AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan – Stuart sent a chat · 7:56 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
AnCan – Stuart sent a chat · 7:56 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
AnCan Bill sent a chat · 8:17 PM
If you are new, feel free to share your email address here and we will ensure you get our reminders.
AnCan Bill sent a chat · 8:32 PM
Steve, we were getting a lot of mic noise from you. We muted you.
Larry (Veteran, Alaskan) sent a chat · 8:33 PM
Do not overlook the potential value of getting a consult from a Medical Oncologist as opposed to Surgical or Radiological.
Martin Uthe sent a chat · 8:35 PM
Stuart, What is your email? Thank you.
Martin Uthe sent a chat · 8:36 PM
Larry, Thank you. M
AnCan – rick sent a chat · 8:36 PM
stuart@ancan.org
AnCan – rick sent a chat · 8:40 PM
I would disagrree with Larry at this time. With just a mm or two of 4+3 that we are checking with a 2nd opinion, most Genitourinary medical oncologists would not see you. You will not be able to get an appointment with Maha Hussein or David VanderWeele. Just seeing a general med onc will only confuse you.
Martin Uthe sent a chat · 8:41 PM
I am already confused!
Tom O NJ sent a chat · 8:44 PM
Martin confusion is why this group exist… keep coming keep doing research. I am new also and struggling w/ decision making.
Martin Uthe sent a chat · 8:45 PM
Thank you, Tom.
AnCan Bill sent a chat · 8:47 PM
Thanks Tom. We are here to help as best we can.
AnCan – Boykin sent a chat · 9:02 PM
Active Surveillance https://ancan.org/event/active-surveillance-prostate-cancer-2/2025-12-10/
Steve sent a chat · 9:10 PM
I was wondering if I should push for a Decipher test now?
Steve sent a chat · 9:11 PM
I tried to get one but its a bit hard from a foriegn country without a US Dr.
AnCan – rick sent a chat · 9:12 PM
Speak with Epstein first and also ask him. May help but I don’t know enough about Decipher. Dr. John does.
AnCan – rick sent a chat · 9:13 PM
We’re awae that it’s hard to get Decipher outside the country.
Steve sent a chat · 9:13 PM
ok 👍
Steve sent a chat · 9:13 PM
Yes I had Invitae genetic test … all negative.
Steve sent a chat · 9:14 PM
12 genes tested
AnCan – rick sent a chat · 9:14 PM
From Dr. John …. Steve: since there is some ambiguity, why not, if Epstein agrees
AnCan – rick sent a chat · 9:15 PM
Invitae is a germline test – very different to Decipher.
Steve sent a chat · 9:16 PM
Yep understand re: germline … I might have used wrong terminology
Steve sent a chat · 9:16 PM
Thanks Rick
Steve sent a chat · 9:17 PM
Any thoughts on state of the air radiation treatments if I end up there?
AnCan Bill sent a chat · 9:18 PM
bfranklin@ancan.org
Steve sent a chat · 9:19 PM
My connection dropped so not sure if I missed any texts
Steve sent a chat · 9:19 PM
re: Radiation.
AnCan – rick sent a chat · 9:20 PM
My bad…. didn’t realize the mic was on.
AnCan–John A sent a chat · 9:21 PM
Steve: likely SBRT
Steve sent a chat · 9:21 PM
ok, does that imply MRI Guided?
AnCan–John A sent a chat · 9:23 PM
Steve: probably at a state of the art center. Maybe CT
Steve sent a chat · 9:23 PM
CT?
AnCan–John A sent a chat · 9:23 PM
Computerized Axial Tomography
Steve sent a chat · 9:24 PM
Got ya, thanks 🙂
Steve sent a chat · 9:25 PM
SBRT with Real-Time Tracking (CyberKnife)?
AnCan–John A sent a chat · 9:26 PM
that’s an example yes
Steve sent a chat · 9:26 PM
MRI-Guided SBRT (MR-Linac: ViewRay MRIdian or Elekta Unity)
AnCan Bill sent a chat · 9:27 PM
Dr. Sanoj Punnen
Steve sent a chat · 9:27 PM
I will also check with my oncologist who I am seeing for Pet scan in a few hours
AnCan Bill sent a chat · 9:30 PM
https://sylvester-doctors.umiamihealth.org/
AnCan – rick sent a chat · 9:32 PM
https://sylvester-doctors.umiamihealth.org/
Steve sent a chat · 9:32 PM
I’m considering adding Dr. Kishan at UCLA to my trip.
Steve sent a chat · 9:36 PM
Did you have side effects?
Steve sent a chat · 9:37 PM
I like the idea he is on west coast as its already about 20-25 hrs flight time to get to CA 🙂
AnCan – rick sent a chat · 9:45 PM
dr.john@ancan.org
AnCan – rick sent a chat · 9:46 PM
https://www.uwmedicine.org/bios/effie-andrikopoulou
Steve sent a chat · 9:50 PM
Who was the Dr at UCSF who I should talk to re: Active Surveillance?
AnCan – rick sent a chat · 9:53 PM
UCSF – Peter Carrroll is the expert but winding down. Matt Cooperberg is one. If you can’t get to him, Sam Washington.
Steve sent a chat · 9:54 PM
Thanks Rick 👍
Steve sent a chat · 9:55 PM
Did you have the name and contact of the guy in Malaysia (I think it was you who mentioned him).
AnCan – rick sent a chat · 9:57 PM
Read this metastudy …. https://jamanetwork.com/journals/jamaoncology/article-abstract/2841671?guestAccessKey=d03b0908-90c8-497e-85cd-aebb43ec2a63&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jamaoncology&utm_content=olf-tfl_&utm_term=112025&mc_cid=0fa42784f6&mc_eid=838454d636
Steve sent a chat · 10:01 PM
Thanks so much for all the help guys. Makes my path alot more focused on best next steps. Much appreciated 🙏
Steve sent a chat · 10:05 PM
My connection dropped again… back on now
AnCan Bill sent a chat · 10:05 PM
We are glad you found us. Please keep coming to the group.
Steve sent a chat · 10:06 PM
You guys give us alot more confidence dealing with PC
Steve sent a chat · 10:10 PM
Rick/Stuart do you guys mind sharing your email?
AnCan Bill sent a chat · 10:11 PM
rd@ancan.org and stuart@ancan.org
AnCan – Stuart sent a chat · 10:11 PM
https://www.uclahealth.org/providers/amar-kishan
AnCan – Stuart sent a chat · 10:12 PM
MR-Linac
Paul N. sent a chat · 10:14 PM
Ask Keeshan about the Prostox test
AnCan Bill sent a chat · 10:20 PM
Special Presentation: What if You Could Predict the Risk of Radiation Effects – Prostox and Beyond
Carl S. sent a chat · 10:21 PM
Thanks guys, see you next time.
Manuel sent a chat · 10:21 PM
Thanks for a great session!
Steve sent a chat · 10:22 PM
Thanks Guys 🙂