Solo Arts Heal with Karen Broder

Solo Arts Heal with Karen Broder

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal.

Friends, it was my absolute privilege to choose, produce, and host May’s guest – Karen Broder. A wordsmith, singer, musician, performance artist, raconteur, provocateur. “I’ve been called all kind of names and most of them are true. But that doesn’t tell the whole story.” Karen’s inimitable humor creatively crafts an arsenal of anecdotes to battle the forces of frustration — both real or Imagined.

You will absolutely love this show, the only disappointing part is it doesn’t go on longer! Karen will regale and reveal some of the stories she spins to throw shade at serious, if not, trivial irritations. Enjoy a dose of home grown ‘Humor Infusion’ to whet your psyche with laughter, art, and song.

Karen is one of our very first art friends, and a beloved member of our community. It has been a pleasure getting to know Karen, and you’ll get to know her even better after this show.

Watch here:

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 3, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 3, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 28, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s Pick: Buzz (and cautions) on oxybutynin for hot flashes (bn)
Topics discussed
Diagnosed de novo and now crossing into hormone resistance — it’s time to update somatic tests and PSMA before new treatment; pancreatic cancer, multiple myeloma, and now a PSA uptick – but our low/intermediate group might be a better fit; his diagnosis mirrors Rick’s from 2007, as does his treatment plan — he may have Rick’s great outcome, too; don’t let weight gain get a head start on ADT; MSK’s “not so fast” disrupts treatment plan and angers his local radoc; what’s it like getting spot radiation?; surprised to hear Dr. E recommend whole-body MRI; hyperbaric oxygen for his prostatitis — what’s the cataract risk?; urine flow getting worse — suspect radiation-induced strictures; ignoring urination problems risks kidney complication; strictures have him self-catheterizing daily; hot flashes with a vengeance on Orgovyx as drug holiday ends; buzz over oxybutynin for hot flashes — but beware contraindications (including the lutamides!) and side effects; ADT fatigue mounting as the months roll on — only solution is to be strong-willed and exercise anyway; a bit of renewed discussion of the Embr Wave hot flash device; don’t overlook depression as a factor in ADT fatigue; probiotics might help mood — check your blood, too.
Chat Log
John A · 8:20 PM
odd Yezefski,  patients like him, Tufts medical school, u of Washington fellowship and residency, specializes in GU
Mark Perloe, Sherman Oaks, CA · 8:48 PM
I don’t have the link, but I found a series of exercise videos on YouTube created by Hutch. They had a few that utilized bands are were quite easy to but into my regimen. I also got Peloton.
Mark Perloe, Sherman Oaks, CA · 9:22 PM
No, I’m pretty tied in to UCLA. Dr. Kishan is a leader in radiation and if planning RT, they have MRIdian SBRT. I would not advise anyone to seriously consider surgery. My bias, but I’ve spent the last three years online hearing about people with complications.
Wang Gao Shan – PANAMA · 9:25 PM
ASCO
Cheap Drug Eases Hot Flashes in Men With Prostate Cancer
— Anticholinergic oxybutynin for patients taking ADT also improved quality of life in the process
Mark Perloe, Sherman Oaks, CA · 9:25 PM
Darn 405 though.
Mark Perloe, Sherman Oaks, CA · 9:28 PM
I think MRIdian is the safest SBRT and the entire team is very experienced just doing prostates.
Mark Perloe, Sherman Oaks, CA · 9:29 PM
If you go to YouTube and search SBRT Kishan, there are numerous lectures he has recorded.
Mark Perloe, Sherman Oaks, CA · 9:31 PM
I would only go to a radiation oncologist who solely does prostate, bladder and kidney.
Frank Fabish Columbus OH · 9:35 PM
Thanks for the discussions guys. See you Tuesday.
Alan Babcock · 9:36 PM
I have to leave early
Joe Comanda (Philadelphia) · 9:40 PM
Need to leave right now. I’ll ask my question another time.
AnCan  – rick · 9:40 PM
Did you ask for time??
Steve Schuler · 9:43 PM
F150 or smart car?
Adam · 9:48 PM
Gotta hit the rack guys. Thank you for the informed discussion. Remember, ANYTHING IS POSSIBLE!
Peter · 9:50 PM
Goodnight all!
Matt – Sac · 9:58 PM
Goodnight all, great info as always. Be well!
AnCan  – rick · 10:08 PM
Embr Wave
AnCan  – rick · 10:09 PM
From Len
AnCan  – rick · 10:09 PM
https://embrlabs.com/products/embr-wave-2
Steve Schuler · 10:15 PM
Thought I’d mention, the estradiol has helped my hot flashes, with fatigue, and also my “dizziness”, which is not really dizziness but this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5732995/
Steve Schuler · 10:17 PM
Benign Paroxysmal Positional Vertigo
Norm Pollock · 10:18 PM
Life Extension: Mood Improve and L-Theanine XR. Heard a doc talking about the probiotic who said they were using it for Bipolar
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 3, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 28, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 28, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s pick: Hot takes on hot flashes; many thoughts on healthy eating. (bn) 
Topics discussed 
Mysterious hormone issue means he needs to take hydrocortisone on top of his Lupron — any problem?; off ADT, but hot flashes linger; Veozah might help, if you can get it — Dr. E is looking into a trial; tofu and ground flax tame his hot flashes; and then there’s estradiol — see our webinar with Richard Wassersug; disappointed by doc’s change of heart on a drug holiday — and her prediction that his testosterone will never exceed 100; holding off on prostatectomy while he amasses data; how to stay away from unhealthy “ultraprocessed” food; there isn’t just one healthy diet — it depends on what you need; more thoughts on a paper that appears to advocate wider chemo use; despite stellar author lists, some papers are the work of a hired medical writer; he’s on the borderline of chemo eligibility and not eager to cross over.
Chat Log
[Waiting for name] · 6:17 PM
camera won’t work now. going to try leaving and coming back
Dr. Jeff · 6:30 PM
fezolinetant
AnCan  – rick  · 6:32 PM
Veozah is commercial name
Jerry Grimes, Brighton, MI · 6:38 PM
low dose estradiol patches can also help reduce hot flashes, but that’s usually in the setting of very low, to no, testosterone.  0.025 to 0.05 mg/day patches.  Look up Dr . Wassersug for more.
Unknown  · 6:40 PM
Soy Isoflavones by Life Extension
THOMAS  Matica · 6:44 PM
Sage tea (and others) for hot flashes from the Canadian College of Naturopathic Medicine   https://ccnmicc.ca/hot-flash-support-prostate-cancer It does have some side effects, so do your research.   Thomas
Julian – Houston · 7:03 PM
https://www.mskcc.org/nomograms/prostate
AnCan  – rick · 7:04 PM
Tx Julian – you beat me to it.
Dr. Jeff · 7:15 PM
Yuka – Food & Cosmetic Scanner 4+
Check What’s in Your Products
Yuca
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Richard Fiske · 7:17 PM
Thanks.
Unknown · 7:22 PM
Hack Your Health: The Secrets of Your Gut is a great Netflix documentary
Frank Fabish Columbus OH · 7:57 PM
Got to go guys. Thanks for tonight.
Memorial Day in Alexandria, VA…

Memorial Day in Alexandria, VA…

Memorial Day in Alexandria VA…

If you were walking down E. Luray Avenue in Alexandria, Virginia, maybe you saw this house ….

 

 

In front of that house was a table…..

 

 

 

… not, just any table but one bedecked with a white tablecloth, candle, red rose in a vase, wineglass, empty chair and more …

As you may have guessed, this is not just any house. Captain Jim Marshall (USAF Rtd) lives here with his good wife, Gail. It was Gail who came up with the idea to set up this symbolic table

 

On This Memorial Day We Honor The Fallen Soldier    ★★

This table is reserved to honor our brave and selfless American military members who have perished on the battlefield, those who have not been returned to us after being taken prisoner on foreign soil, and for those who went missing and have not found their way back home.

The table is round-  to show our everlasting concern for our fallen and our missing, and set for one, it is small, symbolizing the frailty of one prisoner alone against his or her suppressors.

The white tablecloth – symbolizing the purity of their intentions to respond to their country’s call to arms.

The single red rose– reminds us of the life of each of our fallen, and the loved ones and friends who miss them each and every day.

The vase is tied with a red ribbon – a symbol of our continued determination to remember our fallen and find our missing.

The slices of lemon – on the plate is to remind us of the bitter fate of those who will never return.

A pinch of salt– symbolizes the tears endured by the friends and families of those who have fallen and of those who have not returned.

The inverted wine glass–  they cannot toast with us at this time.

The empty chair–  they are no longer with us.

The candle –  is reminiscent of the light of hope which lives in our hearts to illuminate their way home from their captors, to the open arms of a grateful nation.

Thank you Jim and Gail from all of us at AnCan Foundation on this National Memorial Day holiday!

Reflecting on a webinar: Pet Aging, Illness, and Loss

Summarizing a webinar: Pet Aging, Illness, and Loss

Here at AnCan, we like to consider all aspects of our community’s livelihood. Whilst juggling our various illnesses with the demands of everyday life, some of us have the honor and privilege of sharing our lives with animals that love just as deeply as we do. Many have been there for us during the most difficult times of our lives. Through diagnosis, treatment, recovery, daily living, grief – you name it.

Trigger warning: Pet loss

I recently got the chance to listen to a webinar about grieving and end-of-life care for pets. This webinar, titled “Pet Aging, Illness, and Loss”, was hosted by Mettle Health. I’ll link it down below. Their guest speakers were veterinarian Mary Gardner & host BJ Miller. Mary Gardner specializes in end-of-life care for animals and euthanasia. It would seem to me that she also specializes in compassion; compassion for the pets she encounters and for their human caregivers.

I’m actually typing part of this blog post one-handed, as a newly rescued kitten purrs in one of my arms. We found her underneath a car just the other day. The life of an animal lover can leave our hearts so full. As cherished members of our families, pets provide love, comfort, and even health benefits – making their end-of-life care an equally crucial and compassionate endeavor.

I had to prepare myself for this one. Anyone who knows me or who’s taken a class with me will know how much my pets mean to me. And when you’ve had as many pets and emotional support animals as I have, you’ll know what it’s like to grieve them. It can be just as painful as losing a human loved one; and for me, the impact of the loss of a pet and the loss of a human are exactly the same.

Mary addresses an important question that doesn’t have a clear answer.

“How do I know when it’s ‘time’?”

They start by talking about the role of pets in our lives and how it’s changed over time. These days when people come to her for help, their pets have lived their lives in the lap of luxury, with all the pillows and modern comforts they could want. That’s an exaggeration, but you get the picture!

I remember a time when it was common for dogs to be chained up outside. Honestly, that’s still the case in some homes. Cats did, and still do, aimlessly roam the streets. The first dog I ever grew up with was named Jack. He was an absolutely sweet & protective German Shepherd mixed breed dog who lived his life often, but not always, chained to my grandparent’s front yard in the inner west side of San Antonio, TX. It was a different time, with a different attitude towards pets. I spent as much time outside with him as a 6-7-8-9-10-year-old could.

Working animals have their place, too, and no judgment at all for people whose animals/pets are working pets. The grand takeaway from this, however, is that no matter what, we still want them to have as happy and pain-free of a life as possible. It’s about compassion and care.

There are so many reasons to euthanize. Quality of life for the pet & caregiver fatigue are probably the biggest things to consider. Think about your “monetary budget, your physical budget, and your emotional budget”. I thought that was a great way to phrase it.

The entire point of euthanasia (and of this webinar) is to be able to minimize suffering, no matter their role in our lives. It’s a gift, really.

Quality of life

So, how can you tell if a pet is near its “time”? Gardner gives examples based on breed and ailment. Arthritis in big dogs, breathing problems, and more. Then she sprinkles in answers as to how she might assess the quality of life of this pet. She will go through a list of questions with clients that give her an idea of how to guide them. Consider this: How do they live? Is it living?

Sometimes their physical body is ready, but their mentality may not be. It can be hard to judge when it’s time because of that.

One thing Gardner stresses is that “It will always seem too soon until it’s too late”. Euthanasia is not about giving up. “It’s about ensuring that their goodbye is good.” Here’s something that hit home for me: if you know for sure it’s time, they’re usually really suffering.

When I heard that, I had flashbacks of moments where I regretted waiting too long. If only I’d had someone to tell me that the kindest thing to do would be to euthanize my pets before it was too much for them. My beloved Green Spotted Puffer fish, Puffy, comes to mind. I regret euthanizing when I did, and wish I’d proceeded sooner. I still feel a tinge of sadness every time I think about him. I’ve got to remember, though: he lived a very long, full life for a pufferfish in captivity. The happy, blissful days, far outweigh and outnumber that time in our lives. Hold on to those memories. Don’t put yourself down for feeling like you didn’t make the right call at the right time.

Quality of life continues to be a question that doesn’t have a clear answer. You’ve probably heard the reassurance, “Don’t worry, you’ll know when it’s time”. Well, actually, it isn’t that easy. You may even hear that sentence from veterinarians themselves. Unlike their human counterparts, veterinarians are typically not trained to have these end-of-life conversations. They may know the ins and outs of veterinary care, but they may be a little bit lacking in the palliative care and hospice departments. Of course, this doesn’t apply to all vets.

For Gardner, some people call her saying “We’ve had such a terrible week, I think it’s time”. Or, the opposite – “We had such an amazing week, I think it’s time”.

Caregivers

The webinar also talks about the role of caregivers. Human caregiving and animal caregiving have the very same symptoms. Anyone surprised? Not me. Gardner noticed this when she went to a conference about end-of-life care for humans. Caregivers for animals express the very same issues. It’s an emotional, physical, and monetary toll. This can be especially true for people in our AnCan community – those of us who are also living with cancer or chronic illnesses, or who are also caregivers to a beloved human.

I remember times when I declined to go out with friends on trips, or even a single night out when I had my rat, Pokka. Rats have a shockingly short lifespan, and this little rat and my pufferfish were my world at the time. I felt so bad leaving Pokka in his cage for too long, as he couldn’t live with any other rats. For 2.5 years, I just needed to be home for him. Although I felt bad for declining so many invitations from family and friends, I don’t regret spending a single second with my Pokka. I knew that my time with him was limited – especially as he got older, and his body started to deteriorate. For me, it helps to remember that those 2.5 years are just a drop in the bucket compared to how long my life could potentially be. It was all worth it.

It’s ok to feel frustrated at the situation. You may be feeling emotionally and physically tired. It’s possible to simultaneously be tired of the burden of all your pet’s problems, and want nothing more than to be there for them. Try to get support. Respite care is ok to ask for, even for pets. No judgment, whatever your situation is. It just is hard.

As with human care, hospice and palliative care are different (but related). Gardner works with clients to navigate both forms of care. Both she and BJ talked about how hospice and palliative care have negative connotations in the eyes of many people. Palliative care is the pursuit of a good quality of life. Hospice is all of that, but when the end is in sight. Have these conversations about palliative care and hospice if you feel your pet needs it.

Overall, this was a wonderful listen. Check out the full webinar here:

https://youtu.be/bC-P9X2h09Q?si=ZJ2CdJg9KL8oq8nE

Mettle Health is dedicated to helping those with illnesses and conditions navigate their lives in a meaningful way. Take a look at the rest of their YouTube videos here:

https://www.youtube.com/c/mettlehealth

There are some support groups you can find online, in addition to Facebook groups. I’m personally part of a private pet loss group on Facebook. Here are some resources I found just with a quick Google search:

Lap of Love – https://www.lapoflove.com/our-services/pet-loss-support

Association for Pet Loss and Bereavement – https://www.aplb.org/

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 3, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 20, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 20, 2024

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editors Pick: Should docs prescribe chemo more often? (bn)
Topics Discussed
10 years after prostatectomy, PSMA PET finds a spot near his bladder…cancer or a surgical staple?;  is a weight-loss drug like Mounjaro any good for ADT poundage?; unhappy about starting ADT as spot radiation loses effectiveness — but maybe he can wait; should docs be prescribing us chemo sooner and more often?; younger man starting enzalutamide — what to expect?; helpful conference on managing a career during cancer treatment;  speaking for himself, chemo hasn’t been so bad; successfully straight-arming a rush to surgery; battling the royal runaround from Kaiser Permanente; early report: estradiol cuts hot flashes; chasing the hot-flash drug for women Veozah if you’re a man;  radiation shots to prevent gynecomastia.
Chat Log
eric · 8:23 PM
joe hand his hand up
Jim Marshall, Alexandria, VA · 8:41 PM
Think about if you are reducing your food intake and doing a healther diet,suggest Blood test every 60 days to see if you are deficient in Potassiun, sodium, B12, etc.   Jim Marshall
Dr. Jeff · 8:46 PM
https://pdf.sciencedirectassets.com/280643/1-s2.0-S1558767324X00038/1-s2.0-S1558767324000028/main.pdf?X-Amz-Security-Token=IQoJb3JpZ2luX2VjEMD%2F%2F%2F%2F%2F%2F%2F%2F%2F%2FwEaCXVzLWVhc3QtMSJIMEYCIQDTdnjVVV4d%2BkiMi5vl5h4gPiKhGrJCTuumbLVOUuc%2FRgIhANJoJs47Bge%2BNZZx%2B2IQ1D9oukXPUZ8%2BMS8HGZJJ1nJxKrIFCDkQBRoMMDU5MDAzNTQ2ODY1IgxGCsJGLprKslOaDIMqjwU0DqWAaAAquwCv9vLzxh6Vr%2B4uNIVlplVRkBj43UGbiliO3kW4jSjOzRbIlgfpMISjG5bm45H1rkWWtVG85Nszf0kZ%2F3fc139Tlw%2F8KiXMb%2FopJo2MjYcyf8gK%2FAH%2B4H5PJepB8eIeOSC5iKTEmk7KeVJKcdQr6hYbCXFJJHZHoprqYMvuOwdlwnGbdkJfxTS%2FFdzkNFnZnEv3WNBCUv0%2BIob5dwl%2FPdevcKvd9ZdzJAfPIbTYwCF4NKympnn5Cx5JihD7GBsZUs%2FRiJpnfEtLV%2BPrkAon2gABZ9SHECizeDT2ZRf2bdJTX9V3iMyPCo%2B09zfgb7BDa3j%2Bk53Y4dTYaFUnY7u%2Bgtqg%2FkMf9t3K58KLIJlWVupWvnF%2BBd19cRuejsyzzMsLxQSE65qInMXYUixUfpmzN4UXToYbTjTZGMnrvPI9LyVKvDIh9SYX5ebL2P4dFpaoMGWGE9Rs7FvMlcuAt5AaMdOAZ4unL%2FQ2Dcv9H%2BIKY2ncwHkw5CwWIEIHHtZekyHbCUnmSehe9N46lLtjvvzQz5hCLF5dKW4bZgGGmh3llENx8QYIxAPYZU3Cxdacoco19jt3RZ4gDONbFHLEnnfHKBaJSpaSn5lNhmMczcgUn3PcbFgAUpUCPU0%2BM9oW9XGLXTbydJUzLXaJEVQyrz3VySjNyviZvCyifZ9amyBLYi290iAhdGSL%2Fdw0DJ%2FaHkTzkgVTeWP6xiDz3fzbTJjuQ9PovUdLninmryoTYLohAQrq13eAp4Nl9VOcSpDeMMRkGPEnVdd%2Fzq2TssgE4sFxsd0jTwNzOiAzdNZWi8xszUMtIXuhB0COkUtJp%2FUEisWPjp1OfjkncLyE92YtIQBc9bgb6sH%2B5llwMN%2B7r7IGOrABX6Hwr9sGf5IBHN7A4Fgm3ZPbftW1jlrssyC0Z9OhHxqL%2BP4zCiu8EBRmMvDALfdBNIwv3eGxkJxKNWuSRLwMtnv6pe%2FCtyTj1GEHeWar25KDzgV7d6OyvIznN%2FCDyAHBIQdv54frXIxqxg6o2FXB7tjHgOt7kM%2B9cT1ujwmfLGuJCC9A6wU4kH7dj%2BuKWM9y6uDiJDXtv7jOCUnSwDRvz3QD3ZypkU4xullJ3tuevoQ%3D&X-Amz-Algorithm=AWS4-HMAC-SHA256&X-Amz-Date=20240521T004526Z&X-Amz-SignedHeaders=host&X-Amz-Expires=300&X-Amz-Credential=ASIAQ3PHCVTYXTI5GANJ%2F20240521%2Fus-east-1%2Fs3%2Faws4_request&X-Amz-Signature=71bced00831063fa476f8eac8fa14058a614a5f767ef5e69645e7a91e5c15b44&hash=cf3555b6025b721aa53e9f9ab593eb3b19b8c35c038eb9d184e941c97926173a&host=68042c943591013ac2b2430a89b270f6af2c76d8dfd086a07176afe7c76c2c61&pii=S1558767324000028&tid=spdf-ffb82d0b-f009-4b62-aefb-20be00661fc0&sid=05aeb5c54c07b44bf98b3e451864378d11bdgxrqa&type=client&tsoh=d3d3LnNjaWVuY2VkaXJlY3QuY29t&ua=1310575854575f005551&rr=88708b32eaab447a&cc=us
Matt M  – Sac · 8:47 PM
I emailed the paper PDF to Rick.
Adam · 8:50 PM
Ty!
Adam · 8:53 PM
I did triplet therapy and was told before beginning the Docetaxel that it prolonged survival by 9-12mos….maybe less.
Steve Schuler · 9:01 PM
STAMPEDE?
THOMAS  Matica · 9:01 PM
Would a paper like this address financial conflicts of interest? Who pays for such studies?
Len Sierra · 9:03 PM
The other study was CHAARTED.
AnCan  – rick · 9:05 PM
@Thomas… Financial conflict of interest is not really the question here because there’s no money in chemo. Maybe an academic CoI.
AnCan  – rick · 9:08 PM
GREAT discussion guys – LOVE the participation!!!♥️
TonyFig · 9:20 PM
Joe Commando mentioned he had additional questions
AnCan  – rick · 9:29 PM
Great advice BUT check with your medical team first
Matt M  – Sac · 9:32 PM
https://www.cancerandcareers.org/en/at-work
AnCan  – rick · 9:33 PM
This goes with Matt’s link ….. Cancer & Careers
Work & Cancer
Friday, June 21st  8:45 AM – 5:00 PM ET
What: Learn from a variety of experts as we explore the issues people face while navigating work after a cancer diagnosis!
Who: This program is free and open to patients, survivors, caregivers, advocates, healthcare/HR professionals* and anyone else touched by cancer.
Location: Zoom;  Phone & webinar options available;  Real-time closed captioning provided
Registration: Register to reserve your spot and stay updated on agenda items
For more information, click here.
RECORDINGS
Matt M  – Sac · 9:36 PM
its on my calendar ✅
AnCan  – rick · 9:38 PM
Foamy Cell Prostate Cancer
AnCan  – rick · 9:41 PM
Cabazitaxel
Frank Fabish Columbus OH · 9:56 PM
Got to go guys. Thanks for a lively session.
Jim Marshall, Alexandria, VA · 9:58 PM
Thw way I handle things to to also explain why I want  and need it.   Jim
Matt M  – Sac · 9:59 PM
got to go fellas, appreciate y’all! Thanks for everything.
AnCan  – rick · 10:05 PM
veozah (fezolinetant)
AnCan  – rick · 10:06 PM
Estradiol
Len Sierra · 10:06 PM
buona notte
eric · 10:07 PM
dr. jeff has his hand up
AnCan  – rick · 10:08 PM
https://ancan.org/talking-estradiol-e2-for-recurrent-and-advanced-prostate-cancer/
Wang Gao Shan – PANAMA · 10:08 PM
Note: Estradiol, also spelled oestradiol.
THOMAS  Matica · 10:12 PM
Search “Sage for Hot Flashes”. Lot of links.

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, June 3, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 14, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, May 14, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
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All AnCan’s groups are free and drop-in … join us in person sometime!
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Editor’s Pick: Metastatic prostate cancer in addition to metastatic melanoma — at age 50 (bn)
Topics Discussed
He’s 76, hasn’t had a PSMA scan, so maybe not so fast with that surgery — plus he’s in bondage to a restrictive insurance plan; guide the surgery/radiation choice with the online MSK nomogram; treatment for his metastatic melanoma revealed metastatic prostate cancer — at age 50;  low hemoglobin keeps him from a clinical trial; why’d doc prescribe Lynparza — you should always ask a doc why; bad to worse when he switches to darolutamide; Orgovyx more tolerable than Lupron?; don’t sweat a 0.01 PSA rise;  PSA near zero but PSMA scan can still have value — if insurance will pay; doc balks at drug to reduce testosterone flare; women’s libido-boosting drug Vyleesi may also work for men on ADT — Dr. E putting a study together.
Chat Log
Bill Franklin · 6:27 PM
Daniel, this is where the chat appears.
Unknown · 6:28 PM
https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Unknown · 6:29 PM
Free genetic test
Julian – Houston · 6:32 PM
https://www.mskcc.org/nomograms/prostate
John A · 6:48 PM
I ran Daniel’s nomogram with what info I have.   Daniel you should do it.
Julian – Houston · 6:56 PM
https://www.mskcc.org/nomograms/prostate
Mark Thompson · 7:00 PM
Thank you all for having this support group. Unfortunately, I am dealing with sacrum pain and just fatigue this evening. Thank you. Mark Thompson Rehoboth Beach DE.
AnCan  – rick · 7:15 PM
Great point, Capt!!!
Michael McCabe · 7:18 PM
so far i prefer firmagon
Matt M · 7:19 PM
Thanks guys, really appreciate the support and advice!
daniel straub · 7:32 PM
John A: This is Dan and your previous chat indicated that I “should do it”… my nomogram indicates 50-80% high grade prostrate cancer.  Are you indicating I should do the surgery removal?
AnCan  – rick · 7:33 PM
Daniel – please use this link for PROMISE. It is likely to be much quicker than via KP. https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Talking Estradiol (E2) for Recurrent and Advanced Prostate Cancer: Wassersug et al

Talking Estradiol (E2) for Recurrent and Advanced Prostate Cancer: Wassersug et al

Talking Estradiol (E2) for Recurrent and Advanced Prostate Cancer: Wassersug et al

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.  Sincere apologies to all for failing to record our May 6 Group. It was totally a platform fault and not down to AnCan. As regulars are aware. this is a very rare event. AnCan hopes this session might make up for it.

Estrogen in its various forms has long been used as a primary and secondary means of managing prostate cancer. Primarily it can be used in place of an LHRH ADT drug. In its secondary capacity, it can be employed in addition to an LHRH drug to help men cope with side effects arising from lack of estrogen caused by the LHRH drug. These side effects include hot flashes and weakening bone density. Today Estradiol (E2) is considered to be a safe treatment when used as a skin patch or gel versus its original application in pill form that carried significant cardiovascular risks.

The foremost peer expert on the use of estrogen to manage prostate cancer is Richard Wassersug, Ph.D, author of Androgen Deprivation Therapy: An Essential Guide for Prostate Cancer Patients and Their Loved Ones that is now in its 3rd Edition https://connect.springerpub.com/content/book/978-0-8261-8403-0. Richard is also an AnCan Advisory Board Member.

In this 60 +minute discussion, Dr. Wassersug talks with two patients about using estradiol. One has used for primary control for 17 years, and the other just started using an Estradiol patch to control side effects alone. He is also joined by AnCan advanced PCa peer Moderators, Dr. John Antonucci and Rick Davis.

Rechallenging advanced disease with enzalutamide after Pluvicto is mentioned towards the end. Dr. Wassersug has since clarified that he favors rechallenging advanced disease with previous therapies after some form of radiation based on the abscopal effect. The use of enzalutamide in this context is not based on trial evidence.

AnCan asks that you first read Richard Wassersug’s book before reaching out to him. AND… Dr. Wassersug urges you to spend as much time exercising today as you have taken to watch this video!

To watch a previous session with Dr. Wassersug on this topic go to https://ancan.org/estrogen-based-hormone-therapy-treating-prostate-cancer/

Webinar: Is Pre-treatment Active Surveillance for Prostate Cancer Safe?

Webinar: Is Pre-treatment Active Surveillance for Prostate Cancer Safe?

Join us for this ‘ripped from the headlines’ webinar featuring a hot topic in the Active Surveillance community.

When world famous physician-scientist, leader of The Human Genome Project and former NIH Chief, Dr. Francis Collins, suddenly needs treatment for his prostate cancer that has accelerated from indolent to aggressive faster than a Formula 1 racer, many patients and medical professionals ask – whats up?

The NIH/NCI is considered one of the best medical institutions in the world. Did their active surveillance (AS) protocol fail or was Dr. Collins an anomaly? Do patients need to worry? … and is ‘cure’ really a possibility for Dr. Collins?

At short notice, AnCan Foundation, ASPI and The Active Surveillor have gathered together two world-renown urologists who curate their own AS cohorts. Drs. Peter Carroll and Laurie Klotz will discuss their views on the safety of pre-treatment AS for prostate cancer. Howard Wolinsky will moderate the discussion. AnCan’s own AS Support Group Moderators will be speaking after the presentation sharing their own thoughts

Watch here: (closed captioning is provided for this webinar, click the CC button at the bottom next to the gear.)

 

 

Special thanks to Bayer, Novartis, Johnson & Johnson, Myriad Genetics, Telix, and Blue Earth Diagnostics for sponsoring this webinar.

   

 

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