CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshops. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from the convenience of your home or office. Leading experts in oncology provide the most up-to-date information via phone and online.
Please feel free to forward to friends, family, partners, caregivers, colleagues, health care professionals and anyone affected by cancer.
For more information and to register, please visit www.cancercare.org/connect or email connect@cancercare.org. Health care professionals: please contact us with your name, address, and license type for additional information regarding continuing education credits. Requests must be received within two weeks of the live program.
8/19/20 John Fortin presentation to the AnCan Active Surveillance Support Group
John Fortin, Patient Liaison for the American Urology Association, spoke August 19 to the AnCan Active Surveillance Support Group about his personal experience as a patient seeking help with a rising PSA score.
As a healthcare actuary with a 40+ year career in healthcare data analytics, John discussed options with various specialists and did an extensive review of studies to consider treatment plans: Active Surveillance, whole-gland treatments, and focal treatment. Since there was a lack of credible, published focal studies, John even conducted and published his own online survey of 100 patients who had undergone focal treatment to analyze oncologic outcomes, functional outcomes, and patient satisfaction level.
He concluded that focal therapy was the way to go for him. He has fared well and reports no side effects. John discussed the myths and realities of Medicare coverage of the treatment. It takes work, but he said patients can obtain coverage. Medicare reimbursed him $16,000 for the treatment.
John is a new member of the board of Us TOO International.
Kenny Capps is a pretty remarkable individual … a runner his whole life, he was diagnosed with Multiple Myeloma in 2015. Only in his mid-40’s, Kenny was much concerned about Quality of Life during treatment. much like AnCan’s Founder, Rick Davis, Kenny returned to endurance exercise soon after the bone marrow transplants. In 2018, he ran the 1125 miles N. Carolina Mountain to Sea Trail in 54 days.
Kenny has now partnered with AnCan to establish our Blood Cancer Virtual Support Group with his non-profit, Throwing Bones. Throwing Bones is dedicated to improving quaity of life for people living with blood cancers through sponsoring healthy and active lifestyles. It recently launched an educational webinar series on Exrecise & Cancer, that you can hear at https://throwing-bones.org/cancer-active-education/ .
Just a few days later, Kenny recorded an intereview with Eshter Schorr, Patient Power Co-founder. While that has not yet been published, it is coming soon on http://www.patientpower.info/ I, for one, can’t wait!
For Dr. Brian Helfand’s Slide Presentation, please click AS BHelfand presentation ppt (if Powerpoint slides do not open in a new tab, please check bottom of the screen for the download)
