PCRI goes VIRTUAL for its Mid-Year Update Conference

PCRI goes VIRTUAL for its Mid-Year Update Conference

For our prostate cancer followers, patients & caregivers, PCRI announced yesterday that its mid-year one-day conference on Saturday, March 28 will now be held as a virtual gathering with a live FREE stream …. all you need do is register here.

The conference features as always the dynamic variety duo, Drs. Mark Moyad and Mark Scholz. They will be joined by 3 excellent speakers:

  • GU Medical Oncologists, Dr. Evan  YU from Seatle Cancer Alliance/ University of Washington Med School
  • Radiation Oncologist, Dr. Jeffrey Demanes from UCLA
  • Genomic specialist, Dr. Joannne Wiedhaas, UCLA

Each speaker will be followed by Q&A fielding your written questions that can be submitted ahead of time. And it will conclude with 90′ of Q&A with Moyad & Scholtz.

This is a terrific opportunity for you to ask the experts all those questions your own medical team has not answered completely and/or we are not fielding in one of our NINE, yes 9!, monthly VIRTUAL PC support groups. AND this crew will respond to personal situations and provide somewhat filtered medical advice that we cannot do.

That should cover it all, but just in case not, here again is the PCRI Conference website:

https://pcri.org/2020-midyear-update#myu-speakers-topics

See you there … O&U, rd

CancerCare’s Upcoming Workshops Feb – April, 2020

CancerCare’s Upcoming Workshops Feb – April, 2020

There are several upcoming presentations that may interest particpants in several of our groups – we have highlighted them, including those for our NEW Blood Cancer group that will launch in April:
UsTOO Prostate Cancer Pathways – Live in Chicago AND Virtual Webinar

UsTOO Prostate Cancer Pathways – Live in Chicago AND Virtual Webinar

(AnCan strongly endorses this event presented by our prostate cancer partner, UsTOO. It features excellent speakers including one of our ‘all-time favorites’, genitourinary medical oncologist Dr. Alicia Morgans, as well as Dr. Maha Hussein. Please note this event is available LIVE in the Chicago Loop and by WEBINAR.)

 

UsTOO presents PROSTATE CANCER PATHWAYS

Free Educational Event and Webcast Series

Saturday, November 9
Robert H. Lurie
Medical Research Center
Baldwin Auditorium
303 E. Superior St.
Chicago, IL 60611
10:00 am – 3:00 pm

Featuring experts from the Polsky Urologic Cancer Institute of the Robert H. Lurie Comprehensive Cancer Center of Northwestern University at Northwestern Memorial Hospital, topics will include:

  • Radiation Oncology – Sean Sachdev, MD
  • Medical Oncology – Maha Hussain, MD
  • Men’s Sexual Health – Nelson Bennett, Jr., MD
  • Clinical Genetics – Carmen Williams, MS, CGC
  • Urologic Oncology – Shilajit D. Kundu, MD
  • Hematology and Oncology – Alicia Morgans, MD, MPH
  • Hematology and Oncology – David J. VanderWeele, MD, PhD

The conversation will be driven by input and questions from you and others in the prostate cancer community. And it’s all free of charge!

Attend this free event in person and enjoy a heart-healthy/prostate-healthy lunch and give-away items; OR watch the free online webcast providing live audio and video.

Please note that on-site space is limited. We will attempt to accommodate those registering in person on the day of the event, but we cannot guarantee a seat or a free lunch.

For the best Webcast experience, we recommend Google Chrome or Firefox. If you have any questions about joining the webcast, please reach out to support@mainstreamchicago.com.

Register for live and webcast at https://www.mainstreamchicago.com/ustoo-chicago-2019-registration/

5th Monday Webinar – Dr. Larry Fong Explains Immuno-Oncology – Mon, Sept 30, 8pm EDT

5th Monday Webinar – Dr. Larry Fong Explains Immuno-Oncology – Mon, Sept 30, 8pm EDT

AnCan Webinar

DR. LARRY FONG EXPLAINS IMMUNO-ONCOLOGY

To replay the webinar presentation, please click here. We recommend you download the Presentation Slide Deck to follow along – FongAnCan9-2019

AnCan is excited to host one of the World’s leading cancer immunologists, Professor Dr. Larry Fong . Not just a leading researcher in the field of immuno-oncology, AnCan’s good friend Larry is a highly compassionate genitourinary clinician who has treated several of our participants over many years. We are honored to have Larry as an Advisory Board Member,

Dr. Fong is the Co-Director and Medical Director the UCSF Cancer Immunotherapy Program, one of 5 Centers privileged to be part of the Parker Institute for Cancer Immunotherapy. While professionally he now has a pan-cancer focus, Larry’s sub-specialty is prostate cancer. He was the Principle Investigator for Sipileucel-T (Provenge) , the first therapeutic cancer vaccine to be  approved by the FDA back in 2010!

As you see above, Larry loves to smile – what a gift in the field of oncology! Not only does he smile often – he also has a great sense of humor. There’s a wonderful story behind this heart-warming pix with our dear, departed buddy, Jerry Carniglia – listen in to hear it! Amongst Jerry’s many talents, he was a collectible fine artist; this video, shown at a posthumous show at the Townsend Gallery on UC Berkeley campus, will make you smile and cry! Jerry’s Trust has donated some 18 enormous canvasses for display on rotation in the brand new Bakar Precision Medicine Building.

Dr. Fong will first explain the principles behind immuno-oncology in understandable terms with a pan cancer focus. He will then take questions on specific disease – BUT PLEASE keep your questions general rather than case specific.

“The Language of Cancer” –  WEBINAR, Monday, July 29 @ 8 pm Eastern

“The Language of Cancer” – WEBINAR, Monday, July 29 @ 8 pm Eastern

To listen to this AnCan webinar, click here.

The presentation slides (pdf format) can be downloaded here: Language of Cancer 072919

Many reading this post live with cancer … as ‘patients’ or ‘caregivers’. Well, maybe not as ‘patients’ …. perhaps you were a patient but now you’re in durable, or perhaps not so durable, ‘remission’?? So what do we call you … ?

In this day and age of politically correct language, we best be careful about the words used. Some people are pretty sanguine being described as ‘survivors’ – doesn’t bother me personally albeit others object strongly. And they feel even stronger about other aggressive nomenclature …. ‘warrior’ and ‘fighter’ can rise to the level of abhorrence.

Then there’s ‘cure’ ….. that’s a full discussion in itself. What exactly does it mean? Is cure even feasible for many touched by cancer?  How does it differ from ‘remission’; and, ‘lesion’ – should we say ‘tumor’. Have I piqued your interest yet …. our presenter and co-moderator, Dr. Richard Wassersug Ph.D, has written papers on this topic and counts a good 15 or more cancer-specific words to be used ‘with caution’!

On Monday, July 29th at 8 pm Eastern, Prof. Wassersug will be joined by journalist, Howard Wolinsky, trauma interventionalist and Stage 4 Cancer patient, Dr. Jamie Aten Ph.D, and cancer researcher diagnosed with cancer, Dr. Corrie Painter, Ph.D. . Professor Wassersug makes a short presentation followed by a stimulating panel discussion and audience questions moderated by yours truly and Dr. Wassersug … you may not agree but it will certainly give you pause for thought!

Meet The Panelists

Richard Wassersug, PhD is an Honorary Professor of Cellular & Physiological Sciences at the University of British Columbia, an adjunct professor at Dalhousie University in Nova Scotia, Canada, and a psychosocial researcher. He has been treated for prostate cancer and is the lead author on the book Androgen Deprivation Therapy: An essential guide for prostate cancer patients and the loved ones. He proudly holds the Ig Nobel Prize for his important work, “On the Comparative Palatability of Some Dry-Season Tadpoles from Costa Rica


Corrie Painter Ph.D is a cancer researcher at The Broad Institute ( MIT & Harvard), diagnosed with cancer. She is also the Associate Director of Count-Me-In, a Broad Institute initiative to create large scale genomic data bases for six different cancers (to date!), including her own angiosarcoma. It relies on  samples voluntarily contributed from those living with the respective diseases.  Corrie is also a mom, a runner, a patient advocate, and has never met a zebrafish she didn’t like!


Jamie D. Aten, PhD, is founder and executive director of the Humanitarian Disaster Institute (HDI) and Blanchard Chair of Humanitarian & Disaster Leadership at Wheaton College (IL). His books include the Disaster Ministry Handbook (InterVarsity Press) and A Walking Disaster: What Katrina and Cancer Taught Me About Faith and Resilience (Templeton Press). Follow him on Twitter @drjamieaten. Jamie’s article on the Language of Cancer was published earlier this year in the Philadelphia Inquirer.


Howard Wolinsky was the medical writer for the Chicago Sun-Times for 27 years. He was nominated twice for the Pulitzer Prize for his exposes of the American Medical Association. Howard taught medical writing in the graduate school at the Medill School at Northwestern University. He despises being called a survivor–an overkill term although better than “victim.” – read his MedPage Today piece from this past year here.

 


LINKS & ARTICLES

Colon cancer survivor and scientist: You’re so much more than a statistic – Jamie Aten Ph.D.

I Have Cancer. Please Don’t Call Me a ‘Survivor’ | Medpage Today – Howard Wolinsky 

Cancer ‘Survivors’: What’s in A Word? Jane Biehl, Ph.D.

‘Fighting’ Disease Is the Wrong Metaphor – Sunita Puri, MD

Do we need to end the ‘war’ on cancer? – Richard Wassersug Ph.D.

‘Cancer Warriors’: Fighting Cancer with Karate – Kenneth Rebstock

An Emotional Slap in the Face … two oncologists discuss the language that surrounds cancer | Medscape Video with transcript

‘War on Cancer’ metaphors may do harm, research shows | The Guardian, Aug 10, 2019