If you have attended our Advanced Prostate Cancer Group, or our Speaking Freely Group or even our U60 Advanced PCa group, you may have been fortunate enough to hear Joe Boardman particpate from his erie in Colorado.
Editor’s Pick: PRINT trial examines small cell/NE morphing … not to mention EXERCISE beats fatigue! (rd)
Topics Discussed
DeNovo Metastatic man enters trial for HPN424; yet more monotherapy bicalutamide – after 17 yrs of no treatment!; FMI finds ROS1 – what next; introducing palliative care; bone cancer pain or arthritis; PRINT trial looks to thwart PCa cells morphing to small cell/NE; clinical trials still shut down nationally; to radiate or not with 5 lesions?; Procrit?; another denovo Mx man asks should he do chemo?; EXERCISE WORKS to relieve fatigue from salvage RT!!!; remedies for hot sweats.
Rich Jackson (to Organizer(s) Only): 6:22 PM: About rhPSMA rhPSMA-7.3 (18F) consists of a radiohybrid Prostate-Specific Membrane Antigen (PSMA)-targeted receptor ligand which attaches to and is internalized by prostate cancer cells, and is labeled with the 18F radioisotope for PET imaging. Single intravenous administration of rhPSMA-7.3 (18F) for PET Scan
Dennis Correia (to Everyone): 6:32 PM: nct#02903160 (PRINT Trial)
Larry Fish (to Everyone): 7:05 PM: MMR mismatch repair deficiency
AnCan – Rick (to Everyone): 7:15 PM: https://www.urotoday.com/video-lectures/mcrpc-treatment/video/mediaitem/843-embedded-media2017-10-09-16-50-00.html?utm_source=newsletter_4869&utm_medium=email&utm_campaign=navigating-the-course-of-treatment-new-findings-meet-old-habits-findings-from-latitude
Editor’s Note: We mourn the loss of Dan Louie, who we have supported since 2014.
Pick of the Week: Is there an immunologic/abscopal systemic benefit from radiation therapy?
Topics Discussed
Recent RRP finds local metastasis – follow up?; deferring appointments during Covid19; monitoring testosterone levels on hormone therapy; completing SBRT to prostate and oligometastaic spots; exercise and treatment duting Covid19; abscopal/immuno systemic response from radiation therapy; Covid19 problems on Maui; Dan Louie
Chat Log
Jake (to Organizer(s) Only): 5:31 PM: did he say he is metastatic?
AnCan – Rick (to Jake): 5:42 PM: yup – one lymph node; local Mx
AnCan – Rick (to Everyone): 5:45 PM: RADICAL trial shows adjuvant may be inferior to salvage https://www.ascopost.com/issues/october-25-2019/studies-suggest-early-salvage-radiotherapy-may-be-preferable-to-adjuvant-radiotherapy-after-prostatectomy/
AnCan – Rick (to Everyone): 5:48 PM: RADICALS-RT trial
AnCan – Rick (to Everyone): 6:19 PM: Peter – we care and love you xoxox
AnCan – Rick (to Len): 6:26 PM: Let’s make Carl a guinea pig for MyVictory
PLEASE NOTE – for reasons best known to GtM, we only have audio this week. Nor does there appear to have been any use of the Chat Window.
Editor’s Pick: LHRH drugs and mental anguish – a topic near and dear to my heart. I consider myself fortunate to have known ‘The Black Dog’, as Churchill called depression, before I went on Lupron. That was a blessing for me in that it was much esier for me to handle and absorb. My heart goes out to men who suffer depression &/or anxiety with no prior experience. (rd)
Topics Discussed:
condolences to Jim Ward; who’s at risk from COVID-19?; low PSA, soft -tissue PCa endures for 20 years; multiple treatments at one hospital visit; LHRH drugs cause anxiety and depression; medical marijuana; radiating the prostate in advanced disease; with recurrence, at what PSA level should you scan?; frequency and type of scans to monitor advanced disease
I am copying a post recently received from New PCI publcizing a short ASCO survey on how you embrace exercise and diet. As many know, AnCan strongly endorses exercise as part of any cancer management program; and sensible diet may also be significant and rarely hurts. I have taken the survey and encourage anyone previously diagnosed with any type of cancer to do so. (rd)
The American Society of Clinical Oncology (ASCO) has put together a brief research survey to learn more about patients’ experiences with cancer care. Specifically, ASCO is interested in patient’s perspectives on how things like diet, exercise, and weight management are incorporated into cancer care.
The survey should take most people no more than 10 minutes maximum to complete. All questions are optional, and ASCO has stated clearly that no personally identifiable information will be collected.
If you are an individual with a personal history of prostate cancer (or cancer of any other type), please click here to take this patient survey. Thanks for your help to ASCO in seeking to improve cancer care.
If you know others who are > 18 years of age and who have been diagnosed with any form of cancer, ASCO would also appreciate it if you passed information about this survey on to those people too. ASCO is seeking the widest possible range of responses to this survey from the cancer patient community.
Those of you who have followed me for years know I am totally committed to exercise. I strongly believed and endorsed its positive effects for disease control, especially for cancer. long before it was fashionable or well documented. I started a cancer exercise program at UCSF within 18 months of being diagnosed myself in 2007, that has flourished. At the time there was a paucity of evidence …. now it is abundant. Some of that evidence is well documented on the Research Page of our MedaFit site.
Our regular paritcpants in the High Risk/Recurrent/Advanced Prostate Cancer Virtual Group will know we have two particpants who swear by Dragon Boat Racing ….. Richard Foody who paddles for the MSKCC team.trained by guru Donna Wilson, as you can see.
And Advisory Board Member, Richard Wassersug PhD who paddles out West for his Vancouver based Butts in a Boat team. Richard’s colleagues recently published an academic paper in the February 2020 Issue of the Journal of Psychosocial Oncology that, to none of our surprise, concludes:
Physical activity improves quality of life in men with PC and recreationalphysical activity interventions may be attractive supportive care options for PC survivors with both physical and psychosocial benefits. Joining a sportfocused care group may increase social support and elicit positive psychological growth and future interventions may benefit from integrating the unique characteristics of dragon boating into peer support programs formale cancer survivors.
You can read the full Dragon Boat PCa study 2020 by clcking on the live link. Kudos to both Richards on their Dragon Boat Paddling!
Me on the other hand ….. am very happy in my single scull – the exercise without the social part!
Our regular paritcpants in the High Risk/Recurrent/Advanced Prostate Cancer Virtual Group will know we have two particpants who swear by Dragon Boat Racing ….. Richard Foody who paddles for the MSKCC team.trained by guru Donna Wilson, as you can see.
Me on the other hand ….. am very happy in my single scull – the exercise without the social part!