will be collected.
If you are an individual with a personal history of prostate cancer (or cancer of any other type), please click here to take this patient survey. Thanks for your help to ASCO in seeking to improve cancer care.
If you know others who are > 18 years of age and who have been diagnosed with any form of cancer, ASCO would also appreciate it if you passed information about this survey on to those people too. ASCO is seeking the widest possible range of responses to this survey from the cancer patient community.
Editor’s choice: Learn first hand about certain side effects from the immunotherapy drug, nivolumab (Opdivo).
Pharmokinetics of Lupron – explained a little; side effects of immunotherapy anti-PD1 drug Opdivo; treating liver metastasis; getting palliative doc involved; durolutamide results; starting ADT froom scratch; monitoring G5+5 PCa after you come off LHRH; what to know when starting chemo; neuropathy and maybe how to prevent it from chemo
Chat Log
Russ Smith (to Everyone): 7:20 PM: Turns out I was given a script today for Casodex.
Ken Anderson (to Everyone): 7:22 PM: Russ
Ken Anderson (to Everyone): 7:22 PM: good to know!
